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Meaning in Life in Late-Stage Parkinson’s Disease : Results from the Care of Late-Stage Parkinsonism Study (CLaSP) in Six European Countries

Bublitz, Sarah K. ; Brandstötter, Cornelia ; Fegg, Martin ; Ferreira, Joaquim J. ; Odin, Per LU orcid ; Bloem, Bastiaan R. ; Meissner, Wassilios G. ; Dodel, Richard ; Schrag, Anette and Lorenzl, Stefan (2023) In Journal of Religion and Health
Abstract

The Care of Late-Stage Parkinsonism (CLaSP) study is a longitudinal, multicentre, prospective cohort study to assess the needs and provision of care for people with late-stage Parkinson’s disease and their caregivers in six European countries. As a cross-sectional study within the CLaSP study, 509 people with Parkinson’s disease completed the “Schedule-for-Meaning-in-Life-Evaluation” (SMiLE) questionnaire. We compared the results to those of a representative sample of healthy participants (n = 856). People with late-stage Parkinson’s disease reported family, partnership and spirituality as the greatest areas of importance. Overall, they had lower SMiLE indices compared to healthy participants. People with late-stage Parkinson’s disease... (More)

The Care of Late-Stage Parkinsonism (CLaSP) study is a longitudinal, multicentre, prospective cohort study to assess the needs and provision of care for people with late-stage Parkinson’s disease and their caregivers in six European countries. As a cross-sectional study within the CLaSP study, 509 people with Parkinson’s disease completed the “Schedule-for-Meaning-in-Life-Evaluation” (SMiLE) questionnaire. We compared the results to those of a representative sample of healthy participants (n = 856). People with late-stage Parkinson’s disease reported family, partnership and spirituality as the greatest areas of importance. Overall, they had lower SMiLE indices compared to healthy participants. People with late-stage Parkinson’s disease rated the importance of core meaning in life areas (namely family, social relations and health) as significantly lower than the representative cohort and they also rated satisfaction as significantly lower in most areas. In conclusion, people with late-stage Parkinson’s disease do have areas where they can find meaning, such as family, partnership and spirituality. However, they indicate a lack of fulfilment of their individual MiL, reflected by low satisfaction rates in the majority of meaning in life categories. The need for spiritual support for people with Parkinson’s disease indicates the important role of chaplains to help people with Parkinson’s disease maintain meaning in life.

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author
; ; ; ; ; ; ; ; and
organization
publishing date
type
Contribution to journal
publication status
in press
subject
keywords
Coping, Late-stage Parkinson’s disease, Meaning in life, Response shift
in
Journal of Religion and Health
publisher
Springer
external identifiers
  • pmid:38049708
  • scopus:85178464201
ISSN
0022-4197
DOI
10.1007/s10943-023-01962-w
language
English
LU publication?
yes
id
bc6d16f6-f480-4b4f-9b43-026ccb7f8209
date added to LUP
2024-01-04 13:49:22
date last changed
2024-04-19 10:06:26
@article{bc6d16f6-f480-4b4f-9b43-026ccb7f8209,
  abstract     = {{<p>The Care of Late-Stage Parkinsonism (CLaSP) study is a longitudinal, multicentre, prospective cohort study to assess the needs and provision of care for people with late-stage Parkinson’s disease and their caregivers in six European countries. As a cross-sectional study within the CLaSP study, 509 people with Parkinson’s disease completed the “Schedule-for-Meaning-in-Life-Evaluation” (SMiLE) questionnaire. We compared the results to those of a representative sample of healthy participants (n = 856). People with late-stage Parkinson’s disease reported family, partnership and spirituality as the greatest areas of importance. Overall, they had lower SMiLE indices compared to healthy participants. People with late-stage Parkinson’s disease rated the importance of core meaning in life areas (namely family, social relations and health) as significantly lower than the representative cohort and they also rated satisfaction as significantly lower in most areas. In conclusion, people with late-stage Parkinson’s disease do have areas where they can find meaning, such as family, partnership and spirituality. However, they indicate a lack of fulfilment of their individual MiL, reflected by low satisfaction rates in the majority of meaning in life categories. The need for spiritual support for people with Parkinson’s disease indicates the important role of chaplains to help people with Parkinson’s disease maintain meaning in life.</p>}},
  author       = {{Bublitz, Sarah K. and Brandstötter, Cornelia and Fegg, Martin and Ferreira, Joaquim J. and Odin, Per and Bloem, Bastiaan R. and Meissner, Wassilios G. and Dodel, Richard and Schrag, Anette and Lorenzl, Stefan}},
  issn         = {{0022-4197}},
  keywords     = {{Coping; Late-stage Parkinson’s disease; Meaning in life; Response shift}},
  language     = {{eng}},
  publisher    = {{Springer}},
  series       = {{Journal of Religion and Health}},
  title        = {{Meaning in Life in Late-Stage Parkinson’s Disease : Results from the Care of Late-Stage Parkinsonism Study (CLaSP) in Six European Countries}},
  url          = {{http://dx.doi.org/10.1007/s10943-023-01962-w}},
  doi          = {{10.1007/s10943-023-01962-w}},
  year         = {{2023}},
}