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The Life After Stroke In Northern Sweden Study (LASINS) : Methodology, cohort demographics and initial results

Kähler, Maria LU ; Nilsson, Hanna M. LU and Lexell, Jan LU (2024) In NeuroRehabilitation 54(2). p.319-329
Abstract

BACKGROUND: To advance rehabilitation we need a comprehensive understanding of functioning and disability of people after stroke. OBJECTIVE: To present an overview of the methodology of the Life After Stroke In Northern Sweden Study, compare participants and non-participants regarding gender and age, and describe baseline sociodemographics, stroke characteristics and the participants’ self-rated degree of recovery. METHODS: Data were collected through a study specific questionnaire, from the participants’ medical records and with internationally established self-assessment tools focusing on sleep disturbances, depressive symptoms, fatigue, physical activity, and remaining physical and cognitive impairments, activity limitations,... (More)

BACKGROUND: To advance rehabilitation we need a comprehensive understanding of functioning and disability of people after stroke. OBJECTIVE: To present an overview of the methodology of the Life After Stroke In Northern Sweden Study, compare participants and non-participants regarding gender and age, and describe baseline sociodemographics, stroke characteristics and the participants’ self-rated degree of recovery. METHODS: Data were collected through a study specific questionnaire, from the participants’ medical records and with internationally established self-assessment tools focusing on sleep disturbances, depressive symptoms, fatigue, physical activity, and remaining physical and cognitive impairments, activity limitations, participation restrictions and life satisfaction. RESULTS: Of 301 potential participants, 160 comprise the final sample (response rate 53%; 86 men and 74 women, mean age 73 years ± 11, mean time since stroke onset 35 months ± 11; 18–61). Most participants had an ischemic stroke (87%), were retired (84%), cohabitant (63%) and walked independently (71%). The mean self-rated degree of recovery was 75 (SD ± 24; 0–100). CONCLUSIONS: These baseline data together with forthcoming studies will describe stroke-related impairments, activity limitations, participation restrictions and life satisfaction more than one year after stroke, and deepen our understanding of factors of importance for a healthy and successful life after stroke.

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author
; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Depression, disability and health, exercise, fatigue, fatigue assessment scale (FAS), health care, international classification of functioning, outcome assessment, sleep, sleep wake disorders, stroke
in
NeuroRehabilitation
volume
54
issue
2
pages
11 pages
publisher
IOS Press
external identifiers
  • pmid:38277309
  • scopus:85187955533
ISSN
1053-8135
DOI
10.3233/NRE-230278
language
English
LU publication?
yes
id
50004819-3e80-477f-93e9-95492f9a4aec
date added to LUP
2024-04-03 12:59:53
date last changed
2024-04-17 15:08:40
@article{50004819-3e80-477f-93e9-95492f9a4aec,
  abstract     = {{<p>BACKGROUND: To advance rehabilitation we need a comprehensive understanding of functioning and disability of people after stroke. OBJECTIVE: To present an overview of the methodology of the Life After Stroke In Northern Sweden Study, compare participants and non-participants regarding gender and age, and describe baseline sociodemographics, stroke characteristics and the participants’ self-rated degree of recovery. METHODS: Data were collected through a study specific questionnaire, from the participants’ medical records and with internationally established self-assessment tools focusing on sleep disturbances, depressive symptoms, fatigue, physical activity, and remaining physical and cognitive impairments, activity limitations, participation restrictions and life satisfaction. RESULTS: Of 301 potential participants, 160 comprise the final sample (response rate 53%; 86 men and 74 women, mean age 73 years ± 11, mean time since stroke onset 35 months ± 11; 18–61). Most participants had an ischemic stroke (87%), were retired (84%), cohabitant (63%) and walked independently (71%). The mean self-rated degree of recovery was 75 (SD ± 24; 0–100). CONCLUSIONS: These baseline data together with forthcoming studies will describe stroke-related impairments, activity limitations, participation restrictions and life satisfaction more than one year after stroke, and deepen our understanding of factors of importance for a healthy and successful life after stroke.</p>}},
  author       = {{Kähler, Maria and Nilsson, Hanna M. and Lexell, Jan}},
  issn         = {{1053-8135}},
  keywords     = {{Depression; disability and health; exercise; fatigue; fatigue assessment scale (FAS); health care; international classification of functioning; outcome assessment; sleep; sleep wake disorders; stroke}},
  language     = {{eng}},
  month        = {{03}},
  number       = {{2}},
  pages        = {{319--329}},
  publisher    = {{IOS Press}},
  series       = {{NeuroRehabilitation}},
  title        = {{The Life After Stroke In Northern Sweden Study (LASINS) : Methodology, cohort demographics and initial results}},
  url          = {{http://dx.doi.org/10.3233/NRE-230278}},
  doi          = {{10.3233/NRE-230278}},
  volume       = {{54}},
  year         = {{2024}},
}