Information experiences and needs in patients with pulmonary arterial hypertension or chronic thromboembolic pulmonary hypertension.
(2014) In Nursing Research and Practice 2014.- Abstract
- Background. Pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH) are fatal, noncurable, but treatable diseases that strongly affect the patients. Objective. To describe patients' experience of information relating to PAH or CTEPH. Methods. A qualitative method using content analysis was applied. Seventeen patients (thirteen women and four men) aged 28-73 years from a regional PAH centre were individually interviewed. Results. Three categories that describe patients' experiences of information emerged: handling of information, struggling with feelings that also affect others, and vulnerability associated with uncertainty. The patients would have welcomed more information to relatives from the... (More)
- Background. Pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH) are fatal, noncurable, but treatable diseases that strongly affect the patients. Objective. To describe patients' experience of information relating to PAH or CTEPH. Methods. A qualitative method using content analysis was applied. Seventeen patients (thirteen women and four men) aged 28-73 years from a regional PAH centre were individually interviewed. Results. Three categories that describe patients' experiences of information emerged: handling of information, struggling with feelings that also affect others, and vulnerability associated with uncertainty. The patients would have welcomed more information to relatives from the healthcare professionals. Shortcomings on communicating a prognosis were experienced. The mediated information and knowledge gave the patients insight into physical or psychosocial problems. Mutual exchange of information between patients and healthcare professionals were marred by different experiences of attitudes, behaviour, and ownership. Conclusions. In the future, healthcare organizations must struggle to achieve a holistic healthcare by making it more person-centred, and they must also promote cooperation between PAH centres and local healthcare providers. It is essential to determine the most appropriate and valuable path of information and communication and, thereby, the most cost-effective management of PAH or CTEPH. (Less)
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/4692093
- author
- Ivarsson, Bodil LU ; Ekmehag, Björn LU and Sjöberg, Trygve LU
- organization
- publishing date
- 2014
- type
- Contribution to journal
- publication status
- published
- subject
- in
- Nursing Research and Practice
- volume
- 2014
- article number
- 704094
- publisher
- Hindawi Limited
- external identifiers
-
- pmid:25197567
- pmid:25197567
- ISSN
- 2090-1429
- DOI
- 10.1155/2014/704094
- project
- Psychosocial issues in pulmonary arterial hypertension and chronic thromboembolic pulmonary hypertension
- language
- English
- LU publication?
- yes
- id
- 91de5c5f-990c-4dd7-8b8d-9e7c178cc49e (old id 4692093)
- alternative location
- http://www.ncbi.nlm.nih.gov/pubmed/25197567?dopt=Abstract
- date added to LUP
- 2016-04-01 10:48:32
- date last changed
- 2018-11-21 19:51:10
@article{91de5c5f-990c-4dd7-8b8d-9e7c178cc49e,
abstract = {{Background. Pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH) are fatal, noncurable, but treatable diseases that strongly affect the patients. Objective. To describe patients' experience of information relating to PAH or CTEPH. Methods. A qualitative method using content analysis was applied. Seventeen patients (thirteen women and four men) aged 28-73 years from a regional PAH centre were individually interviewed. Results. Three categories that describe patients' experiences of information emerged: handling of information, struggling with feelings that also affect others, and vulnerability associated with uncertainty. The patients would have welcomed more information to relatives from the healthcare professionals. Shortcomings on communicating a prognosis were experienced. The mediated information and knowledge gave the patients insight into physical or psychosocial problems. Mutual exchange of information between patients and healthcare professionals were marred by different experiences of attitudes, behaviour, and ownership. Conclusions. In the future, healthcare organizations must struggle to achieve a holistic healthcare by making it more person-centred, and they must also promote cooperation between PAH centres and local healthcare providers. It is essential to determine the most appropriate and valuable path of information and communication and, thereby, the most cost-effective management of PAH or CTEPH.}},
author = {{Ivarsson, Bodil and Ekmehag, Björn and Sjöberg, Trygve}},
issn = {{2090-1429}},
language = {{eng}},
publisher = {{Hindawi Limited}},
series = {{Nursing Research and Practice}},
title = {{Information experiences and needs in patients with pulmonary arterial hypertension or chronic thromboembolic pulmonary hypertension.}},
url = {{https://lup.lub.lu.se/search/files/2151274/5305710}},
doi = {{10.1155/2014/704094}},
volume = {{2014}},
year = {{2014}},
}