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Perceptions of lymphoedema treatment in patients with breast cancer - a patient perspective

Karlsson, Katarina; Biguet, Gabriele; Johansson, Karin LU and Nilsson-Wikmar, Lena (2015) In Scandinavian Journal of Caring Sciences 29(1). p.110-117
Abstract
Lymphoedema after breast cancer surgery is a chronic condition. Lymphoedema treatment consists of information/advice, compression, physical exercise, skin care, and manual lymph drainage. Little is known about how patients experience, adapt, and respond to lymphoedema treatment. Thus, the purpose of the study was to investigate and describe women's perceptions of lymphoedema treatment after breast cancer surgery. Sixteen women with breast-cancer-related lymphoedema, recruited from four hospitals and two rehabilitation clinics, participated in the study. Semi-structured interviews were conducted and analysed using a phenomenographic method. Five qualitatively different categories of description could be identified: uncertainty,... (More)
Lymphoedema after breast cancer surgery is a chronic condition. Lymphoedema treatment consists of information/advice, compression, physical exercise, skin care, and manual lymph drainage. Little is known about how patients experience, adapt, and respond to lymphoedema treatment. Thus, the purpose of the study was to investigate and describe women's perceptions of lymphoedema treatment after breast cancer surgery. Sixteen women with breast-cancer-related lymphoedema, recruited from four hospitals and two rehabilitation clinics, participated in the study. Semi-structured interviews were conducted and analysed using a phenomenographic method. Five qualitatively different categories of description could be identified: uncertainty, disappointment, guilt and shame, safety, and autonomy. The categories could be described based on a two-dimensional structure: the patients role (internal vs. external locus of control) and an understanding of lymphoedema as a chronic disease or a burden. The study has provided a deeper understanding of different ways in which patients perceive and respond to lymphoedema treatment. The present findings enable the lymphoedema therapist to individualise treatment and counselling based on each patient's approach to the patient role, ability to take responsibility for treatment, and acceptance of lymphoedema as a chronic disease. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
qualitative method, interview, phenomenography, self-care, counselling
in
Scandinavian Journal of Caring Sciences
volume
29
issue
1
pages
110 - 117
publisher
Wiley-Blackwell
external identifiers
  • wos:000350285500011
  • scopus:84923083226
ISSN
1471-6712
DOI
10.1111/scs.12138
language
English
LU publication?
yes
id
7d67a964-9a63-4bb8-b3ba-3c3ea5f71fb6 (old id 5300483)
date added to LUP
2015-05-04 08:48:05
date last changed
2017-01-01 05:47:45
@article{7d67a964-9a63-4bb8-b3ba-3c3ea5f71fb6,
  abstract     = {Lymphoedema after breast cancer surgery is a chronic condition. Lymphoedema treatment consists of information/advice, compression, physical exercise, skin care, and manual lymph drainage. Little is known about how patients experience, adapt, and respond to lymphoedema treatment. Thus, the purpose of the study was to investigate and describe women's perceptions of lymphoedema treatment after breast cancer surgery. Sixteen women with breast-cancer-related lymphoedema, recruited from four hospitals and two rehabilitation clinics, participated in the study. Semi-structured interviews were conducted and analysed using a phenomenographic method. Five qualitatively different categories of description could be identified: uncertainty, disappointment, guilt and shame, safety, and autonomy. The categories could be described based on a two-dimensional structure: the patients role (internal vs. external locus of control) and an understanding of lymphoedema as a chronic disease or a burden. The study has provided a deeper understanding of different ways in which patients perceive and respond to lymphoedema treatment. The present findings enable the lymphoedema therapist to individualise treatment and counselling based on each patient's approach to the patient role, ability to take responsibility for treatment, and acceptance of lymphoedema as a chronic disease.},
  author       = {Karlsson, Katarina and Biguet, Gabriele and Johansson, Karin and Nilsson-Wikmar, Lena},
  issn         = {1471-6712},
  keyword      = {qualitative method,interview,phenomenography,self-care,counselling},
  language     = {eng},
  number       = {1},
  pages        = {110--117},
  publisher    = {Wiley-Blackwell},
  series       = {Scandinavian Journal of Caring Sciences},
  title        = {Perceptions of lymphoedema treatment in patients with breast cancer - a patient perspective},
  url          = {http://dx.doi.org/10.1111/scs.12138},
  volume       = {29},
  year         = {2015},
}