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Next of kin's perceptions of the meaning of participation in the care of older persons in nursing homes : a phenomenographic study

Ekström, Kajsa; Spelmans, Sanna; Ahlström, Gerd LU ; Nilsen, Per LU ; Alftberg, Åsa LU ; Wallerstedt, Birgitta and Behm, Lina LU (2019) In Scandinavian Journal of Caring Sciences
Abstract

BACKGROUND: Being involved in the care of a loved one is a desire of many next of kin. However, according to several studies of the perceptions of nursing home staff, the involvement of next of kin is not an obvious part of care. To be able to involve next of kin in care at nursing homes, the perceptions of what participation means are an important piece of knowledge. The aim of this study was therefore to describe variations in next of kin's perceptions of the meaning of participation in the care of older persons living in nursing homes.

METHODS: Eighteen next of kin of older persons living in ten nursing homes in Sweden were recruited for interviews. The study design was based on a phenomenographic approach, focusing on the... (More)

BACKGROUND: Being involved in the care of a loved one is a desire of many next of kin. However, according to several studies of the perceptions of nursing home staff, the involvement of next of kin is not an obvious part of care. To be able to involve next of kin in care at nursing homes, the perceptions of what participation means are an important piece of knowledge. The aim of this study was therefore to describe variations in next of kin's perceptions of the meaning of participation in the care of older persons living in nursing homes.

METHODS: Eighteen next of kin of older persons living in ten nursing homes in Sweden were recruited for interviews. The study design was based on a phenomenographic approach, focusing on the qualitatively different ways in which a person perceives, experiences or conceptualises a phenomenon or certain aspect of reality.

RESULTS: Five categories emerged from analysis of the interviews, representing the next of kin's perceptions of the meaning of participation in the care of older persons in nursing homes: be present; communicate; monitor; do practical tasks; and to represent. The next of kin expressed meanings that belonged to more than one category, and the categories were interdependent.

CONCLUSIONS: Our results indicate that there are several meanings of next of kin's perceptions of participation at nursing homes. Nursing home staff's knowledge of these perceptions is important to enable next of kin to participate according to their own preferences.

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author
organization
publishing date
type
Contribution to journal
publication status
epub
subject
in
Scandinavian Journal of Caring Sciences
pages
9 pages
publisher
Wiley-Blackwell
external identifiers
  • scopus:85059521388
ISSN
1471-6712
DOI
10.1111/scs.12636
language
English
LU publication?
yes
id
a050b30f-ff66-4a0d-9362-240727f2c46d
date added to LUP
2019-01-10 13:05:49
date last changed
2019-02-20 11:42:31
@article{a050b30f-ff66-4a0d-9362-240727f2c46d,
  abstract     = {<p>BACKGROUND: Being involved in the care of a loved one is a desire of many next of kin. However, according to several studies of the perceptions of nursing home staff, the involvement of next of kin is not an obvious part of care. To be able to involve next of kin in care at nursing homes, the perceptions of what participation means are an important piece of knowledge. The aim of this study was therefore to describe variations in next of kin's perceptions of the meaning of participation in the care of older persons living in nursing homes.</p><p>METHODS: Eighteen next of kin of older persons living in ten nursing homes in Sweden were recruited for interviews. The study design was based on a phenomenographic approach, focusing on the qualitatively different ways in which a person perceives, experiences or conceptualises a phenomenon or certain aspect of reality.</p><p>RESULTS: Five categories emerged from analysis of the interviews, representing the next of kin's perceptions of the meaning of participation in the care of older persons in nursing homes: be present; communicate; monitor; do practical tasks; and to represent. The next of kin expressed meanings that belonged to more than one category, and the categories were interdependent.</p><p>CONCLUSIONS: Our results indicate that there are several meanings of next of kin's perceptions of participation at nursing homes. Nursing home staff's knowledge of these perceptions is important to enable next of kin to participate according to their own preferences.</p>},
  author       = {Ekström, Kajsa and Spelmans, Sanna and Ahlström, Gerd and Nilsen, Per and Alftberg, Åsa and Wallerstedt, Birgitta and Behm, Lina},
  issn         = {1471-6712},
  language     = {eng},
  month        = {01},
  pages        = {9},
  publisher    = {Wiley-Blackwell},
  series       = {Scandinavian Journal of Caring Sciences},
  title        = {Next of kin's perceptions of the meaning of participation in the care of older persons in nursing homes : a phenomenographic study},
  url          = {http://dx.doi.org/10.1111/scs.12636},
  year         = {2019},
}