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The Unsteady Mainstay of the Family: Now Adult Children's Retrospective View on Social Support in Relation to Their Parent's Heart Transplantation.

Ågren, Susanna; Ivarsson, Bodil LU and Rönning, Helén (2014) In Nursing Research and Practice 2014.
Abstract
The needs for support among children with a seriously ill parent, who is waiting for heart transplantation, are unknown today. The aim was to describe now adult children's experiences of social support in relation to a parent's heart transplant during childhood. Nine females and four males were interviewed. The median age for the children was 18 at the transplantation and their parents had been ill before for 18 months (median) and on waiting list for 161 days (mean). Three categories emerged: health care professionals' approaches, family and friends' approaches, and society approaches. Our results show that there was lack of support for children of heart transplantation patients. Support in the shape of information was in most cases... (More)
The needs for support among children with a seriously ill parent, who is waiting for heart transplantation, are unknown today. The aim was to describe now adult children's experiences of social support in relation to a parent's heart transplant during childhood. Nine females and four males were interviewed. The median age for the children was 18 at the transplantation and their parents had been ill before for 18 months (median) and on waiting list for 161 days (mean). Three categories emerged: health care professionals' approaches, family and friends' approaches, and society approaches. Our results show that there was lack of support for children of heart transplantation patients. Support in the shape of information was in most cases provided by the sick or healthy parent. It is of great clinical importance to develop psychosocial support programs for children with a seriously ill parent waiting for heart transplantation (before, during, and after surgery). (Less)
Please use this url to cite or link to this publication:
author
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Nursing Research and Practice
volume
2014
publisher
Hindawi Publishing Corporation
external identifiers
  • pmid:25431662
ISSN
2090-1429
DOI
10.1155/2014/541241
language
English
LU publication?
yes
id
c2e9f413-d83e-4dd0-a953-e836c8750ffa (old id 4815795)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/25431662?dopt=Abstract
date added to LUP
2014-12-06 19:46:43
date last changed
2016-09-20 05:46:48
@article{c2e9f413-d83e-4dd0-a953-e836c8750ffa,
  abstract     = {The needs for support among children with a seriously ill parent, who is waiting for heart transplantation, are unknown today. The aim was to describe now adult children's experiences of social support in relation to a parent's heart transplant during childhood. Nine females and four males were interviewed. The median age for the children was 18 at the transplantation and their parents had been ill before for 18 months (median) and on waiting list for 161 days (mean). Three categories emerged: health care professionals' approaches, family and friends' approaches, and society approaches. Our results show that there was lack of support for children of heart transplantation patients. Support in the shape of information was in most cases provided by the sick or healthy parent. It is of great clinical importance to develop psychosocial support programs for children with a seriously ill parent waiting for heart transplantation (before, during, and after surgery).},
  articleno    = {541241},
  author       = {Ågren, Susanna and Ivarsson, Bodil and Rönning, Helén},
  issn         = {2090-1429},
  language     = {eng},
  publisher    = {Hindawi Publishing Corporation},
  series       = {Nursing Research and Practice},
  title        = {The Unsteady Mainstay of the Family: Now Adult Children's Retrospective View on Social Support in Relation to Their Parent's Heart Transplantation.},
  url          = {http://dx.doi.org/10.1155/2014/541241},
  volume       = {2014},
  year         = {2014},
}