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Increasing credibility in government assignments : an example from Sweden of stakeholder involvement by using Concept Mapping

Smith, Frida ; Fredriksson, Katarina ; Gunnarsdóttir, Katrín Ásta ; Holtenman, Mikael and Carlsson, Christina LU (2025) In BMJ open quality 14(2).
Abstract

Background The incidence of people diagnosed with cancer is increasing worldwide, in Sweden with approximately 65 000 new cases yearly. To enhance conditions for a continued good life, high-quality, accessible and equal cancer rehabilitation is required. In 2020 the National Board of Health and Welfare (NBHW) received a government assignment to investigate the conditions for the offer of cancer rehabilitation. This paper aims to highlight how the Concept Mapping (CM) methodology was strategically used by the NBHW for mutual learning to raise different perspectives and € voices' of cancer rehabilitation. Methods The stepwise, mixed-method CM was used. A broad selection of relevant stakeholders was invited to complete the prompt: a good... (More)

Background The incidence of people diagnosed with cancer is increasing worldwide, in Sweden with approximately 65 000 new cases yearly. To enhance conditions for a continued good life, high-quality, accessible and equal cancer rehabilitation is required. In 2020 the National Board of Health and Welfare (NBHW) received a government assignment to investigate the conditions for the offer of cancer rehabilitation. This paper aims to highlight how the Concept Mapping (CM) methodology was strategically used by the NBHW for mutual learning to raise different perspectives and € voices' of cancer rehabilitation. Methods The stepwise, mixed-method CM was used. A broad selection of relevant stakeholders was invited to complete the prompt: a good and equal cancer rehabilitation requires... the stakeholders were involved in brainstorming, sorting and grading data. The research group performed multi-dimensional scaling and hierarchical cluster analysis to provide a visual presentation of the results. Two digital seminars were held: one where stakeholders did online sorting and grading of data and one where results were presented and discussed. Results 118 respondents from four stakeholder groups provided 489 original ideas. Six clusters from 67 unique ideas constituted the concept map, and a go-zone showing the 12 ideas rated as most important and feasible was obtained. Conclusion For the first time, the NBHW has used CM in investigative work to produce development proposals and improvements that the government can use as a basis for political decisions. The method showed great potential, by allowing for stakeholder involvement as co-creators in all steps, high participation and possible direct utilisation of results. A clear learning perspective was obtained, both from the NBHW and the involved stakeholders; hence, the method can be used in further assignments where improvement perspectives are requested.

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author
; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Community-Based Participatory Research, Evaluation methodology, Governance, Health policy, Healthcare quality improvement
in
BMJ open quality
volume
14
issue
2
article number
e003021
publisher
BMJ Publishing Group
external identifiers
  • pmid:40514055
  • scopus:105008770744
ISSN
2399-6641
DOI
10.1136/bmjoq-2024-003021
language
English
LU publication?
yes
additional info
Publisher Copyright: © 2025 BMJ Publishing Group. All rights reserved.
id
9a0d3334-83ad-4a1a-925e-b0c0a56bfe5e
date added to LUP
2025-12-17 10:16:08
date last changed
2026-01-14 13:26:16
@article{9a0d3334-83ad-4a1a-925e-b0c0a56bfe5e,
  abstract     = {{<p>Background The incidence of people diagnosed with cancer is increasing worldwide, in Sweden with approximately 65 000 new cases yearly. To enhance conditions for a continued good life, high-quality, accessible and equal cancer rehabilitation is required. In 2020 the National Board of Health and Welfare (NBHW) received a government assignment to investigate the conditions for the offer of cancer rehabilitation. This paper aims to highlight how the Concept Mapping (CM) methodology was strategically used by the NBHW for mutual learning to raise different perspectives and € voices' of cancer rehabilitation. Methods The stepwise, mixed-method CM was used. A broad selection of relevant stakeholders was invited to complete the prompt: a good and equal cancer rehabilitation requires... the stakeholders were involved in brainstorming, sorting and grading data. The research group performed multi-dimensional scaling and hierarchical cluster analysis to provide a visual presentation of the results. Two digital seminars were held: one where stakeholders did online sorting and grading of data and one where results were presented and discussed. Results 118 respondents from four stakeholder groups provided 489 original ideas. Six clusters from 67 unique ideas constituted the concept map, and a go-zone showing the 12 ideas rated as most important and feasible was obtained. Conclusion For the first time, the NBHW has used CM in investigative work to produce development proposals and improvements that the government can use as a basis for political decisions. The method showed great potential, by allowing for stakeholder involvement as co-creators in all steps, high participation and possible direct utilisation of results. A clear learning perspective was obtained, both from the NBHW and the involved stakeholders; hence, the method can be used in further assignments where improvement perspectives are requested.</p>}},
  author       = {{Smith, Frida and Fredriksson, Katarina and Gunnarsdóttir, Katrín Ásta and Holtenman, Mikael and Carlsson, Christina}},
  issn         = {{2399-6641}},
  keywords     = {{Community-Based Participatory Research; Evaluation methodology; Governance; Health policy; Healthcare quality improvement}},
  language     = {{eng}},
  month        = {{06}},
  number       = {{2}},
  publisher    = {{BMJ Publishing Group}},
  series       = {{BMJ open quality}},
  title        = {{Increasing credibility in government assignments : an example from Sweden of stakeholder involvement by using Concept Mapping}},
  url          = {{http://dx.doi.org/10.1136/bmjoq-2024-003021}},
  doi          = {{10.1136/bmjoq-2024-003021}},
  volume       = {{14}},
  year         = {{2025}},
}