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Further development and evaluation of a questionnaire targeting person-centred outpatient care for persons with long-term conditions

Gasser, Fredrik ; Bala, Sidona Valentina LU ; Westergren, Albert LU ; Ekstrand, Joakim and Hagell, Peter LU (2023) In Journal of Patient-Reported Outcomes 7(1).
Abstract

Aim: To further develop the Person-Centred Care instrument for outpatient care (PCCoc), evaluate its user-friendliness and content validity, and to explore its basic psychometric properties in various outpatient settings for adults with long-term conditions. Background: Person-centred care (PCC) has been identified as a key factor to provide high-quality care. However, there is still a lack of instruments that are based on a clearly defined framework for PCC for persons with long-term conditions in an outpatient context. The PCCoc is a patient-reported experience measure under development aiming to fill this gap. Methods: First, the 35-item PCCoc was reviewed and further developed in collaboration with a user-council. Second, the... (More)

Aim: To further develop the Person-Centred Care instrument for outpatient care (PCCoc), evaluate its user-friendliness and content validity, and to explore its basic psychometric properties in various outpatient settings for adults with long-term conditions. Background: Person-centred care (PCC) has been identified as a key factor to provide high-quality care. However, there is still a lack of instruments that are based on a clearly defined framework for PCC for persons with long-term conditions in an outpatient context. The PCCoc is a patient-reported experience measure under development aiming to fill this gap. Methods: First, the 35-item PCCoc was reviewed and further developed in collaboration with a user-council. Second, the revised 36-item PCCoc was tested among persons receiving outpatient care for various long-term conditions. A total of 179 persons with long-term conditions from four different specialties participated in the study. User-friendliness and content validity were assessed through structured interviews and relevance ratings of each item. Content validity index (CVI) for individual items (I-CVI) and for the overall scale (S-CVI) were calculated, and basic psychometric properties of the PCCoc using classical test theory were explored. Results: It took a median of 8 min for participants to complete the PCCoc. The majority found items easy to understand, response categories distinct and that no important areas were missing. Results from the CVI analyses suggested that participants found the content of the PCCoc relevant (I-CVI range 0.82-1, S-CVI = 0.95). All psychometric properties examined were satisfactory (e.g., item-total correlations, 0.45–0.75; Cronbach’s alpha, 0.96; test-retest stability, 0.83). Conclusion: The PCCoc was considered user-friendly and relevant by the intended users, and its psychometric properties were satisfactory. This implies that the PCCoc can be a valuable instrument for evaluating and developing PCC in outpatient care for persons with long-term conditions. However, further studies of the PCCoc are needed to establish its measurement properties in various outpatient settings.

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author
; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Outpatient care, Patient-reported experience measure, Person-centred care, Reliability, Validity
in
Journal of Patient-Reported Outcomes
volume
7
issue
1
article number
85
publisher
Springer
external identifiers
  • pmid:37610497
  • scopus:85168660536
ISSN
2509-8020
DOI
10.1186/s41687-023-00623-6
language
English
LU publication?
yes
id
627969e3-0c5b-4671-83f8-94381aabfb06
date added to LUP
2023-10-19 09:41:47
date last changed
2024-04-19 02:33:18
@article{627969e3-0c5b-4671-83f8-94381aabfb06,
  abstract     = {{<p>Aim: To further develop the Person-Centred Care instrument for outpatient care (PCCoc), evaluate its user-friendliness and content validity, and to explore its basic psychometric properties in various outpatient settings for adults with long-term conditions. Background: Person-centred care (PCC) has been identified as a key factor to provide high-quality care. However, there is still a lack of instruments that are based on a clearly defined framework for PCC for persons with long-term conditions in an outpatient context. The PCCoc is a patient-reported experience measure under development aiming to fill this gap. Methods: First, the 35-item PCCoc was reviewed and further developed in collaboration with a user-council. Second, the revised 36-item PCCoc was tested among persons receiving outpatient care for various long-term conditions. A total of 179 persons with long-term conditions from four different specialties participated in the study. User-friendliness and content validity were assessed through structured interviews and relevance ratings of each item. Content validity index (CVI) for individual items (I-CVI) and for the overall scale (S-CVI) were calculated, and basic psychometric properties of the PCCoc using classical test theory were explored. Results: It took a median of 8 min for participants to complete the PCCoc. The majority found items easy to understand, response categories distinct and that no important areas were missing. Results from the CVI analyses suggested that participants found the content of the PCCoc relevant (I-CVI range 0.82-1, S-CVI = 0.95). All psychometric properties examined were satisfactory (e.g., item-total correlations, 0.45–0.75; Cronbach’s alpha, 0.96; test-retest stability, 0.83). Conclusion: The PCCoc was considered user-friendly and relevant by the intended users, and its psychometric properties were satisfactory. This implies that the PCCoc can be a valuable instrument for evaluating and developing PCC in outpatient care for persons with long-term conditions. However, further studies of the PCCoc are needed to establish its measurement properties in various outpatient settings.</p>}},
  author       = {{Gasser, Fredrik and Bala, Sidona Valentina and Westergren, Albert and Ekstrand, Joakim and Hagell, Peter}},
  issn         = {{2509-8020}},
  keywords     = {{Outpatient care; Patient-reported experience measure; Person-centred care; Reliability; Validity}},
  language     = {{eng}},
  number       = {{1}},
  publisher    = {{Springer}},
  series       = {{Journal of Patient-Reported Outcomes}},
  title        = {{Further development and evaluation of a questionnaire targeting person-centred outpatient care for persons with long-term conditions}},
  url          = {{http://dx.doi.org/10.1186/s41687-023-00623-6}},
  doi          = {{10.1186/s41687-023-00623-6}},
  volume       = {{7}},
  year         = {{2023}},
}