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Adherence with advice and prescriptions in SLE is mostly good, but better follow up is needed: A study with a questionnaire.

Nived, Ola LU ; Andersson, Maria LU ; Lindgren, M; Malcus-Johnsson, P; Nihlberg, A; Nived, K; Reimer-Rasmusson, G; Sturfelt, Gunnar LU ; Ståhl Hallengren, Christina LU and Bengtsson, Anders LU (2007) In Lupus 16(9). p.701-706
Abstract
The objective was to evaluate the efficacy of the information policy given to all systemic lupus erythematosus (SLE) patients. One hundred consecutive SLE patients were asked to answer anonymously a questionnaire covering demographic issues including education, adherence with prescriptions and advice given and methods of sourcing information. Seventy-three females and ten males responded. The demographic data showed that 34 had a university education, 29 high school and 19 primary school education. An inability to work due to disease was increased compared with the matched population (P < 0.001). Forty-two reported that they had received advice about physical training and forty of them followed this advice. Only 28 out of 46 smokers... (More)
The objective was to evaluate the efficacy of the information policy given to all systemic lupus erythematosus (SLE) patients. One hundred consecutive SLE patients were asked to answer anonymously a questionnaire covering demographic issues including education, adherence with prescriptions and advice given and methods of sourcing information. Seventy-three females and ten males responded. The demographic data showed that 34 had a university education, 29 high school and 19 primary school education. An inability to work due to disease was increased compared with the matched population (P < 0.001). Forty-two reported that they had received advice about physical training and forty of them followed this advice. Only 28 out of 46 smokers reported that they had got any advice about smoking, and out of these only 13 followed the advice. The patients with university background were less likely to smoke (P < 0.05) and followed the advice more often (P < 0.05). Most patients followed given advice about exposure to sunlight. Thirty-five percent of those prescribed glucocorticoids reported that they varied from the prescribed dosages without consultation with their specialist. This behaviour was more common in the university group (P < 0.05), this grouping also had a higher median dosage. Seventy-three patients had read the booklet about SLE provided by the clinic. Accessing internet information was more common for those with university education (P < 0.01). This study shows that on the whole SLE patients follow given advice, but adherence varies. Aside from the issue of glucocorticoid dosage adherence, educational level seems to be the most important predictor for adherence to advice. Thus, we conclude that a more individualized approach to delivery of information is required and better follow up is needed. (Less)
Please use this url to cite or link to this publication:
author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
glucocorticoids, lifestyle, education, adherence, BMI, sunscreen, SLE
in
Lupus
volume
16
issue
9
pages
701 - 706
publisher
SAGE Publications Ltd
external identifiers
  • wos:000249886000002
  • scopus:34948839292
ISSN
0961-2033
DOI
10.1177/0961203307080635
language
English
LU publication?
yes
id
d4717d39-1cb1-4f37-95db-648c47c226dc (old id 606548)
alternative location
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=17728362&dopt=Abstract
date added to LUP
2007-12-18 17:40:34
date last changed
2017-02-12 03:28:59
@article{d4717d39-1cb1-4f37-95db-648c47c226dc,
  abstract     = {The objective was to evaluate the efficacy of the information policy given to all systemic lupus erythematosus (SLE) patients. One hundred consecutive SLE patients were asked to answer anonymously a questionnaire covering demographic issues including education, adherence with prescriptions and advice given and methods of sourcing information. Seventy-three females and ten males responded. The demographic data showed that 34 had a university education, 29 high school and 19 primary school education. An inability to work due to disease was increased compared with the matched population (P &lt; 0.001). Forty-two reported that they had received advice about physical training and forty of them followed this advice. Only 28 out of 46 smokers reported that they had got any advice about smoking, and out of these only 13 followed the advice. The patients with university background were less likely to smoke (P &lt; 0.05) and followed the advice more often (P &lt; 0.05). Most patients followed given advice about exposure to sunlight. Thirty-five percent of those prescribed glucocorticoids reported that they varied from the prescribed dosages without consultation with their specialist. This behaviour was more common in the university group (P &lt; 0.05), this grouping also had a higher median dosage. Seventy-three patients had read the booklet about SLE provided by the clinic. Accessing internet information was more common for those with university education (P &lt; 0.01). This study shows that on the whole SLE patients follow given advice, but adherence varies. Aside from the issue of glucocorticoid dosage adherence, educational level seems to be the most important predictor for adherence to advice. Thus, we conclude that a more individualized approach to delivery of information is required and better follow up is needed.},
  author       = {Nived, Ola and Andersson, Maria and Lindgren, M and Malcus-Johnsson, P and Nihlberg, A and Nived, K and Reimer-Rasmusson, G and Sturfelt, Gunnar and Ståhl Hallengren, Christina and Bengtsson, Anders},
  issn         = {0961-2033},
  keyword      = {glucocorticoids,lifestyle,education,adherence,BMI,sunscreen,SLE},
  language     = {eng},
  number       = {9},
  pages        = {701--706},
  publisher    = {SAGE Publications Ltd},
  series       = {Lupus},
  title        = {Adherence with advice and prescriptions in SLE is mostly good, but better follow up is needed: A study with a questionnaire.},
  url          = {http://dx.doi.org/10.1177/0961203307080635},
  volume       = {16},
  year         = {2007},
}