‘I’m almost never sick’ : Everyday life experiences of children and young people with home mechanical ventilation
(2018) In Journal of Child Health Care 22(1). p.6-18- Abstract
Developments in medical technology and treatment have increased the survival rates of children with serious illnesses or injuries, including those receiving home mechanical ventilation, which is a small but growing group. The aim of this study was to explore everyday life experiences of children and young people living with home mechanical ventilation (HMV). Data were obtained through interviews with nine participants. The interviews were supported by photovoice methodology: photographs taken by the participants before or during the interviews were used to facilitate conversation. Interview data were analyzed using qualitative content analysis. The findings revealed that everyday life on a ventilator can be described as including power... (More)
Developments in medical technology and treatment have increased the survival rates of children with serious illnesses or injuries, including those receiving home mechanical ventilation, which is a small but growing group. The aim of this study was to explore everyday life experiences of children and young people living with home mechanical ventilation (HMV). Data were obtained through interviews with nine participants. The interviews were supported by photovoice methodology: photographs taken by the participants before or during the interviews were used to facilitate conversation. Interview data were analyzed using qualitative content analysis. The findings revealed that everyday life on a ventilator can be described as including power but simultaneously as characterized by vulnerability to the outside world, comparable to balancing on a tightrope. Various types of technology, both information and communication technology (ICT) and vital medical technology, enabled the participants to engage with the world around them. This study contributes knowledge about the experiences of children and young people with HMV, who depict their lives as good and valuable. The study also underscores, when designing plans and home support, it is necessary to take a sensible approach to personal experiences of what a good life is and what resources are needed to attain and maintain health.
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- author
- Israelsson-Skogsberg, Åsa LU ; Hedén, Lena ; Lindahl, Berit LU and Laakso, Katja LU
- publishing date
- 2018
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- Adolescent, child, content analysis, home health care, mechanical ventilation, qualitative studies, young adult
- in
- Journal of Child Health Care
- volume
- 22
- issue
- 1
- pages
- 6 - 18
- publisher
- SAGE Publications
- external identifiers
-
- pmid:29298495
- scopus:85042497737
- ISSN
- 1367-4935
- DOI
- 10.1177/1367493517749328
- language
- English
- LU publication?
- no
- id
- c75d4f3c-ed69-48e9-bb9e-f49912b831bc
- date added to LUP
- 2020-04-01 16:38:03
- date last changed
- 2024-09-19 20:44:33
@article{c75d4f3c-ed69-48e9-bb9e-f49912b831bc,
abstract = {{<p>Developments in medical technology and treatment have increased the survival rates of children with serious illnesses or injuries, including those receiving home mechanical ventilation, which is a small but growing group. The aim of this study was to explore everyday life experiences of children and young people living with home mechanical ventilation (HMV). Data were obtained through interviews with nine participants. The interviews were supported by photovoice methodology: photographs taken by the participants before or during the interviews were used to facilitate conversation. Interview data were analyzed using qualitative content analysis. The findings revealed that everyday life on a ventilator can be described as including power but simultaneously as characterized by vulnerability to the outside world, comparable to balancing on a tightrope. Various types of technology, both information and communication technology (ICT) and vital medical technology, enabled the participants to engage with the world around them. This study contributes knowledge about the experiences of children and young people with HMV, who depict their lives as good and valuable. The study also underscores, when designing plans and home support, it is necessary to take a sensible approach to personal experiences of what a good life is and what resources are needed to attain and maintain health.</p>}},
author = {{Israelsson-Skogsberg, Åsa and Hedén, Lena and Lindahl, Berit and Laakso, Katja}},
issn = {{1367-4935}},
keywords = {{Adolescent; child; content analysis; home health care; mechanical ventilation; qualitative studies; young adult}},
language = {{eng}},
number = {{1}},
pages = {{6--18}},
publisher = {{SAGE Publications}},
series = {{Journal of Child Health Care}},
title = {{‘I’m almost never sick’ : Everyday life experiences of children and young people with home mechanical ventilation}},
url = {{http://dx.doi.org/10.1177/1367493517749328}},
doi = {{10.1177/1367493517749328}},
volume = {{22}},
year = {{2018}},
}