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Ethical aspects of a predictive test for Huntington's Disease: A long term perspective.

Lilja Andersson, Petra LU ; Petersén, Åsa LU ; Graff, Caroline and Edberg, Anna-Karin (2016) In Nursing Ethics p.565-575
Abstract
A predictive genetic test for Huntington's disease can be used before any symptoms are apparent, but there is only sparse knowledge about the long-term consequences of a positive test result. Such knowledge is important in order to gain a deeper understanding of families' experiences.
Please use this url to cite or link to this publication:
author
; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Nursing Ethics
pages
565 - 575
publisher
SAGE Publications
external identifiers
  • pmid:25899725
  • scopus:84991434986
  • pmid:25899725
  • wos:000382950100007
ISSN
1477-0989
DOI
10.1177/0969733015576356
language
English
LU publication?
yes
id
7886be3b-db01-4865-b94d-a6a30ba33a95 (old id 5340982)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/25899725?dopt=Abstract
date added to LUP
2016-04-04 07:48:53
date last changed
2024-01-12 02:40:17
@article{7886be3b-db01-4865-b94d-a6a30ba33a95,
  abstract     = {{A predictive genetic test for Huntington's disease can be used before any symptoms are apparent, but there is only sparse knowledge about the long-term consequences of a positive test result. Such knowledge is important in order to gain a deeper understanding of families' experiences.}},
  author       = {{Lilja Andersson, Petra and Petersén, Åsa and Graff, Caroline and Edberg, Anna-Karin}},
  issn         = {{1477-0989}},
  language     = {{eng}},
  pages        = {{565--575}},
  publisher    = {{SAGE Publications}},
  series       = {{Nursing Ethics}},
  title        = {{Ethical aspects of a predictive test for Huntington's Disease: A long term perspective.}},
  url          = {{http://dx.doi.org/10.1177/0969733015576356}},
  doi          = {{10.1177/0969733015576356}},
  year         = {{2016}},
}