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Parents’ Experiences of Having a Baby With a Congenital Heart Defect and the Child’s Heart Surgery

Sjostrom-Strand, Annica LU and Terp, Karina LU (2017) In Comprehensive Child and Adolescent Nursing p.1-14
Abstract

The incidence of children born with congenital heart disease is 1%. Congenital heart disease is among the birth defects that lead to the longest hospital stays, and children with congenital heart disease often require frequent hospitalization and several heart operations, along with lifelong follow-up visits. This study aims to describe parents’ experiences when their child has a heart defect and undergoes open heart surgery. A total of 10 parents were interviewed: 8 mothers and 2 fathers. The interviews took place 2 years after the heart surgery. The interviews were analyzed using a content analysis method, which resulted in 4 categories: maintaining belief, experiencing the surgery as a turning point, experiencing the pediatric... (More)

The incidence of children born with congenital heart disease is 1%. Congenital heart disease is among the birth defects that lead to the longest hospital stays, and children with congenital heart disease often require frequent hospitalization and several heart operations, along with lifelong follow-up visits. This study aims to describe parents’ experiences when their child has a heart defect and undergoes open heart surgery. A total of 10 parents were interviewed: 8 mothers and 2 fathers. The interviews took place 2 years after the heart surgery. The interviews were analyzed using a content analysis method, which resulted in 4 categories: maintaining belief, experiencing the surgery as a turning point, experiencing the pediatric intensive care unit with anxiety and fear, and perception of support. When parents face their child having a congenital heart defect and plan heart surgery, the whole family is living through a stressful time and has to handle many difficult situations. Parents need support from the health care team.

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Please use this url to cite or link to this publication:
author
organization
publishing date
type
Contribution to journal
publication status
epub
subject
keywords
Children, congenital heart disease, content analysis, open heart surgery
in
Comprehensive Child and Adolescent Nursing
pages
14 pages
publisher
Taylor & Francis
external identifiers
  • scopus:85027021690
ISSN
2469-4193
DOI
10.1080/24694193.2017.1342104
language
English
LU publication?
yes
id
9ec7f181-3327-414d-938f-1cea07c043e0
date added to LUP
2017-08-29 14:02:35
date last changed
2018-01-07 12:16:27
@article{9ec7f181-3327-414d-938f-1cea07c043e0,
  abstract     = {<p>The incidence of children born with congenital heart disease is 1%. Congenital heart disease is among the birth defects that lead to the longest hospital stays, and children with congenital heart disease often require frequent hospitalization and several heart operations, along with lifelong follow-up visits. This study aims to describe parents’ experiences when their child has a heart defect and undergoes open heart surgery. A total of 10 parents were interviewed: 8 mothers and 2 fathers. The interviews took place 2 years after the heart surgery. The interviews were analyzed using a content analysis method, which resulted in 4 categories: maintaining belief, experiencing the surgery as a turning point, experiencing the pediatric intensive care unit with anxiety and fear, and perception of support. When parents face their child having a congenital heart defect and plan heart surgery, the whole family is living through a stressful time and has to handle many difficult situations. Parents need support from the health care team.</p>},
  author       = {Sjostrom-Strand, Annica and Terp, Karina},
  issn         = {2469-4193},
  keyword      = {Children,congenital heart disease,content analysis,open heart surgery},
  language     = {eng},
  month        = {08},
  pages        = {1--14},
  publisher    = {Taylor & Francis},
  series       = {Comprehensive Child and Adolescent Nursing},
  title        = {Parents’ Experiences of Having a Baby With a Congenital Heart Defect and the Child’s Heart Surgery},
  url          = {http://dx.doi.org/10.1080/24694193.2017.1342104},
  year         = {2017},
}