Advanced

Patients experiences of information and support during the first six months after heart or lung transplantation.

Ivarsson, Bodil LU ; Ekmehag, Björn LU and Sjöberg, Trygve LU (2013) In European Journal of Cardiovascular Nursing 12(4). p.400-406
Abstract
BACKGROUND: Heart or lung recipients are taught about a new lifestyle, risk factors, medication, food restrictions and exercise so they can take an active role and responsibility for disease management after transplantation. However, little is known about patients' experiences of information and support in these situations. OBJECTIVE: The aim of the study was to illuminate how patients, six months after a heart or lung transplantation, experienced the information and support they received in connection with the transplantation. METHODS: Sixteen patients were included in the study, and interviews were analysed using a qualitative content analysis method. RESULTS: The findings are presented in three themes: Alternating between gratitude and... (More)
BACKGROUND: Heart or lung recipients are taught about a new lifestyle, risk factors, medication, food restrictions and exercise so they can take an active role and responsibility for disease management after transplantation. However, little is known about patients' experiences of information and support in these situations. OBJECTIVE: The aim of the study was to illuminate how patients, six months after a heart or lung transplantation, experienced the information and support they received in connection with the transplantation. METHODS: Sixteen patients were included in the study, and interviews were analysed using a qualitative content analysis method. RESULTS: The findings are presented in three themes: Alternating between gratitude and satisfaction and resignation, Striving to follow treatment strategies and Returning to a relatively normal life. The patients expressed gratitude when their health improved markedly but resignation when complications or side effects occurred due to the lack of information and support they received. CONCLUSIONS: Healthcare professionals can make specific improvements in the information they provide to patients to increase their preparedness. Information and support should be provided regularly so as to avoid non-adherence to essential guidelines. To return to a normal life, patients need support from healthcare organizations, families, employers and society in general. These findings should be taken into account in the clinical management of transplant patients, particularly those with dependent children or failing social networks. (Less)
Please use this url to cite or link to this publication:
author
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
European Journal of Cardiovascular Nursing
volume
12
issue
4
pages
400 - 406
publisher
Elsevier
external identifiers
  • wos:000322243100012
  • pmid:23185079
  • scopus:84880906631
ISSN
1474-5151
DOI
10.1177/1474515112466155
language
English
LU publication?
yes
id
b9618bb5-c824-4c70-8053-8573b55c49ab (old id 3218452)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/23185079?dopt=Abstract
date added to LUP
2012-12-03 21:27:12
date last changed
2019-03-19 01:07:23
@article{b9618bb5-c824-4c70-8053-8573b55c49ab,
  abstract     = {BACKGROUND: Heart or lung recipients are taught about a new lifestyle, risk factors, medication, food restrictions and exercise so they can take an active role and responsibility for disease management after transplantation. However, little is known about patients' experiences of information and support in these situations. OBJECTIVE: The aim of the study was to illuminate how patients, six months after a heart or lung transplantation, experienced the information and support they received in connection with the transplantation. METHODS: Sixteen patients were included in the study, and interviews were analysed using a qualitative content analysis method. RESULTS: The findings are presented in three themes: Alternating between gratitude and satisfaction and resignation, Striving to follow treatment strategies and Returning to a relatively normal life. The patients expressed gratitude when their health improved markedly but resignation when complications or side effects occurred due to the lack of information and support they received. CONCLUSIONS: Healthcare professionals can make specific improvements in the information they provide to patients to increase their preparedness. Information and support should be provided regularly so as to avoid non-adherence to essential guidelines. To return to a normal life, patients need support from healthcare organizations, families, employers and society in general. These findings should be taken into account in the clinical management of transplant patients, particularly those with dependent children or failing social networks.},
  author       = {Ivarsson, Bodil and Ekmehag, Björn and Sjöberg, Trygve},
  issn         = {1474-5151},
  language     = {eng},
  number       = {4},
  pages        = {400--406},
  publisher    = {Elsevier},
  series       = {European Journal of Cardiovascular Nursing},
  title        = {Patients experiences of information and support during the first six months after heart or lung transplantation.},
  url          = {http://dx.doi.org/10.1177/1474515112466155},
  volume       = {12},
  year         = {2013},
}