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‘I’m almost never sick’ : Everyday life experiences of children and young people with home mechanical ventilation

Israelsson-Skogsberg, Åsa LU ; Hedén, Lena ; Lindahl, Berit LU and Laakso, Katja LU (2018) In Journal of Child Health Care 22(1). p.6-18
Abstract

Developments in medical technology and treatment have increased the survival rates of children with serious illnesses or injuries, including those receiving home mechanical ventilation, which is a small but growing group. The aim of this study was to explore everyday life experiences of children and young people living with home mechanical ventilation (HMV). Data were obtained through interviews with nine participants. The interviews were supported by photovoice methodology: photographs taken by the participants before or during the interviews were used to facilitate conversation. Interview data were analyzed using qualitative content analysis. The findings revealed that everyday life on a ventilator can be described as including power... (More)

Developments in medical technology and treatment have increased the survival rates of children with serious illnesses or injuries, including those receiving home mechanical ventilation, which is a small but growing group. The aim of this study was to explore everyday life experiences of children and young people living with home mechanical ventilation (HMV). Data were obtained through interviews with nine participants. The interviews were supported by photovoice methodology: photographs taken by the participants before or during the interviews were used to facilitate conversation. Interview data were analyzed using qualitative content analysis. The findings revealed that everyday life on a ventilator can be described as including power but simultaneously as characterized by vulnerability to the outside world, comparable to balancing on a tightrope. Various types of technology, both information and communication technology (ICT) and vital medical technology, enabled the participants to engage with the world around them. This study contributes knowledge about the experiences of children and young people with HMV, who depict their lives as good and valuable. The study also underscores, when designing plans and home support, it is necessary to take a sensible approach to personal experiences of what a good life is and what resources are needed to attain and maintain health.

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author
; ; and
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Adolescent, child, content analysis, home health care, mechanical ventilation, qualitative studies, young adult
in
Journal of Child Health Care
volume
22
issue
1
pages
6 - 18
publisher
SAGE Publications
external identifiers
  • pmid:29298495
  • scopus:85042497737
ISSN
1367-4935
DOI
10.1177/1367493517749328
language
English
LU publication?
no
id
c75d4f3c-ed69-48e9-bb9e-f49912b831bc
date added to LUP
2020-04-01 16:38:03
date last changed
2024-09-19 20:44:33
@article{c75d4f3c-ed69-48e9-bb9e-f49912b831bc,
  abstract     = {{<p>Developments in medical technology and treatment have increased the survival rates of children with serious illnesses or injuries, including those receiving home mechanical ventilation, which is a small but growing group. The aim of this study was to explore everyday life experiences of children and young people living with home mechanical ventilation (HMV). Data were obtained through interviews with nine participants. The interviews were supported by photovoice methodology: photographs taken by the participants before or during the interviews were used to facilitate conversation. Interview data were analyzed using qualitative content analysis. The findings revealed that everyday life on a ventilator can be described as including power but simultaneously as characterized by vulnerability to the outside world, comparable to balancing on a tightrope. Various types of technology, both information and communication technology (ICT) and vital medical technology, enabled the participants to engage with the world around them. This study contributes knowledge about the experiences of children and young people with HMV, who depict their lives as good and valuable. The study also underscores, when designing plans and home support, it is necessary to take a sensible approach to personal experiences of what a good life is and what resources are needed to attain and maintain health.</p>}},
  author       = {{Israelsson-Skogsberg, Åsa and Hedén, Lena and Lindahl, Berit and Laakso, Katja}},
  issn         = {{1367-4935}},
  keywords     = {{Adolescent; child; content analysis; home health care; mechanical ventilation; qualitative studies; young adult}},
  language     = {{eng}},
  number       = {{1}},
  pages        = {{6--18}},
  publisher    = {{SAGE Publications}},
  series       = {{Journal of Child Health Care}},
  title        = {{‘I’m almost never sick’ : Everyday life experiences of children and young people with home mechanical ventilation}},
  url          = {{http://dx.doi.org/10.1177/1367493517749328}},
  doi          = {{10.1177/1367493517749328}},
  volume       = {{22}},
  year         = {{2018}},
}