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Ethical aspects of a predictive test for Huntington's Disease: A long term perspective.

Lilja Andersson, Petra LU ; Petersén, Åsa LU ; Graff, Caroline and Edberg, Anna-Karin (2016) In Nursing Ethics p.565-575
Abstract
A predictive genetic test for Huntington's disease can be used before any symptoms are apparent, but there is only sparse knowledge about the long-term consequences of a positive test result. Such knowledge is important in order to gain a deeper understanding of families' experiences.
Please use this url to cite or link to this publication:
author
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Nursing Ethics
pages
565 - 575
publisher
SAGE Publications Inc.
external identifiers
  • pmid:25899725
  • scopus:84991434986
  • wos:000382950100007
ISSN
1477-0989
DOI
10.1177/0969733015576356
language
English
LU publication?
yes
id
7886be3b-db01-4865-b94d-a6a30ba33a95 (old id 5340982)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/25899725?dopt=Abstract
date added to LUP
2015-05-02 19:33:00
date last changed
2017-09-18 11:28:59
@article{7886be3b-db01-4865-b94d-a6a30ba33a95,
  abstract     = {A predictive genetic test for Huntington's disease can be used before any symptoms are apparent, but there is only sparse knowledge about the long-term consequences of a positive test result. Such knowledge is important in order to gain a deeper understanding of families' experiences.},
  author       = {Lilja Andersson, Petra and Petersén, Åsa and Graff, Caroline and Edberg, Anna-Karin},
  issn         = {1477-0989},
  language     = {eng},
  pages        = {565--575},
  publisher    = {SAGE Publications Inc.},
  series       = {Nursing Ethics},
  title        = {Ethical aspects of a predictive test for Huntington's Disease: A long term perspective.},
  url          = {http://dx.doi.org/10.1177/0969733015576356},
  year         = {2016},
}