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Self-reported impairments among people with late effects of polio : a mixed-methods study

Hammarlund, Catharina Sjödahl LU ; Lexell, Jan LU and Brogårdh, Christina LU (2020) In Journal of Rehabilitation Medicine 52(7).
Abstract

OBJECTIVE: To determine how much people with late effects of polio are bothered by various impairments and their influence on everyday life. DESIGN: A mixed-methods design. SUBJECTS/PATIENTS: Seven women and 7 men (mean age 70 years) with late effects of polio. METHODS: Self-reported Impairments in Persons with late effects of Polio (SIPP) scale and face-to-face interviews. In SIPP, the participants rated, from 1 (not at all) to 4 (extremely), how much they had been bothered by late effects of polio-related impairments. Qualitative data were analysed using systematic text condensation. Each quotation was deductively analysed based on its conceptual representation regarding perceived influence on everyday life. RESULTS: Participants were... (More)

OBJECTIVE: To determine how much people with late effects of polio are bothered by various impairments and their influence on everyday life. DESIGN: A mixed-methods design. SUBJECTS/PATIENTS: Seven women and 7 men (mean age 70 years) with late effects of polio. METHODS: Self-reported Impairments in Persons with late effects of Polio (SIPP) scale and face-to-face interviews. In SIPP, the participants rated, from 1 (not at all) to 4 (extremely), how much they had been bothered by late effects of polio-related impairments. Qualitative data were analysed using systematic text condensation. Each quotation was deductively analysed based on its conceptual representation regarding perceived influence on everyday life. RESULTS: Participants were most bothered by muscle and/or joint pain during physical activity, muscle weakness and general fatigue, which corresponded with the number of interview quotations. The impairments negatively influenced daily life, such as household chores, walking, riding a bicycle and social participation. Increased impairments and reduced functioning on the less-affected side also caused worry and distress. CONCLUSION: Common late effects of polio-related impairments greatly affected participants' activity and participation. By using both the SIPP scale and face-to-face interviews, an increased understanding of how late effects of polio-related impairments influence everyday life was achieved.

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author
; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
activities of daily living, fatigue, muscle weakness, pain, post-poliomyelitis syndrome, psychological distress, rehabilitation
in
Journal of Rehabilitation Medicine
volume
52
issue
7
article number
jrm00084
publisher
Taylor & Francis
external identifiers
  • pmid:32556343
  • scopus:85090069856
ISSN
1651-2081
DOI
10.2340/16501977-2706
language
English
LU publication?
yes
id
a6a0558f-1383-4da7-8c26-a8d8cabfeb3a
date added to LUP
2020-09-24 09:54:14
date last changed
2020-09-25 01:59:13
@article{a6a0558f-1383-4da7-8c26-a8d8cabfeb3a,
  abstract     = {<p>OBJECTIVE: To determine how much people with late effects of polio are bothered by various impairments and their influence on everyday life. DESIGN: A mixed-methods design. SUBJECTS/PATIENTS: Seven women and 7 men (mean age 70 years) with late effects of polio. METHODS: Self-reported Impairments in Persons with late effects of Polio (SIPP) scale and face-to-face interviews. In SIPP, the participants rated, from 1 (not at all) to 4 (extremely), how much they had been bothered by late effects of polio-related impairments. Qualitative data were analysed using systematic text condensation. Each quotation was deductively analysed based on its conceptual representation regarding perceived influence on everyday life. RESULTS: Participants were most bothered by muscle and/or joint pain during physical activity, muscle weakness and general fatigue, which corresponded with the number of interview quotations. The impairments negatively influenced daily life, such as household chores, walking, riding a bicycle and social participation. Increased impairments and reduced functioning on the less-affected side also caused worry and distress. CONCLUSION: Common late effects of polio-related impairments greatly affected participants' activity and participation. By using both the SIPP scale and face-to-face interviews, an increased understanding of how late effects of polio-related impairments influence everyday life was achieved.</p>},
  author       = {Hammarlund, Catharina Sjödahl and Lexell, Jan and Brogårdh, Christina},
  issn         = {1651-2081},
  language     = {eng},
  month        = {07},
  number       = {7},
  publisher    = {Taylor & Francis},
  series       = {Journal of Rehabilitation Medicine},
  title        = {Self-reported impairments among people with late effects of polio : a mixed-methods study},
  url          = {http://dx.doi.org/10.2340/16501977-2706},
  doi          = {10.2340/16501977-2706},
  volume       = {52},
  year         = {2020},
}