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The transition from children to young people living with home mechanical ventilation

Israelsson-Skogsberg, Åsa LU ; Palm, Andreas ; Ekström, Magnus LU orcid ; Markström, Agneta and Lindahl, Berit LU (2024) In International Journal of Qualitative Studies on Health and Well-being 19(1).
Abstract

Purpose: This study aimed to examine how young people living with Home Mechanical Ventilation experience the transition from childhood to young adulthood in relation to everyday life, perceived health and transition into adult professional healthcare. Methods: Nine young adults (three females and six males aged 18–31) were interviewed, and data was primary analysed using phenomenological hermeneutics. In the actual study, data was reworked using secondary analysis as described by Beck. Two interviewees were ventilated invasively and six non-invasively, and one was treated with continuous positive airway pressure (CPAP). Results: The results are presented in two main categories. First; moving towards adulthood; and second, To handle... (More)

Purpose: This study aimed to examine how young people living with Home Mechanical Ventilation experience the transition from childhood to young adulthood in relation to everyday life, perceived health and transition into adult professional healthcare. Methods: Nine young adults (three females and six males aged 18–31) were interviewed, and data was primary analysed using phenomenological hermeneutics. In the actual study, data was reworked using secondary analysis as described by Beck. Two interviewees were ventilated invasively and six non-invasively, and one was treated with continuous positive airway pressure (CPAP). Results: The results are presented in two main categories. First; moving towards adulthood; and second, To handle changes in health and healthcare contacts. The study highlights the importance of ongoing social relations and being part of a socializing and physically active community. The transfer from paediatric to adult healthcare was solid and worked out well but was a process in which the participants struggled to find their own voice. Conclusions: The transition into adulthood is a sensitive and challenging time for young people with HMV, but stable, close relationships and a well-organized transfer can enable this group to feel safe and able to find and use their own voice.

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author
; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
health, Home mechanical ventilation, long-term mechanical ventilation, neuromuscular disease, secondary qualitative analysis, transition, young people
in
International Journal of Qualitative Studies on Health and Well-being
volume
19
issue
1
article number
2399432
publisher
Taylor & Francis
external identifiers
  • pmid:39229970
  • scopus:85203213851
ISSN
1748-2623
DOI
10.1080/17482631.2024.2399432
language
English
LU publication?
yes
additional info
Publisher Copyright: © 2024 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.
id
a986be32-bfde-4ede-b7c1-d054f619c54e
date added to LUP
2024-12-09 15:22:19
date last changed
2025-07-08 08:11:23
@article{a986be32-bfde-4ede-b7c1-d054f619c54e,
  abstract     = {{<p>Purpose: This study aimed to examine how young people living with Home Mechanical Ventilation experience the transition from childhood to young adulthood in relation to everyday life, perceived health and transition into adult professional healthcare. Methods: Nine young adults (three females and six males aged 18–31) were interviewed, and data was primary analysed using phenomenological hermeneutics. In the actual study, data was reworked using secondary analysis as described by Beck. Two interviewees were ventilated invasively and six non-invasively, and one was treated with continuous positive airway pressure (CPAP). Results: The results are presented in two main categories. First; moving towards adulthood; and second, To handle changes in health and healthcare contacts. The study highlights the importance of ongoing social relations and being part of a socializing and physically active community. The transfer from paediatric to adult healthcare was solid and worked out well but was a process in which the participants struggled to find their own voice. Conclusions: The transition into adulthood is a sensitive and challenging time for young people with HMV, but stable, close relationships and a well-organized transfer can enable this group to feel safe and able to find and use their own voice.</p>}},
  author       = {{Israelsson-Skogsberg, Åsa and Palm, Andreas and Ekström, Magnus and Markström, Agneta and Lindahl, Berit}},
  issn         = {{1748-2623}},
  keywords     = {{health; Home mechanical ventilation; long-term mechanical ventilation; neuromuscular disease; secondary qualitative analysis; transition; young people}},
  language     = {{eng}},
  number       = {{1}},
  publisher    = {{Taylor & Francis}},
  series       = {{International Journal of Qualitative Studies on Health and Well-being}},
  title        = {{The transition from children to young people living with home mechanical ventilation}},
  url          = {{http://dx.doi.org/10.1080/17482631.2024.2399432}},
  doi          = {{10.1080/17482631.2024.2399432}},
  volume       = {{19}},
  year         = {{2024}},
}