Communication and Trust in the Care Provided to a Dying Parent: A Nationwide Study of Cancer-Bereaved Youths.
(2013) In Journal of Clinical Oncology- Abstract
- PURPOSETo assess children's trust in the care provided to a dying parent during the final week of life in relation to end-of-life medical information about disease, treatment, and death. METHODSThis nationwide population-based survey included 622 (73%) of 851 youths who, 6 to 9 years earlier, at age 13 to 16 years, lost a parent to cancer. We asked about the children's reception of end-of-life professional information and trust in the care provided. We also asked about depression and several potential risk factors of distrust in the care provided.ResultsA majority (82%) reported moderate/very much trust in the care provided. Compared with children who received end-of-life medical information before their loss, the risk of distrust in the... (More)
- PURPOSETo assess children's trust in the care provided to a dying parent during the final week of life in relation to end-of-life medical information about disease, treatment, and death. METHODSThis nationwide population-based survey included 622 (73%) of 851 youths who, 6 to 9 years earlier, at age 13 to 16 years, lost a parent to cancer. We asked about the children's reception of end-of-life professional information and trust in the care provided. We also asked about depression and several potential risk factors of distrust in the care provided.ResultsA majority (82%) reported moderate/very much trust in the care provided. Compared with children who received end-of-life medical information before their loss, the risk of distrust in the care provided was higher in those who received no information (risk ratio [RR], 2.5; 95% CI, 1.5 to 4.1), in those who only received information afterward (RR, 3.2; 95% CI, 1.7 to 5.9), and in those who did not know or remember if end-of-life medical information was provided (RR, 1.7; 95% CI, 1.1 to 2.5). Those reporting distrust in the care provided had an RR of 2.3 (95% CI, 1.5 to 3.5) for depression. Furthermore, the risk of distrust in the care provided was higher among children reporting poor efforts to cure (RR, 5.1; 95% CI, 3.6 to 7.3), and/or a poor relationship with the surviving parent (RR, 2.9; 95% CI, 2.0 to 4.1). CONCLUSIONOur study suggests that children's trust in the care provided to a dying parent was highest when they received end-of-life medical information before their loss. (Less)
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/3955873
- author
- Grenklo, Tove Bylund ; Kreicbergs, Ulrika C ; Valdimarsdóttir, Unnur A ; Nyberg, Tommy ; Steineck, Gunnar and Fürst, Carl Johan LU
- organization
- publishing date
- 2013-08-10
- type
- Contribution to journal
- publication status
- published
- subject
- in
- Journal of Clinical Oncology
- publisher
- American Society of Clinical Oncology
- external identifiers
-
- pmid:23857973
- wos:000330539300013
- scopus:84891455050
- ISSN
- 1527-7755
- DOI
- 10.1200/JCO.2012.46.6102
- language
- English
- LU publication?
- yes
- id
- 90b7ad59-39e1-4813-89f8-dc134b486f3c (old id 3955873)
- alternative location
- http://www.ncbi.nlm.nih.gov/pubmed/23857973?dopt=Abstract
- date added to LUP
- 2016-04-01 10:29:19
- date last changed
- 2022-01-25 23:43:05
@article{90b7ad59-39e1-4813-89f8-dc134b486f3c, abstract = {{PURPOSETo assess children's trust in the care provided to a dying parent during the final week of life in relation to end-of-life medical information about disease, treatment, and death. METHODSThis nationwide population-based survey included 622 (73%) of 851 youths who, 6 to 9 years earlier, at age 13 to 16 years, lost a parent to cancer. We asked about the children's reception of end-of-life professional information and trust in the care provided. We also asked about depression and several potential risk factors of distrust in the care provided.ResultsA majority (82%) reported moderate/very much trust in the care provided. Compared with children who received end-of-life medical information before their loss, the risk of distrust in the care provided was higher in those who received no information (risk ratio [RR], 2.5; 95% CI, 1.5 to 4.1), in those who only received information afterward (RR, 3.2; 95% CI, 1.7 to 5.9), and in those who did not know or remember if end-of-life medical information was provided (RR, 1.7; 95% CI, 1.1 to 2.5). Those reporting distrust in the care provided had an RR of 2.3 (95% CI, 1.5 to 3.5) for depression. Furthermore, the risk of distrust in the care provided was higher among children reporting poor efforts to cure (RR, 5.1; 95% CI, 3.6 to 7.3), and/or a poor relationship with the surviving parent (RR, 2.9; 95% CI, 2.0 to 4.1). CONCLUSIONOur study suggests that children's trust in the care provided to a dying parent was highest when they received end-of-life medical information before their loss.}}, author = {{Grenklo, Tove Bylund and Kreicbergs, Ulrika C and Valdimarsdóttir, Unnur A and Nyberg, Tommy and Steineck, Gunnar and Fürst, Carl Johan}}, issn = {{1527-7755}}, language = {{eng}}, month = {{08}}, publisher = {{American Society of Clinical Oncology}}, series = {{Journal of Clinical Oncology}}, title = {{Communication and Trust in the Care Provided to a Dying Parent: A Nationwide Study of Cancer-Bereaved Youths.}}, url = {{http://dx.doi.org/10.1200/JCO.2012.46.6102}}, doi = {{10.1200/JCO.2012.46.6102}}, year = {{2013}}, }