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Development and Validation of a Questionnaire to Measure Patient's Experiences of Health Care in Pulmonary Arterial Hypertension Outpatient Clinics

Waldréus, Nana ; Jaarsma, Tiny ; Ivarsson, Bodil LU ; Strömberg, Anna ; Årestedt, Kristofer and Kjellström, Barbro (2019) In Heart Lung and Circulation 28(7). p.1074-1081
Abstract

Background: Measuring the patients’ experience of care at an outpatient clinic can provide feedback about the quality of health care and if needed, can be support for quality improvements. To date, there is no patient reported experience measurement (PREM) developed targeting patients at the pulmonary arterial hypertension (PAH) outpatient clinics. Therefore, the aim was to develop and evaluate the psychometric properties of a PREM scale to be used for patients at PAH-outpatient clinics. Methods: The development and psychometric evaluation of the PREM for patients at PAH outpatient clinics followed two stages: (I) development of the PAH Clinic PREM (PAHC-PREM) scale based on interviews with patients; and (II) psychometric evaluation of... (More)

Background: Measuring the patients’ experience of care at an outpatient clinic can provide feedback about the quality of health care and if needed, can be support for quality improvements. To date, there is no patient reported experience measurement (PREM) developed targeting patients at the pulmonary arterial hypertension (PAH) outpatient clinics. Therefore, the aim was to develop and evaluate the psychometric properties of a PREM scale to be used for patients at PAH-outpatient clinics. Methods: The development and psychometric evaluation of the PREM for patients at PAH outpatient clinics followed two stages: (I) development of the PAH Clinic PREM (PAHC-PREM) scale based on interviews with patients; and (II) psychometric evaluation of the PAHC-PREM scale including data quality, factor structure (construct validity), criterion validity and internal consistency. Results: A sample of 156 patients at PAH outpatient clinics completed the PAHC-PREM scale (median age 69 years, 57% women). Unidimensionality of the PAHC-PREM scale was supported by parallel analysis. A single factor explained 67% of the variance. Inter-item and item-total correlations were satisfactory (0.46–0.88 and 0.64–0.91, respectively). Internal consistency reliability with ordinal coefficient alpha was good (0.93). Conclusions: The PAHC-PREM scale was demonstrated to have good psychometric properties and is now ready to be used to measure quality of health care experience from patients at PAH-outpatient clinics.

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author
; ; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Chronic disease, Patient reported experience measurement, Pulmonary arterial hypertension, Quality of health care
in
Heart Lung and Circulation
volume
28
issue
7
pages
1074 - 1081
publisher
Elsevier
external identifiers
  • pmid:30139595
  • scopus:85051704199
ISSN
1443-9506
DOI
10.1016/j.hlc.2018.07.011
language
English
LU publication?
yes
id
a82887ec-0309-4871-8856-58d0c0a55025
date added to LUP
2018-09-13 12:30:49
date last changed
2024-05-27 16:28:15
@article{a82887ec-0309-4871-8856-58d0c0a55025,
  abstract     = {{<p>Background: Measuring the patients’ experience of care at an outpatient clinic can provide feedback about the quality of health care and if needed, can be support for quality improvements. To date, there is no patient reported experience measurement (PREM) developed targeting patients at the pulmonary arterial hypertension (PAH) outpatient clinics. Therefore, the aim was to develop and evaluate the psychometric properties of a PREM scale to be used for patients at PAH-outpatient clinics. Methods: The development and psychometric evaluation of the PREM for patients at PAH outpatient clinics followed two stages: (I) development of the PAH Clinic PREM (PAHC-PREM) scale based on interviews with patients; and (II) psychometric evaluation of the PAHC-PREM scale including data quality, factor structure (construct validity), criterion validity and internal consistency. Results: A sample of 156 patients at PAH outpatient clinics completed the PAHC-PREM scale (median age 69 years, 57% women). Unidimensionality of the PAHC-PREM scale was supported by parallel analysis. A single factor explained 67% of the variance. Inter-item and item-total correlations were satisfactory (0.46–0.88 and 0.64–0.91, respectively). Internal consistency reliability with ordinal coefficient alpha was good (0.93). Conclusions: The PAHC-PREM scale was demonstrated to have good psychometric properties and is now ready to be used to measure quality of health care experience from patients at PAH-outpatient clinics.</p>}},
  author       = {{Waldréus, Nana and Jaarsma, Tiny and Ivarsson, Bodil and Strömberg, Anna and Årestedt, Kristofer and Kjellström, Barbro}},
  issn         = {{1443-9506}},
  keywords     = {{Chronic disease; Patient reported experience measurement; Pulmonary arterial hypertension; Quality of health care}},
  language     = {{eng}},
  number       = {{7}},
  pages        = {{1074--1081}},
  publisher    = {{Elsevier}},
  series       = {{Heart Lung and Circulation}},
  title        = {{Development and Validation of a Questionnaire to Measure Patient's Experiences of Health Care in Pulmonary Arterial Hypertension Outpatient Clinics}},
  url          = {{http://dx.doi.org/10.1016/j.hlc.2018.07.011}},
  doi          = {{10.1016/j.hlc.2018.07.011}},
  volume       = {{28}},
  year         = {{2019}},
}