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Befriending Everyday Life When Bringing Technology into the Private Sphere

Lindberg, Catharina; Fagerström, Cecilia; Willman, Ania and Sivberg, Bengt LU (2017) In Qualitative Health Research 27(6). p.843-854
Abstract

We present the findings of our phenomenological interview study concerning the meaning of being an autonomous person while dependent on advanced medical technology at home. This was elucidated in the participants' narratives as befriending everyday life when bringing technology into the private sphere. We discovered four constituents of the phenomenon: befriending the lived body, depending on good relationships, keeping the home as a private sphere, and managing time. The most important finding was the overall position of the lived body by means of the illness limiting the control over one's life. We found that the participants wanted to be involved in and have influence over their care to be able to enjoy autonomy. We therefore stress... (More)

We present the findings of our phenomenological interview study concerning the meaning of being an autonomous person while dependent on advanced medical technology at home. This was elucidated in the participants' narratives as befriending everyday life when bringing technology into the private sphere. We discovered four constituents of the phenomenon: befriending the lived body, depending on good relationships, keeping the home as a private sphere, and managing time. The most important finding was the overall position of the lived body by means of the illness limiting the control over one's life. We found that the participants wanted to be involved in and have influence over their care to be able to enjoy autonomy. We therefore stress the importance of bringing the patients into the care process as chronic illness will be a part of their everyday life for a long time to come, hence challenging patient autonomy.

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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
advanced home care, autonomy, decision making, ethics, Giorgi, interviews, phenomenology, qualitative, technology, medical
in
Qualitative Health Research
volume
27
issue
6
pages
12 pages
publisher
SAGE Publications Inc.
external identifiers
  • pmid:26848081
  • scopus:85018243086
  • wos:000400198000008
ISSN
1049-7323
DOI
10.1177/1049732315627428
language
English
LU publication?
yes
id
b7a95665-59b3-4eb0-aa6d-eabe60aaa78c (old id 8829232)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/26848081?dopt=Abstract
date added to LUP
2016-03-01 14:09:05
date last changed
2018-01-07 07:11:27
@article{b7a95665-59b3-4eb0-aa6d-eabe60aaa78c,
  abstract     = {<p>We present the findings of our phenomenological interview study concerning the meaning of being an autonomous person while dependent on advanced medical technology at home. This was elucidated in the participants' narratives as befriending everyday life when bringing technology into the private sphere. We discovered four constituents of the phenomenon: befriending the lived body, depending on good relationships, keeping the home as a private sphere, and managing time. The most important finding was the overall position of the lived body by means of the illness limiting the control over one's life. We found that the participants wanted to be involved in and have influence over their care to be able to enjoy autonomy. We therefore stress the importance of bringing the patients into the care process as chronic illness will be a part of their everyday life for a long time to come, hence challenging patient autonomy.</p>},
  author       = {Lindberg, Catharina and Fagerström, Cecilia and Willman, Ania and Sivberg, Bengt},
  issn         = {1049-7323},
  keyword      = {advanced home care,autonomy,decision making,ethics,Giorgi,interviews,phenomenology,qualitative,technology, medical},
  language     = {eng},
  month        = {05},
  number       = {6},
  pages        = {843--854},
  publisher    = {SAGE Publications Inc.},
  series       = {Qualitative Health Research},
  title        = {Befriending Everyday Life When Bringing Technology into the Private Sphere},
  url          = {http://dx.doi.org/10.1177/1049732315627428},
  volume       = {27},
  year         = {2017},
}