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Roadmap for a precision-medicine initiative in the Nordic region

Njølstad, Pål Rasmus ; Andreassen, Ole Andreas ; Brunak, Søren ; Børglum, Anders D. ; Dillner, Joakim LU ; Esko, Tõnu ; Franks, Paul W. LU ; Freimer, Nelson ; Groop, Leif LU and Heimer, Hakon , et al. (2019) In Nature Genetics
Abstract

The Nordic region, comprising primarily Denmark, Estonia, Finland, Iceland, Norway and Sweden, has many of the necessary characteristics for being at the forefront of genome-based precision medicine. These include egalitarian and universal healthcare, expertly curated patient and population registries, biobanks, large population-based prospective cohorts linked to registries and biobanks, and a widely embraced sense of social responsibility that motivates public engagement in biomedical research. However, genome-based precision medicine can be achieved only through coordinated action involving all actors in the healthcare sector. Now is an opportune time to organize scientists in the Nordic region, together with other stakeholders... (More)

The Nordic region, comprising primarily Denmark, Estonia, Finland, Iceland, Norway and Sweden, has many of the necessary characteristics for being at the forefront of genome-based precision medicine. These include egalitarian and universal healthcare, expertly curated patient and population registries, biobanks, large population-based prospective cohorts linked to registries and biobanks, and a widely embraced sense of social responsibility that motivates public engagement in biomedical research. However, genome-based precision medicine can be achieved only through coordinated action involving all actors in the healthcare sector. Now is an opportune time to organize scientists in the Nordic region, together with other stakeholders including patient representatives, governments, pharmaceutical companies, academic institutions and funding agencies, to initiate a Nordic Precision Medicine Initiative. We present a roadmap for how this organization can be created. The Initiative should facilitate research, clinical trials and knowledge transfer to meet regional and global health challenges.

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Nature Genetics
publisher
Nature Publishing Group
external identifiers
  • scopus:85064555172
ISSN
1061-4036
DOI
10.1038/s41588-019-0391-1
language
English
LU publication?
yes
id
6a53606f-4438-44c4-8682-0ea9a9a2ae6b
date added to LUP
2019-05-08 08:49:50
date last changed
2019-12-10 08:03:13
@misc{6a53606f-4438-44c4-8682-0ea9a9a2ae6b,
  abstract     = {<p>The Nordic region, comprising primarily Denmark, Estonia, Finland, Iceland, Norway and Sweden, has many of the necessary characteristics for being at the forefront of genome-based precision medicine. These include egalitarian and universal healthcare, expertly curated patient and population registries, biobanks, large population-based prospective cohorts linked to registries and biobanks, and a widely embraced sense of social responsibility that motivates public engagement in biomedical research. However, genome-based precision medicine can be achieved only through coordinated action involving all actors in the healthcare sector. Now is an opportune time to organize scientists in the Nordic region, together with other stakeholders including patient representatives, governments, pharmaceutical companies, academic institutions and funding agencies, to initiate a Nordic Precision Medicine Initiative. We present a roadmap for how this organization can be created. The Initiative should facilitate research, clinical trials and knowledge transfer to meet regional and global health challenges.</p>},
  author       = {Njølstad, Pål Rasmus and Andreassen, Ole Andreas and Brunak, Søren and Børglum, Anders D. and Dillner, Joakim and Esko, Tõnu and Franks, Paul W. and Freimer, Nelson and Groop, Leif and Heimer, Hakon and Hougaard, David M. and Hovig, Eivind and Hveem, Kristian and Jalanko, Anu and Kaprio, Jaakko and Knudsen, Gun Peggy and Melbye, Mads and Metspalu, Andres and Mortensen, Preben Bo and Palmgren, Juni and Palotie, Aarno and Reed, Wenche and Stefánsson, Hreinn and Stitziel, Nathan O. and Sullivan, Patrick F. and Thorsteinsdóttir, Unnur and Vaudel, Marc and Vuorio, Eero and Werge, Thomas and Stoltenberg, Camilla and Stefánsson, Kári},
  issn         = {1061-4036},
  language     = {eng},
  month        = {04},
  publisher    = {Nature Publishing Group},
  series       = {Nature Genetics},
  title        = {Roadmap for a precision-medicine initiative in the Nordic region},
  url          = {http://dx.doi.org/10.1038/s41588-019-0391-1},
  doi          = {10.1038/s41588-019-0391-1},
  year         = {2019},
}