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Pediatric palliative care in Sweden

Castor, Charlotte LU ; Ivéus, Kerstin and Kreicbergs, Ulrika (2023) In Current Problems in Pediatric and Adolescent Health Care
Abstract

In Sweden, the governance of healthcare is decentralized, so PC is provided with regional or local differences in organization, level of competence, and recourses. Ongoing regional and national initiative to increase quality of pediatric palliative care in Sweden aligns with the international standard of pediatric palliative care as a care directed towards all children with life-threatening or life-limiting illness or conditions from the time of diagnosis. Examples of such initiatives and of different care-services providing pediatric palliative care will be presented. Finally a case to highlighting how a child's care needs might change throughout the illness trajectory and how various healthcare facilities and organizations when... (More)

In Sweden, the governance of healthcare is decentralized, so PC is provided with regional or local differences in organization, level of competence, and recourses. Ongoing regional and national initiative to increase quality of pediatric palliative care in Sweden aligns with the international standard of pediatric palliative care as a care directed towards all children with life-threatening or life-limiting illness or conditions from the time of diagnosis. Examples of such initiatives and of different care-services providing pediatric palliative care will be presented. Finally a case to highlighting how a child's care needs might change throughout the illness trajectory and how various healthcare facilities and organizations when collaborating can support the child's participation in decision making is presented.

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Please use this url to cite or link to this publication:
author
; and
organization
publishing date
type
Contribution to journal
publication status
epub
subject
keywords
Decision making, Participation, Pediatric palliative care, Sweden, Until end of life
in
Current Problems in Pediatric and Adolescent Health Care
article number
101455
publisher
Elsevier
external identifiers
  • pmid:37993301
  • scopus:85179069743
ISSN
1538-5442
DOI
10.1016/j.cppeds.2023.101455
language
English
LU publication?
yes
id
ab2ccd2d-07a2-4cba-ace4-9596909a2f83
date added to LUP
2024-01-11 14:22:20
date last changed
2024-04-12 08:11:37
@article{ab2ccd2d-07a2-4cba-ace4-9596909a2f83,
  abstract     = {{<p>In Sweden, the governance of healthcare is decentralized, so PC is provided with regional or local differences in organization, level of competence, and recourses. Ongoing regional and national initiative to increase quality of pediatric palliative care in Sweden aligns with the international standard of pediatric palliative care as a care directed towards all children with life-threatening or life-limiting illness or conditions from the time of diagnosis. Examples of such initiatives and of different care-services providing pediatric palliative care will be presented. Finally a case to highlighting how a child's care needs might change throughout the illness trajectory and how various healthcare facilities and organizations when collaborating can support the child's participation in decision making is presented.</p>}},
  author       = {{Castor, Charlotte and Ivéus, Kerstin and Kreicbergs, Ulrika}},
  issn         = {{1538-5442}},
  keywords     = {{Decision making; Participation; Pediatric palliative care; Sweden; Until end of life}},
  language     = {{eng}},
  publisher    = {{Elsevier}},
  series       = {{Current Problems in Pediatric and Adolescent Health Care}},
  title        = {{Pediatric palliative care in Sweden}},
  url          = {{http://dx.doi.org/10.1016/j.cppeds.2023.101455}},
  doi          = {{10.1016/j.cppeds.2023.101455}},
  year         = {{2023}},
}