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Health transition after lung transplantation - a grounded theory study

LUNDMARK, MARTINA LU ; Erlandsson, Lena-Karin LU ; Lennerling, Annette ; ALMGREN, MATILDA LU and Forsberg, Anna LU (2016) In Journal of Clinical Nursing 25(15-16). p.2285-2294
Abstract

Aims and objectives: To investigate lung recipients' process of transition from prior the transplantation to one year afterwards, as well as what their main concerns are and how they deal with these concerns. Background: During the last three decades, lung transplantation has been established as an effective treatment for patients with end-stage pulmonary disease. Towards the end of the 20th century, the concept of survival expanded to also include improving health-related quality of life (HRQoL). Although many studies have been published regarding lung recipients' HRQoL, aspects of health and everyday life remain understudied. Lung transplantation demands some kind of transition. However, very little is known about this transitional... (More)

Aims and objectives: To investigate lung recipients' process of transition from prior the transplantation to one year afterwards, as well as what their main concerns are and how they deal with these concerns. Background: During the last three decades, lung transplantation has been established as an effective treatment for patients with end-stage pulmonary disease. Towards the end of the 20th century, the concept of survival expanded to also include improving health-related quality of life (HRQoL). Although many studies have been published regarding lung recipients' HRQoL, aspects of health and everyday life remain understudied. Lung transplantation demands some kind of transition. However, very little is known about this transitional process. Design: A qualitative inductive approach using Grounded Theory (GT) was used. Methods: A total of ten adult males and five adult females (n = 15) with a mean age of 55 years were included in the study and interviewed one year after transplantation. The open-ended interviews were digitally recorded and transcribed verbatim after each interview. The analysis of the material was performed consistent with Charmaz contructivistic approach of GT. Results: The core category Reconstructing daily occupations summarises a process wherein the generated GT is present through four main categories: Restricting, Regaining, Reorganising and Enriching. The process of reconstructing daily occupations is necessary to regain health. Conclusions: A trajectory of health transition is evident, starting pretransplant with the lung disease and severe illness and proceeding at least up to one year after the transplantation with experienced health. Relevance to clinical practice: The result enables a unique possibility to enhance the lung recipients' striving for everyday life and thereby promote health. There is a need for change in the existing multidisciplinary transplant team to also include an occupational therapist to support and guide the lung recipients in changing their occupational patterns.

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author
; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Daily occupation, Everyday life, Grounded theory, Health, Health transition, Health-related quality of life, Lung transplantation, Qualitative study, Trajectory, Transition
in
Journal of Clinical Nursing
volume
25
issue
15-16
pages
10 pages
publisher
Wiley-Blackwell
external identifiers
  • pmid:27230156
  • wos:000385024500022
  • scopus:85027936025
ISSN
0962-1067
DOI
10.1111/jocn.13269
language
English
LU publication?
yes
id
54607f68-2e9d-4159-8cf1-49e2331bbc21
date added to LUP
2016-06-16 07:54:42
date last changed
2022-03-08 19:14:10
@article{54607f68-2e9d-4159-8cf1-49e2331bbc21,
  abstract     = {{<p>Aims and objectives: To investigate lung recipients' process of transition from prior the transplantation to one year afterwards, as well as what their main concerns are and how they deal with these concerns. Background: During the last three decades, lung transplantation has been established as an effective treatment for patients with end-stage pulmonary disease. Towards the end of the 20th century, the concept of survival expanded to also include improving health-related quality of life (HRQoL). Although many studies have been published regarding lung recipients' HRQoL, aspects of health and everyday life remain understudied. Lung transplantation demands some kind of transition. However, very little is known about this transitional process. Design: A qualitative inductive approach using Grounded Theory (GT) was used. Methods: A total of ten adult males and five adult females (n = 15) with a mean age of 55 years were included in the study and interviewed one year after transplantation. The open-ended interviews were digitally recorded and transcribed verbatim after each interview. The analysis of the material was performed consistent with Charmaz contructivistic approach of GT. Results: The core category Reconstructing daily occupations summarises a process wherein the generated GT is present through four main categories: Restricting, Regaining, Reorganising and Enriching. The process of reconstructing daily occupations is necessary to regain health. Conclusions: A trajectory of health transition is evident, starting pretransplant with the lung disease and severe illness and proceeding at least up to one year after the transplantation with experienced health. Relevance to clinical practice: The result enables a unique possibility to enhance the lung recipients' striving for everyday life and thereby promote health. There is a need for change in the existing multidisciplinary transplant team to also include an occupational therapist to support and guide the lung recipients in changing their occupational patterns.</p>}},
  author       = {{LUNDMARK, MARTINA and Erlandsson, Lena-Karin and Lennerling, Annette and ALMGREN, MATILDA and Forsberg, Anna}},
  issn         = {{0962-1067}},
  keywords     = {{Daily occupation; Everyday life; Grounded theory; Health; Health transition; Health-related quality of life; Lung transplantation; Qualitative study; Trajectory; Transition}},
  language     = {{eng}},
  month        = {{05}},
  number       = {{15-16}},
  pages        = {{2285--2294}},
  publisher    = {{Wiley-Blackwell}},
  series       = {{Journal of Clinical Nursing}},
  title        = {{Health transition after lung transplantation - a grounded theory study}},
  url          = {{http://dx.doi.org/10.1111/jocn.13269}},
  doi          = {{10.1111/jocn.13269}},
  volume       = {{25}},
  year         = {{2016}},
}