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Home, health and participation for community living people with disability

Thordardottir, Björg LU (2016) In Lund University, Faculty of Medicine Doctoral Dissertation Series 2016:39.
Abstract
The aim of this thesis was to contribute to the understanding of aspects related to home,

health and participation for community living people with disability and identify different

groups with different needs for interventions. Study I used focus groups to explore aspects

of importance for participation. Twenty-nine people with Parkinson’s Disease participated in

nine focus groups. Studies II-III utilized baseline data from an ongoing study among people

applying for housing adaptations in southern Swedish municipalities. Study II investigated

personal, environmental, and activity-related factors linked to participation frequency and

satisfaction among 128 housing adaptation... (More)
The aim of this thesis was to contribute to the understanding of aspects related to home,

health and participation for community living people with disability and identify different

groups with different needs for interventions. Study I used focus groups to explore aspects

of importance for participation. Twenty-nine people with Parkinson’s Disease participated in

nine focus groups. Studies II-III utilized baseline data from an ongoing study among people

applying for housing adaptations in southern Swedish municipalities. Study II investigated

personal, environmental, and activity-related factors linked to participation frequency and

satisfaction among 128 housing adaptation clients. Study III investigated differences in

participation frequency, participation satisfaction and self-rated health between groups of

housing adaptation applicants. Study IV utilized interview data and study specific questions

in longitudinal mixed-method design to explore experiences of participation before and after

a housing adaptation. Study I revealed that participation was experienced in a variety of

situations in a complex context of home and community. Study II showed that frequency of

participation had a strong association with gender, cognitive impairments and dependence

in ADL while satisfaction with participation had a strong association with age, usability

aspects and self-rated health. Study III identified six heterogeneous groups, differing in

terms of age, ADL dependence, functional limitations, cognitive impairments, concerns

about falling and usability of the home, that also showed significant differences in

participation and self-rated health. In Study IV, an overall theme of struggling with

participation towards satisfaction with participation emerged and revealed how the

participants experienced their participation on a continuum. The findings provide insights

into how participation inside and outside the home, with others or alone is related to the

person, the environment, and the performance of activities. This speaks to the importance

of being observant of the different aspects of restrictions to participation for each individual,

especially as disability often progresses over time. (Less)
Please use this url to cite or link to this publication:
author
supervisor
opponent
  • Docent Asaba, Eric, Karolinska Institutet
organization
publishing date
type
Thesis
publication status
published
subject
keywords
activity, community living, disability, occupational therapy, participation
in
Lund University, Faculty of Medicine Doctoral Dissertation Series
volume
2016:39
pages
86 pages
publisher
Department of Health Sciences, Lund University
defense location
Health Science Center, Hörsal 1, Baravägen 3, Lund
defense date
2016-04-14 13:00
ISSN
1652-8220
ISBN
978-91-7619-265-8
language
English
LU publication?
yes
id
7a03a8fb-5dd8-4514-9190-cb43a8b997a7 (old id 8862821)
date added to LUP
2016-03-22 11:47:53
date last changed
2016-09-19 08:44:50
@phdthesis{7a03a8fb-5dd8-4514-9190-cb43a8b997a7,
  abstract     = {The aim of this thesis was to contribute to the understanding of aspects related to home,<br/><br>
health and participation for community living people with disability and identify different<br/><br>
groups with different needs for interventions. Study I used focus groups to explore aspects<br/><br>
of importance for participation. Twenty-nine people with Parkinson’s Disease participated in<br/><br>
nine focus groups. Studies II-III utilized baseline data from an ongoing study among people<br/><br>
applying for housing adaptations in southern Swedish municipalities. Study II investigated<br/><br>
personal, environmental, and activity-related factors linked to participation frequency and<br/><br>
satisfaction among 128 housing adaptation clients. Study III investigated differences in<br/><br>
participation frequency, participation satisfaction and self-rated health between groups of<br/><br>
housing adaptation applicants. Study IV utilized interview data and study specific questions<br/><br>
in longitudinal mixed-method design to explore experiences of participation before and after<br/><br>
a housing adaptation. Study I revealed that participation was experienced in a variety of<br/><br>
situations in a complex context of home and community. Study II showed that frequency of<br/><br>
participation had a strong association with gender, cognitive impairments and dependence<br/><br>
in ADL while satisfaction with participation had a strong association with age, usability<br/><br>
aspects and self-rated health. Study III identified six heterogeneous groups, differing in<br/><br>
terms of age, ADL dependence, functional limitations, cognitive impairments, concerns<br/><br>
about falling and usability of the home, that also showed significant differences in<br/><br>
participation and self-rated health. In Study IV, an overall theme of struggling with<br/><br>
participation towards satisfaction with participation emerged and revealed how the<br/><br>
participants experienced their participation on a continuum. The findings provide insights<br/><br>
into how participation inside and outside the home, with others or alone is related to the<br/><br>
person, the environment, and the performance of activities. This speaks to the importance<br/><br>
of being observant of the different aspects of restrictions to participation for each individual,<br/><br>
especially as disability often progresses over time.},
  author       = {Thordardottir, Björg},
  isbn         = {978-91-7619-265-8},
  issn         = {1652-8220},
  keyword      = {activity,community living,disability,occupational therapy,participation},
  language     = {eng},
  pages        = {86},
  publisher    = {Department of Health Sciences, Lund University},
  school       = {Lund University},
  series       = {Lund University, Faculty of Medicine Doctoral Dissertation Series},
  title        = {Home, health and participation for community living people with disability},
  volume       = {2016:39},
  year         = {2016},
}