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The association between positive-negative reactions of informal caregivers of people with dementia and health outcomes in eight European countries: a cross-sectional study

Alvira, M. Carme; Risco, Ester; Cabrera, Esther; Farre, Marta; Rahm Hallberg, Ingalill LU ; Bleijlevens, Michel H. C.; Meyer, Gabriele; Koskenniemi, Jaana; Soto, Maria E. and Zabalegui, Adelaida (2015) In Journal of Advanced Nursing 71(6). p.1417-1434
Abstract
AimTo describe the associations between positive and negative reactions of informal caregivers of people with dementia and health outcomes across eight European Countries. BackgroundCaring for someone with dementia may have implications for the caregiver's own health and for the care recipient. These consequences could be associated with caregivers' reactions to the process of care. DesignAssociation study based on cross-sectional data. MethodsParticipants were people with dementia and their informal caregivers living at home or in long-term care institutions. Data were collected between November 2010-April 2012 using the Caregiver Reaction Assessment (with dimensions of self-esteem, lack of family support, financial problems, disrupted... (More)
AimTo describe the associations between positive and negative reactions of informal caregivers of people with dementia and health outcomes across eight European Countries. BackgroundCaring for someone with dementia may have implications for the caregiver's own health and for the care recipient. These consequences could be associated with caregivers' reactions to the process of care. DesignAssociation study based on cross-sectional data. MethodsParticipants were people with dementia and their informal caregivers living at home or in long-term care institutions. Data were collected between November 2010-April 2012 using the Caregiver Reaction Assessment (with dimensions of self-esteem, lack of family support, financial problems, disrupted schedule and health problems) and associations were sought with informal caregiver burden, quality of life and psychological well-being and with dementia sufferers' neuropsychiatric symptoms, comorbidity and dependency in activities of daily living using correlation coefficients. ResultsData from 2014 participants were used. Variability across countries was noted, as well as differences between care at home and in long-term care institutions. In general, self-esteem and lack of family support correlated with caregiver burden and psychological well-being. Associations were also found between disrupted schedule and caregiver burden, psychological well-being and quality of life. Health problems were clearly associated with caregiver burden, psychological well-being and quality of life. ConclusionStudy results support links between the reactions of informal caregivers of people with dementia and health outcomes. These may have implications in terms of how services are addressed. (Less)
Please use this url to cite or link to this publication:
author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
caregiving, dementia, home care, informal caregiver, nursing home, positive and negative reactions
in
Journal of Advanced Nursing
volume
71
issue
6
pages
1417 - 1434
publisher
Wiley-Blackwell
external identifiers
  • wos:000354394800020
  • scopus:84929340565
ISSN
0309-2402
DOI
10.1111/jan.12528
language
English
LU publication?
yes
id
d01bd944-c16b-4b2e-98bd-6373dca2c267 (old id 7425308)
date added to LUP
2015-07-03 07:06:53
date last changed
2017-11-05 03:21:55
@article{d01bd944-c16b-4b2e-98bd-6373dca2c267,
  abstract     = {AimTo describe the associations between positive and negative reactions of informal caregivers of people with dementia and health outcomes across eight European Countries. BackgroundCaring for someone with dementia may have implications for the caregiver's own health and for the care recipient. These consequences could be associated with caregivers' reactions to the process of care. DesignAssociation study based on cross-sectional data. MethodsParticipants were people with dementia and their informal caregivers living at home or in long-term care institutions. Data were collected between November 2010-April 2012 using the Caregiver Reaction Assessment (with dimensions of self-esteem, lack of family support, financial problems, disrupted schedule and health problems) and associations were sought with informal caregiver burden, quality of life and psychological well-being and with dementia sufferers' neuropsychiatric symptoms, comorbidity and dependency in activities of daily living using correlation coefficients. ResultsData from 2014 participants were used. Variability across countries was noted, as well as differences between care at home and in long-term care institutions. In general, self-esteem and lack of family support correlated with caregiver burden and psychological well-being. Associations were also found between disrupted schedule and caregiver burden, psychological well-being and quality of life. Health problems were clearly associated with caregiver burden, psychological well-being and quality of life. ConclusionStudy results support links between the reactions of informal caregivers of people with dementia and health outcomes. These may have implications in terms of how services are addressed.},
  author       = {Alvira, M. Carme and Risco, Ester and Cabrera, Esther and Farre, Marta and Rahm Hallberg, Ingalill and Bleijlevens, Michel H. C. and Meyer, Gabriele and Koskenniemi, Jaana and Soto, Maria E. and Zabalegui, Adelaida},
  issn         = {0309-2402},
  keyword      = {caregiving,dementia,home care,informal caregiver,nursing home,positive and negative reactions},
  language     = {eng},
  number       = {6},
  pages        = {1417--1434},
  publisher    = {Wiley-Blackwell},
  series       = {Journal of Advanced Nursing},
  title        = {The association between positive-negative reactions of informal caregivers of people with dementia and health outcomes in eight European countries: a cross-sectional study},
  url          = {http://dx.doi.org/10.1111/jan.12528},
  volume       = {71},
  year         = {2015},
}