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Relating Experienced To Recalled breathlessness Observational (RETRO) study : A prospective study using a mobile phone application

Sandberg, Jacob LU ; Lansing, Robert; Anderberg, Peter LU ; Currow, David; Sundh, Josefin; Ahmadi, Zainab LU ; Palmqvist, Sebastian LU and Ekström, Magnus LU (2019) In BMJ Open Respiratory Research 6(1).
Abstract

Background: Breathlessness, the subjective sensation of breathing discomfort, is common and appears in the daily life of people with cardiorespiratory diseases. Physicians often rely on patient's history based on symptom recall. The relation between recalled and experienced breathlessness is still poorly understood. This paper presents the protocol for a study primarily aimed at evaluating the relationship between experienced breathlessness and (1) recalled breathlessness and (2) predicted future breathlessness. Methods: A mobile phone application will be used to collect data during daily life. Medically stable participants, ≥18 years of age with mean daily breathlessness of Numerical Rating Scale (NRS) 3/10 and able to use a mobile... (More)

Background: Breathlessness, the subjective sensation of breathing discomfort, is common and appears in the daily life of people with cardiorespiratory diseases. Physicians often rely on patient's history based on symptom recall. The relation between recalled and experienced breathlessness is still poorly understood. This paper presents the protocol for a study primarily aimed at evaluating the relationship between experienced breathlessness and (1) recalled breathlessness and (2) predicted future breathlessness. Methods: A mobile phone application will be used to collect data during daily life. Medically stable participants, ≥18 years of age with mean daily breathlessness of Numerical Rating Scale (NRS) 3/10 and able to use a mobile phone with internet will rate their breathlessness intensity on a 0-10 NRS prompted the user several times daily for 1 week. Participants will recall their breathlessness each day and week. Multivariable random effects regression models will be used for statistical analyses. Results: Results of the study will be submitted for publication in peer-reviewed journals and presented at relevant conferences. Discussion: This protocol describes a study aimed at investigating previously unknown areas of the experience and recall of breathlessness using a new method of data collection.

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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
app, breathlessness, cohort study, dyspnoea, mobile phone application, recall
in
BMJ Open Respiratory Research
volume
6
issue
1
publisher
BMJ Publishing Group
external identifiers
  • scopus:85062026982
ISSN
2052-4439
DOI
10.1136/bmjresp-2018-000370
language
English
LU publication?
yes
id
4b6c7814-09cb-4d87-87a4-2e80c1225bc7
date added to LUP
2019-03-06 13:28:04
date last changed
2019-04-02 04:14:30
@article{4b6c7814-09cb-4d87-87a4-2e80c1225bc7,
  abstract     = {<p>Background: Breathlessness, the subjective sensation of breathing discomfort, is common and appears in the daily life of people with cardiorespiratory diseases. Physicians often rely on patient's history based on symptom recall. The relation between recalled and experienced breathlessness is still poorly understood. This paper presents the protocol for a study primarily aimed at evaluating the relationship between experienced breathlessness and (1) recalled breathlessness and (2) predicted future breathlessness. Methods: A mobile phone application will be used to collect data during daily life. Medically stable participants, ≥18 years of age with mean daily breathlessness of Numerical Rating Scale (NRS) 3/10 and able to use a mobile phone with internet will rate their breathlessness intensity on a 0-10 NRS prompted the user several times daily for 1 week. Participants will recall their breathlessness each day and week. Multivariable random effects regression models will be used for statistical analyses. Results: Results of the study will be submitted for publication in peer-reviewed journals and presented at relevant conferences. Discussion: This protocol describes a study aimed at investigating previously unknown areas of the experience and recall of breathlessness using a new method of data collection.</p>},
  articleno    = {e000370},
  author       = {Sandberg, Jacob and Lansing, Robert and Anderberg, Peter and Currow, David and Sundh, Josefin and Ahmadi, Zainab and Palmqvist, Sebastian and Ekström, Magnus},
  issn         = {2052-4439},
  keyword      = {app,breathlessness,cohort study,dyspnoea,mobile phone application,recall},
  language     = {eng},
  number       = {1},
  publisher    = {BMJ Publishing Group},
  series       = {BMJ Open Respiratory Research},
  title        = {Relating Experienced To Recalled breathlessness Observational (RETRO) study : A prospective study using a mobile phone application},
  url          = {http://dx.doi.org/10.1136/bmjresp-2018-000370},
  volume       = {6},
  year         = {2019},
}