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Survivorship after childhood cancer: PanCare: A European Network to promote optimal long-term care.

Hjorth, Lars LU ; Haupt, Riccardo; Skinner, Roderick; Grabow, Desiree; Byrne, Julianne; Karner, Sabine; Levitt, Gill; Michel, Gisela; van der Pal, Helena and Bárdi, Edit, et al. (2015) In European Journal of Cancer 51(10). p.1203-1211
Abstract
Survival after childhood cancer has improved substantially over recent decades. Although cancer in childhood is rare increasingly effective treatments have led to a growing number of long-term survivors. It is estimated that there are between 300,000 and 500,000 childhood cancer survivors in Europe. Such good survival prospects raise important questions relating to late effects of treatment for cancer. Research has shown that the majority will suffer adverse health outcomes and premature mortality compared with the general population. While chronic health conditions are common among childhood cancer survivors, each specific type of late effect is very rare. Long-term effects must be considered particularly when addressing complex... (More)
Survival after childhood cancer has improved substantially over recent decades. Although cancer in childhood is rare increasingly effective treatments have led to a growing number of long-term survivors. It is estimated that there are between 300,000 and 500,000 childhood cancer survivors in Europe. Such good survival prospects raise important questions relating to late effects of treatment for cancer. Research has shown that the majority will suffer adverse health outcomes and premature mortality compared with the general population. While chronic health conditions are common among childhood cancer survivors, each specific type of late effect is very rare. Long-term effects must be considered particularly when addressing complex multimodality treatments, and taking into account the interaction between aspects of treatment and genotype. The PanCare Network was set up across Europe in order to effectively answer many of these questions and thereby improve the care and quality of life of survivors. The need for a structured long-term follow-up system after childhood cancer has been recognised for some time and strategies for implementation have been developed, first nationally and then trans-nationally, across Europe. Since its first meeting in Lund in 2008, the goal of the PanCare Network has been to coordinate and implement these strategies to ensure that every European survivor of childhood and adolescent cancer receives optimal long-term care. This paper will outline the structure and work of the PanCare Network, including the results of several European surveys, the start of two EU-funded projects and interactions with relevant stakeholders and related projects. (Less)
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Contribution to journal
publication status
published
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European Journal of Cancer
volume
51
issue
10
pages
1203 - 1211
publisher
IFAC & Elsevier Ltd.
external identifiers
  • pmid:25958037
  • wos:000355332000001
  • scopus:84930619939
ISSN
1879-0852
DOI
10.1016/j.ejca.2015.04.002
language
English
LU publication?
yes
id
3581809e-32d3-4fee-a861-93cc1c07fc5e (old id 5453601)
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http://www.ncbi.nlm.nih.gov/pubmed/25958037?dopt=Abstract
date added to LUP
2015-06-04 18:17:50
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2017-10-01 03:21:26
@article{3581809e-32d3-4fee-a861-93cc1c07fc5e,
  abstract     = {Survival after childhood cancer has improved substantially over recent decades. Although cancer in childhood is rare increasingly effective treatments have led to a growing number of long-term survivors. It is estimated that there are between 300,000 and 500,000 childhood cancer survivors in Europe. Such good survival prospects raise important questions relating to late effects of treatment for cancer. Research has shown that the majority will suffer adverse health outcomes and premature mortality compared with the general population. While chronic health conditions are common among childhood cancer survivors, each specific type of late effect is very rare. Long-term effects must be considered particularly when addressing complex multimodality treatments, and taking into account the interaction between aspects of treatment and genotype. The PanCare Network was set up across Europe in order to effectively answer many of these questions and thereby improve the care and quality of life of survivors. The need for a structured long-term follow-up system after childhood cancer has been recognised for some time and strategies for implementation have been developed, first nationally and then trans-nationally, across Europe. Since its first meeting in Lund in 2008, the goal of the PanCare Network has been to coordinate and implement these strategies to ensure that every European survivor of childhood and adolescent cancer receives optimal long-term care. This paper will outline the structure and work of the PanCare Network, including the results of several European surveys, the start of two EU-funded projects and interactions with relevant stakeholders and related projects.},
  author       = {Hjorth, Lars and Haupt, Riccardo and Skinner, Roderick and Grabow, Desiree and Byrne, Julianne and Karner, Sabine and Levitt, Gill and Michel, Gisela and van der Pal, Helena and Bárdi, Edit and Beck, Jörn D and de Vathaire, Florent and Essig, Stefan and Frey, Eva and Garwicz, Stanislaw and Hawkins, Mike and Jakab, Zsuzsanna and Jankovic, Momcilo and Kazanowska, Bernarda and Kepak, Tomas and Kremer, Leontien and Lackner, Herwig and Sugden, Elaine and Terenziani, Monica and Zaletel, Lorna Zadravec and Kaatsch, Peter},
  issn         = {1879-0852},
  language     = {eng},
  number       = {10},
  pages        = {1203--1211},
  publisher    = {IFAC & Elsevier Ltd.},
  series       = {European Journal of Cancer},
  title        = {Survivorship after childhood cancer: PanCare: A European Network to promote optimal long-term care.},
  url          = {http://dx.doi.org/10.1016/j.ejca.2015.04.002},
  volume       = {51},
  year         = {2015},
}