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Co-afflicted but invisible : A qualitative study of perceptions among informal caregivers in cancer care

Tranberg, Mattias LU orcid ; Andersson, Magdalena LU ; Nilbert, Mef LU and Rasmussen, Birgit H. LU (2021) In Journal of Health Psychology 26(11). p.1850-1859
Abstract

This article explores the lived experience of informal caregivers in cancer care, focusing on the perceived burden and needs of individuals seeking support from an informal group for next of kin. A total of 28 individuals who were closely related to a patient with cancer participated in focus group interviews. Three themes were identified: setting aside one’s own needs, assuming the role of project manager, and losing one’s sense of identity. Together they form the framing theme: being co-afflicted. The characteristics of informal caregivers are shown to be similar to those of people with codependency, motivating development of targeted interventions from this perspective.

Please use this url to cite or link to this publication:
author
; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
cancer, codependency, family caregivers, oncology, spouse caregivers
in
Journal of Health Psychology
volume
26
issue
11
pages
10 pages
publisher
SAGE Publications
external identifiers
  • scopus:85076560855
  • pmid:31778077
ISSN
1359-1053
DOI
10.1177/1359105319890407
language
English
LU publication?
yes
id
42043eec-9966-4708-8232-e266c8e0b6ce
date added to LUP
2020-01-10 13:26:08
date last changed
2024-06-26 08:45:15
@article{42043eec-9966-4708-8232-e266c8e0b6ce,
  abstract     = {{<p>This article explores the lived experience of informal caregivers in cancer care, focusing on the perceived burden and needs of individuals seeking support from an informal group for next of kin. A total of 28 individuals who were closely related to a patient with cancer participated in focus group interviews. Three themes were identified: setting aside one’s own needs, assuming the role of project manager, and losing one’s sense of identity. Together they form the framing theme: being co-afflicted. The characteristics of informal caregivers are shown to be similar to those of people with codependency, motivating development of targeted interventions from this perspective.</p>}},
  author       = {{Tranberg, Mattias and Andersson, Magdalena and Nilbert, Mef and Rasmussen, Birgit H.}},
  issn         = {{1359-1053}},
  keywords     = {{cancer; codependency; family caregivers; oncology; spouse caregivers}},
  language     = {{eng}},
  month        = {{09}},
  number       = {{11}},
  pages        = {{1850--1859}},
  publisher    = {{SAGE Publications}},
  series       = {{Journal of Health Psychology}},
  title        = {{Co-afflicted but invisible : A qualitative study of perceptions among informal caregivers in cancer care}},
  url          = {{http://dx.doi.org/10.1177/1359105319890407}},
  doi          = {{10.1177/1359105319890407}},
  volume       = {{26}},
  year         = {{2021}},
}