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Internet-Based Support and Coaching With Complementary Clinic Visits for Young People With Attention-Deficit/Hyperactivity Disorder and Autism : Controlled Feasibility Study

Sehlin, Helena ; Hedman Ahlström, Britt ; Bertilsson, Ingrid LU orcid ; Andersson, Gerhard and Wentz, Elisabet LU (2020) In Journal of Medical Internet Research 22(12).
Abstract

BACKGROUND: Individuals with attention-deficit/hyperactivity disorder (ADHD) and autism spectrum disorder (ASD) can experience obstacles in traditional health care situations due to difficulties associated with their impairment.

OBJECTIVE: This controlled study aims to investigate the feasibility of an internet-based support and coaching intervention (IBSC), including 2 weekly chat sessions and 2 complementary clinic visits with coaches over the course of 8 weeks, for adolescents and young adults with ADHD and/or ASD in 2 naturalistic routine care settings.

METHODS: Individuals with ADHD and/or ASD aged 15-32 years were recruited in 2 clinical settings, where they received either IBSC (n=24) or treatment as usual (TAU;... (More)

BACKGROUND: Individuals with attention-deficit/hyperactivity disorder (ADHD) and autism spectrum disorder (ASD) can experience obstacles in traditional health care situations due to difficulties associated with their impairment.

OBJECTIVE: This controlled study aims to investigate the feasibility of an internet-based support and coaching intervention (IBSC), including 2 weekly chat sessions and 2 complementary clinic visits with coaches over the course of 8 weeks, for adolescents and young adults with ADHD and/or ASD in 2 naturalistic routine care settings.

METHODS: Individuals with ADHD and/or ASD aged 15-32 years were recruited in 2 clinical settings, where they received either IBSC (n=24) or treatment as usual (TAU; n=20). Outcome measures included self-report questionnaires assessing quality of life (Manchester Short Assessment for Quality of Life), sense of coherence (Sense Of Coherence 29), self-esteem (Rosenberg Self-Esteem Scale), and anxiety and depressive symptoms (Hospital Anxiety and Depression Scale [HADS] and Montgomery-Åsberg Depression Rating Scale-Self-reported, respectively).

RESULTS: Significant between-group effects were observed in measures of anxiety (HADS) at postintervention (P=.02) as well as at the 6-month follow-up (P=.004). Significant between-group effects were also noted for depressive symptoms (HADS) postintervention (P=.04). The between-group effects were partially explained by a deterioration in the TAU group. A significant increase in self-esteem (P=.04) as well as a decrease in anxiety (P=.003) at the 6-month follow-up was observed in the intervention group following IBSC. Findings from a qualitative study of the intervention are consistent with the results.

CONCLUSIONS: The findings from this study suggest that IBSC holds promise as a feasible complement or alternative to traditional face-to-face health care meetings.

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author
; ; ; and
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Adolescent, Adult, Ambulatory Care/standards, Attention Deficit Disorder with Hyperactivity/therapy, Autism Spectrum Disorder/therapy, Feasibility Studies, Female, Humans, Internet, Male, Qualitative Research, Quality of Life/psychology, Social Support, Young Adult
in
Journal of Medical Internet Research
volume
22
issue
12
article number
e19658
publisher
JMIR Publications Inc.
external identifiers
  • pmid:33382381
  • scopus:85099212305
ISSN
1438-8871
DOI
10.2196/19658
language
English
LU publication?
no
additional info
©Helena Sehlin, Britt Hedman Ahlström, Ingrid Bertilsson, Gerhard Andersson, Elisabet Wentz. Originally published in the Journal of Medical Internet Research (http://www.jmir.org), 31.12.2020.
id
8b14d8b4-7e58-4e94-99af-0a0890cb0b56
date added to LUP
2021-12-03 15:07:26
date last changed
2024-06-29 23:11:33
@article{8b14d8b4-7e58-4e94-99af-0a0890cb0b56,
  abstract     = {{<p>BACKGROUND: Individuals with attention-deficit/hyperactivity disorder (ADHD) and autism spectrum disorder (ASD) can experience obstacles in traditional health care situations due to difficulties associated with their impairment.</p><p>OBJECTIVE: This controlled study aims to investigate the feasibility of an internet-based support and coaching intervention (IBSC), including 2 weekly chat sessions and 2 complementary clinic visits with coaches over the course of 8 weeks, for adolescents and young adults with ADHD and/or ASD in 2 naturalistic routine care settings.</p><p>METHODS: Individuals with ADHD and/or ASD aged 15-32 years were recruited in 2 clinical settings, where they received either IBSC (n=24) or treatment as usual (TAU; n=20). Outcome measures included self-report questionnaires assessing quality of life (Manchester Short Assessment for Quality of Life), sense of coherence (Sense Of Coherence 29), self-esteem (Rosenberg Self-Esteem Scale), and anxiety and depressive symptoms (Hospital Anxiety and Depression Scale [HADS] and Montgomery-Åsberg Depression Rating Scale-Self-reported, respectively).</p><p>RESULTS: Significant between-group effects were observed in measures of anxiety (HADS) at postintervention (P=.02) as well as at the 6-month follow-up (P=.004). Significant between-group effects were also noted for depressive symptoms (HADS) postintervention (P=.04). The between-group effects were partially explained by a deterioration in the TAU group. A significant increase in self-esteem (P=.04) as well as a decrease in anxiety (P=.003) at the 6-month follow-up was observed in the intervention group following IBSC. Findings from a qualitative study of the intervention are consistent with the results.</p><p>CONCLUSIONS: The findings from this study suggest that IBSC holds promise as a feasible complement or alternative to traditional face-to-face health care meetings.</p>}},
  author       = {{Sehlin, Helena and Hedman Ahlström, Britt and Bertilsson, Ingrid and Andersson, Gerhard and Wentz, Elisabet}},
  issn         = {{1438-8871}},
  keywords     = {{Adolescent; Adult; Ambulatory Care/standards; Attention Deficit Disorder with Hyperactivity/therapy; Autism Spectrum Disorder/therapy; Feasibility Studies; Female; Humans; Internet; Male; Qualitative Research; Quality of Life/psychology; Social Support; Young Adult}},
  language     = {{eng}},
  month        = {{12}},
  number       = {{12}},
  publisher    = {{JMIR Publications Inc.}},
  series       = {{Journal of Medical Internet Research}},
  title        = {{Internet-Based Support and Coaching With Complementary Clinic Visits for Young People With Attention-Deficit/Hyperactivity Disorder and Autism : Controlled Feasibility Study}},
  url          = {{http://dx.doi.org/10.2196/19658}},
  doi          = {{10.2196/19658}},
  volume       = {{22}},
  year         = {{2020}},
}