Siblings’ Lived Experiences of Having a Brother or Sister With Home Mechanical Ventilation : A Phenomenological Hermeneutical Study
(2019) In Journal of Family Nursing 25(3). p.469-492- Abstract
Over the past few decades, there has been an increase in the number of children receiving home mechanical ventilation (HMV), and in many ways, families have taken responsibility for the required advanced homecare, which has placed considerable time demands on the family unit. Little is known about the life situation of the siblings of HMV-assisted children; their own voices and an insider perspective are missing. The aim of this study was to illuminate the everyday life experiences of siblings of HMV-assisted children. Data were obtained via interviews with 10 siblings with a median age of 9 years. Data were analyzed using a phenomenological hermeneutical method inspired by the French philosopher Ricoeur. Four themes emerged, all of... (More)
Over the past few decades, there has been an increase in the number of children receiving home mechanical ventilation (HMV), and in many ways, families have taken responsibility for the required advanced homecare, which has placed considerable time demands on the family unit. Little is known about the life situation of the siblings of HMV-assisted children; their own voices and an insider perspective are missing. The aim of this study was to illuminate the everyday life experiences of siblings of HMV-assisted children. Data were obtained via interviews with 10 siblings with a median age of 9 years. Data were analyzed using a phenomenological hermeneutical method inspired by the French philosopher Ricoeur. Four themes emerged, all of which suggest that a complex and profound intertwined sibling bond develops that links the past, present, and future. The findings of this study provide valuable information from an insider’s perspective about the meaning of having an HMV-assisted sibling. Family-focused care with particular attention and support for siblings of HMV-assisted children can encourage the development of internal strengths, self-confidence, and resilience.
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- author
- Israelsson-Skogsberg, Åsa LU ; Markström, Agneta ; Laakso, Katja LU ; Hedén, Lena and Lindahl, Berit LU
- publishing date
- 2019-08-01
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- child, family, family nursing, home mechanical ventilation, sibling relationships
- in
- Journal of Family Nursing
- volume
- 25
- issue
- 3
- pages
- 469 - 492
- publisher
- SAGE Publications
- external identifiers
-
- scopus:85070380966
- pmid:31354023
- ISSN
- 1074-8407
- DOI
- 10.1177/1074840719863916
- language
- English
- LU publication?
- no
- id
- a1b12ada-40fd-4c08-8f69-a0ee90c396c7
- date added to LUP
- 2020-03-31 16:24:52
- date last changed
- 2024-04-17 07:14:16
@article{a1b12ada-40fd-4c08-8f69-a0ee90c396c7,
abstract = {{<p>Over the past few decades, there has been an increase in the number of children receiving home mechanical ventilation (HMV), and in many ways, families have taken responsibility for the required advanced homecare, which has placed considerable time demands on the family unit. Little is known about the life situation of the siblings of HMV-assisted children; their own voices and an insider perspective are missing. The aim of this study was to illuminate the everyday life experiences of siblings of HMV-assisted children. Data were obtained via interviews with 10 siblings with a median age of 9 years. Data were analyzed using a phenomenological hermeneutical method inspired by the French philosopher Ricoeur. Four themes emerged, all of which suggest that a complex and profound intertwined sibling bond develops that links the past, present, and future. The findings of this study provide valuable information from an insider’s perspective about the meaning of having an HMV-assisted sibling. Family-focused care with particular attention and support for siblings of HMV-assisted children can encourage the development of internal strengths, self-confidence, and resilience.</p>}},
author = {{Israelsson-Skogsberg, Åsa and Markström, Agneta and Laakso, Katja and Hedén, Lena and Lindahl, Berit}},
issn = {{1074-8407}},
keywords = {{child; family; family nursing; home mechanical ventilation; sibling relationships}},
language = {{eng}},
month = {{08}},
number = {{3}},
pages = {{469--492}},
publisher = {{SAGE Publications}},
series = {{Journal of Family Nursing}},
title = {{Siblings’ Lived Experiences of Having a Brother or Sister With Home Mechanical Ventilation : A Phenomenological Hermeneutical Study}},
url = {{http://dx.doi.org/10.1177/1074840719863916}},
doi = {{10.1177/1074840719863916}},
volume = {{25}},
year = {{2019}},
}