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Experiences of supportive care when waiting for a lung re-transplantation

Ivarsson, Bodil LU ; Ingemansson, Richard LU and Sjöberg, Trygve LU (2017) In SAGE Open 5. p.1-7
Abstract

OBJECTIVES: Lung transplant patients and their next of kin share the experiences of illness but little is known in the face of a lung re-transplantation. To describe patients' and next of kin's experiences of supportive care while awaiting lung re-transplantation and the objective was to highlight a small group with special circumstances and needs.

METHODS: Using qualitative content analysis, seven adult patients and seven next of kin were consecutively selected from a regional lung transplantation centre and individually interviewed shortly after decision about lung re-transplantation.

RESULTS: The experiences of supportive care were captured in one main category: 'once again haunted by death' and three sub-categories:... (More)

OBJECTIVES: Lung transplant patients and their next of kin share the experiences of illness but little is known in the face of a lung re-transplantation. To describe patients' and next of kin's experiences of supportive care while awaiting lung re-transplantation and the objective was to highlight a small group with special circumstances and needs.

METHODS: Using qualitative content analysis, seven adult patients and seven next of kin were consecutively selected from a regional lung transplantation centre and individually interviewed shortly after decision about lung re-transplantation.

RESULTS: The experiences of supportive care were captured in one main category: 'once again haunted by death' and three sub-categories: 'when life turns and death once again snorts down your neck', 'the importance of information', and 'perceptions of support'. A complex interaction between the experience of waiting, and communication patterns, emotional states, and social support was shown.

CONCLUSION: This study provides insights into the complex interaction between the experience of waiting for a second lung transplant and communication patterns, emotional states, social support and social roles between patients, next of kin, healthcare professionals, and the health and social welfare system. There is a need for developing supportive care programme to achieve the best possible care.

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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Advanced lung disease, pulmonary re-transplantation, experiences in everyday life
in
SAGE Open
volume
5
pages
7 pages
publisher
Sage Open
ISSN
2158-2440
DOI
10.1177/2050312117697151
language
English
LU publication?
yes
id
37972223-efbb-41ef-bbf5-ce1a92fa42e4
date added to LUP
2017-06-14 19:08:05
date last changed
2017-06-21 11:17:13
@article{37972223-efbb-41ef-bbf5-ce1a92fa42e4,
  abstract     = {<p>OBJECTIVES: Lung transplant patients and their next of kin share the experiences of illness but little is known in the face of a lung re-transplantation. To describe patients' and next of kin's experiences of supportive care while awaiting lung re-transplantation and the objective was to highlight a small group with special circumstances and needs.</p><p>METHODS: Using qualitative content analysis, seven adult patients and seven next of kin were consecutively selected from a regional lung transplantation centre and individually interviewed shortly after decision about lung re-transplantation.</p><p>RESULTS: The experiences of supportive care were captured in one main category: 'once again haunted by death' and three sub-categories: 'when life turns and death once again snorts down your neck', 'the importance of information', and 'perceptions of support'. A complex interaction between the experience of waiting, and communication patterns, emotional states, and social support was shown.</p><p>CONCLUSION: This study provides insights into the complex interaction between the experience of waiting for a second lung transplant and communication patterns, emotional states, social support and social roles between patients, next of kin, healthcare professionals, and the health and social welfare system. There is a need for developing supportive care programme to achieve the best possible care.</p>},
  author       = {Ivarsson, Bodil and Ingemansson, Richard and Sjöberg, Trygve},
  issn         = {2158-2440},
  keyword      = {Advanced lung disease,pulmonary re-transplantation,experiences in everyday life},
  language     = {eng},
  pages        = {1--7},
  publisher    = {Sage Open},
  series       = {SAGE Open},
  title        = {Experiences of supportive care when waiting for a lung re-transplantation},
  url          = {http://dx.doi.org/10.1177/2050312117697151},
  volume       = {5},
  year         = {2017},
}