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Children's Views on Long-Term Screening for Type 1 Diabetes.

Swartling, Ulrica LU ; Helgesson, Gert; Ludvigsson, Johnny; Hansson, Mats G and Nordgren, Anders (2014) In Journal of Empirical Research on Human Research Ethics 9(4). p.1-9
Abstract
There are an increasing number of medical research studies involving children, including many long-term birth cohort studies. Involving children raises many issues, and little is known about children's own views. This study explored children's views (N = 5,851) on participation in a long-term screening study for type 1 diabetes. The results show that children 10 to 13 years of age have in general a positive attitude to pediatric research and emphasized trust in researchers. The children stressed the importance to receive information and to be involved in decisions. The children also reported feeling concerned about blood sampling and disease risk. Researchers involved in long-term pediatric research need to address these issues to promote... (More)
There are an increasing number of medical research studies involving children, including many long-term birth cohort studies. Involving children raises many issues, and little is known about children's own views. This study explored children's views (N = 5,851) on participation in a long-term screening study for type 1 diabetes. The results show that children 10 to 13 years of age have in general a positive attitude to pediatric research and emphasized trust in researchers. The children stressed the importance to receive information and to be involved in decisions. The children also reported feeling concerned about blood sampling and disease risk. Researchers involved in long-term pediatric research need to address these issues to promote involvement and decrease worry. (Less)
Please use this url to cite or link to this publication:
author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
research ethics, screening, children, type 1 diabetes, assent
in
Journal of Empirical Research on Human Research Ethics
volume
9
issue
4
pages
1 - 9
publisher
SAGE Publications Inc.
external identifiers
  • pmid:25747292
  • scopus:84928011149
  • wos:000342637300001
ISSN
1556-2654
DOI
10.1177/1556264614544456
language
English
LU publication?
yes
id
00a3205a-e910-45c0-9205-85be41b9b39d (old id 5265101)
date added to LUP
2014-12-01 07:34:11
date last changed
2017-07-09 03:04:42
@article{00a3205a-e910-45c0-9205-85be41b9b39d,
  abstract     = {There are an increasing number of medical research studies involving children, including many long-term birth cohort studies. Involving children raises many issues, and little is known about children's own views. This study explored children's views (N = 5,851) on participation in a long-term screening study for type 1 diabetes. The results show that children 10 to 13 years of age have in general a positive attitude to pediatric research and emphasized trust in researchers. The children stressed the importance to receive information and to be involved in decisions. The children also reported feeling concerned about blood sampling and disease risk. Researchers involved in long-term pediatric research need to address these issues to promote involvement and decrease worry.},
  author       = {Swartling, Ulrica and Helgesson, Gert and Ludvigsson, Johnny and Hansson, Mats G and Nordgren, Anders},
  issn         = {1556-2654},
  keyword      = {research ethics,screening,children,type 1 diabetes,assent},
  language     = {eng},
  number       = {4},
  pages        = {1--9},
  publisher    = {SAGE Publications Inc.},
  series       = {Journal of Empirical Research on Human Research Ethics},
  title        = {Children's Views on Long-Term Screening for Type 1 Diabetes.},
  url          = {http://dx.doi.org/10.1177/1556264614544456},
  volume       = {9},
  year         = {2014},
}