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Predicting caregiver burden in informal caregivers caring for persons with dementia living at home – A follow-up cohort study

Lethin, Connie LU ; Leino-Kilpi, Helena ; Bleijlevens, Michel H.C. ; Stephan, Astrid ; Martin, Maria S. ; Nilsson, Karin ; Nilsson, Christer LU ; Zabalegui, Adelaida and Karlsson, Staffan LU (2020) In Dementia 19(3). p.640-660
Abstract

Longitudinal studies of caregiver burden when caring for persons with dementia living at home are sparse. The aim of the study was to identify factors associated with caregiver burden and predicting increased burden related to caregivers, persons with dementia and formal care. Data were collected through interviews with 1223 caregivers in eight European countries. Bivariate and multivariate regression analyses were performed. Factors associated with caregiver burden included extensive informal care provision, decreased well-being and reduced quality of life for the caregiver and reduced cognition, decreased quality of life, severe neuropsychiatric symptoms and depression in the person with dementia and caregivers’ negative experience of... (More)

Longitudinal studies of caregiver burden when caring for persons with dementia living at home are sparse. The aim of the study was to identify factors associated with caregiver burden and predicting increased burden related to caregivers, persons with dementia and formal care. Data were collected through interviews with 1223 caregivers in eight European countries. Bivariate and multivariate regression analyses were performed. Factors associated with caregiver burden included extensive informal care provision, decreased well-being and reduced quality of life for the caregiver and reduced cognition, decreased quality of life, severe neuropsychiatric symptoms and depression in the person with dementia and caregivers’ negative experience of quality of care. Factors predicting an increased burden were diminished caregiver well-being, severe neuropsychiatric symptoms of the person with dementia and caregivers’ negative perception of quality of care. The knowledge gained in this study may be useful in developing more adequate service systems and interventions to improve dementia care.

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author
; ; ; ; ; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
care provision, caregiver burden, dementia, home care, quality of care
in
Dementia
volume
19
issue
3
pages
640 - 660
publisher
SAGE Publications
external identifiers
  • scopus:85048872839
  • pmid:29929383
ISSN
1471-3012
DOI
10.1177/1471301218782502
project
RightTimePlaceCare
language
English
LU publication?
yes
id
81c3872f-715b-45fa-86dd-d56ea1c1b23d
date added to LUP
2018-07-04 14:32:52
date last changed
2020-11-16 05:04:34
@article{81c3872f-715b-45fa-86dd-d56ea1c1b23d,
  abstract     = {<p>Longitudinal studies of caregiver burden when caring for persons with dementia living at home are sparse. The aim of the study was to identify factors associated with caregiver burden and predicting increased burden related to caregivers, persons with dementia and formal care. Data were collected through interviews with 1223 caregivers in eight European countries. Bivariate and multivariate regression analyses were performed. Factors associated with caregiver burden included extensive informal care provision, decreased well-being and reduced quality of life for the caregiver and reduced cognition, decreased quality of life, severe neuropsychiatric symptoms and depression in the person with dementia and caregivers’ negative experience of quality of care. Factors predicting an increased burden were diminished caregiver well-being, severe neuropsychiatric symptoms of the person with dementia and caregivers’ negative perception of quality of care. The knowledge gained in this study may be useful in developing more adequate service systems and interventions to improve dementia care.</p>},
  author       = {Lethin, Connie and Leino-Kilpi, Helena and Bleijlevens, Michel H.C. and Stephan, Astrid and Martin, Maria S. and Nilsson, Karin and Nilsson, Christer and Zabalegui, Adelaida and Karlsson, Staffan},
  issn         = {1471-3012},
  language     = {eng},
  number       = {3},
  pages        = {640--660},
  publisher    = {SAGE Publications},
  series       = {Dementia},
  title        = {Predicting caregiver burden in informal caregivers caring for persons with dementia living at home – A follow-up cohort study},
  url          = {http://dx.doi.org/10.1177/1471301218782502},
  doi          = {10.1177/1471301218782502},
  volume       = {19},
  year         = {2020},
}