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Families' lived experience one year after a child was diagnosed with type 1 diabetes

Wennick, Anne LU and Hallström, Inger LU (2007) In Journal of Advanced Nursing 60(3). p.299-307
Abstract
Aim. This paper is a report of a study to elucidate families' lived experience of diabetes one year after a child was diagnosed with type 1 diabetes. Background. The incidence of type 1 diabetes is rapidly increasing worldwide, with a shift towards younger age groups. This illness is treated by means of an intensive management regimen that often disrupts the child's usual activities and requires disease-focused behaviours from the child and his or her family. However, research elucidating families' lived experience from the perspective of all its members is sparse. Method. A hermeneutic phenomenological study was carried out in 2004, based on interviews one year after diagnosis with 11 consecutively chosen Swedish-speaking family members... (More)
Aim. This paper is a report of a study to elucidate families' lived experience of diabetes one year after a child was diagnosed with type 1 diabetes. Background. The incidence of type 1 diabetes is rapidly increasing worldwide, with a shift towards younger age groups. This illness is treated by means of an intensive management regimen that often disrupts the child's usual activities and requires disease-focused behaviours from the child and his or her family. However, research elucidating families' lived experience from the perspective of all its members is sparse. Method. A hermeneutic phenomenological study was carried out in 2004, based on interviews one year after diagnosis with 11 consecutively chosen Swedish-speaking family members with children aged between 9 and 14 years. Findings. The families described their one year of lived experience as living an ordinary yet different life. They experienced their lives to be neither particularly difficult nor as easy as they had been before the child was diagnosed with diabetes. Related themes were 'feeling acceptance yet frustration', 'being healthy yet invisibly ill', 'feeling independent yet supervised' and 'feeling confident yet insecure'. Conclusion. It may be helpful if healthcare professionals make use of the knowledge and experience of families living with the illness to meet their specific needs, especially when the affected child is experiencing fluctuating blood sugar levels. Thus, health-promoting collaboration should be tailor-made for every individual and proceed from each family's everyday life. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
nursing, interviews, family, children, empirical research report, phenomenology, type 1 diabetes
in
Journal of Advanced Nursing
volume
60
issue
3
pages
299 - 307
publisher
Wiley-Blackwell
external identifiers
  • wos:000249825400007
  • scopus:34848867250
ISSN
0309-2402
DOI
10.1111/j.1365-2648.2007.04411.x
language
English
LU publication?
yes
id
39f972bd-1bb4-4a6e-bd36-d379164f06a6 (old id 656072)
date added to LUP
2007-12-19 10:54:24
date last changed
2017-09-24 03:36:11
@article{39f972bd-1bb4-4a6e-bd36-d379164f06a6,
  abstract     = {Aim. This paper is a report of a study to elucidate families' lived experience of diabetes one year after a child was diagnosed with type 1 diabetes. Background. The incidence of type 1 diabetes is rapidly increasing worldwide, with a shift towards younger age groups. This illness is treated by means of an intensive management regimen that often disrupts the child's usual activities and requires disease-focused behaviours from the child and his or her family. However, research elucidating families' lived experience from the perspective of all its members is sparse. Method. A hermeneutic phenomenological study was carried out in 2004, based on interviews one year after diagnosis with 11 consecutively chosen Swedish-speaking family members with children aged between 9 and 14 years. Findings. The families described their one year of lived experience as living an ordinary yet different life. They experienced their lives to be neither particularly difficult nor as easy as they had been before the child was diagnosed with diabetes. Related themes were 'feeling acceptance yet frustration', 'being healthy yet invisibly ill', 'feeling independent yet supervised' and 'feeling confident yet insecure'. Conclusion. It may be helpful if healthcare professionals make use of the knowledge and experience of families living with the illness to meet their specific needs, especially when the affected child is experiencing fluctuating blood sugar levels. Thus, health-promoting collaboration should be tailor-made for every individual and proceed from each family's everyday life.},
  author       = {Wennick, Anne and Hallström, Inger},
  issn         = {0309-2402},
  keyword      = {nursing,interviews,family,children,empirical research report,phenomenology,type 1 diabetes},
  language     = {eng},
  number       = {3},
  pages        = {299--307},
  publisher    = {Wiley-Blackwell},
  series       = {Journal of Advanced Nursing},
  title        = {Families' lived experience one year after a child was diagnosed with type 1 diabetes},
  url          = {http://dx.doi.org/10.1111/j.1365-2648.2007.04411.x},
  volume       = {60},
  year         = {2007},
}