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Needs, barriers and facilitators for a healthier lifestyle in haemodialysis patients : The GoodRENal project

Mesa-Gresa, Patricia ; Avesani, Carla Maria ; Clyne, Naomi LU orcid ; García-Testal, Alicia ; Kouidi, Evangelia ; Van Craenenbroeck, Amaryllis H. ; Lindholm, Bengt ; Lozano-Quilis, Jose Antonio ; Marin, Alexandra Elena and García-Maset, Rafael , et al. (2023) In Journal of Clinical Nursing p.1-14
Abstract

Background: Malnutrition, sedentary lifestyle, cognitive dysfunction and poor psychological well-being are often reported in patients on haemodialysis (HD). Aims: We aimed to explore needs, barriers and facilitators—as perceived by patients, their carers, and healthcare professionals (HCPs) for increasing the adherence to the diet, to physical activity and cognition and psychological well-being. Methods: This is an observational cross-sectional study following the STROBE statement. This study is part of an ERASMUS+ project, GoodRENal—aiming to develop digital tools as an educational approach to patients on HD. For that, the GoodRENal comprises HD centers located in four Belgium, Greece, Spain and Sweden. Exploratory questionnaires were... (More)

Background: Malnutrition, sedentary lifestyle, cognitive dysfunction and poor psychological well-being are often reported in patients on haemodialysis (HD). Aims: We aimed to explore needs, barriers and facilitators—as perceived by patients, their carers, and healthcare professionals (HCPs) for increasing the adherence to the diet, to physical activity and cognition and psychological well-being. Methods: This is an observational cross-sectional study following the STROBE statement. This study is part of an ERASMUS+ project, GoodRENal—aiming to develop digital tools as an educational approach to patients on HD. For that, the GoodRENal comprises HD centers located in four Belgium, Greece, Spain and Sweden. Exploratory questionnaires were developed regarding the perceived needs, barriers and facilitators regarding the diet, physical activity, cognition and psychological well-being from the perspective of patients, their carers and HCPs. Results: In total, 38 patients, 34 carers and 38 HCPs were included. Nutrition: For patients and carers, the main needs to adhere to the diet included learning more about nutrients and minerals. For patients, the main barrier was not being able to eat what they like. Physical activity: As needs it was reported information about type of appropriate physical activity, while fatigue was listed as the main barrier. For Cognitive and emotional state, it was perceived as positive for patients and carers perception but not for HCPs. The HCPs identified as needs working as a team, having access to specialised HCP and being able to talk to patients in private. Conclusions: Patients and their carers listed as needs guidance regarding nutrition and physical activity but were positive with their cognitive and emotional state. The HCPs corroborated these needs and emphasised the importance of teamwork and expert support.

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organization
publishing date
type
Contribution to journal
publication status
epub
subject
keywords
cognition, haemodialysis, nutrition, physical activity, psychological well-being
in
Journal of Clinical Nursing
pages
1 - 14
publisher
Wiley-Blackwell
external identifiers
  • pmid:37828851
  • scopus:85173798755
ISSN
0962-1067
DOI
10.1111/jocn.16910
language
English
LU publication?
yes
additional info
Publisher Copyright: © 2023 The Authors. Journal of Clinical Nursing published by John Wiley & Sons Ltd.
id
cc455b05-a6e7-4b56-9027-12716a09bb23
date added to LUP
2023-11-21 11:35:26
date last changed
2024-04-18 15:04:08
@article{cc455b05-a6e7-4b56-9027-12716a09bb23,
  abstract     = {{<p>Background: Malnutrition, sedentary lifestyle, cognitive dysfunction and poor psychological well-being are often reported in patients on haemodialysis (HD). Aims: We aimed to explore needs, barriers and facilitators—as perceived by patients, their carers, and healthcare professionals (HCPs) for increasing the adherence to the diet, to physical activity and cognition and psychological well-being. Methods: This is an observational cross-sectional study following the STROBE statement. This study is part of an ERASMUS+ project, GoodRENal—aiming to develop digital tools as an educational approach to patients on HD. For that, the GoodRENal comprises HD centers located in four Belgium, Greece, Spain and Sweden. Exploratory questionnaires were developed regarding the perceived needs, barriers and facilitators regarding the diet, physical activity, cognition and psychological well-being from the perspective of patients, their carers and HCPs. Results: In total, 38 patients, 34 carers and 38 HCPs were included. Nutrition: For patients and carers, the main needs to adhere to the diet included learning more about nutrients and minerals. For patients, the main barrier was not being able to eat what they like. Physical activity: As needs it was reported information about type of appropriate physical activity, while fatigue was listed as the main barrier. For Cognitive and emotional state, it was perceived as positive for patients and carers perception but not for HCPs. The HCPs identified as needs working as a team, having access to specialised HCP and being able to talk to patients in private. Conclusions: Patients and their carers listed as needs guidance regarding nutrition and physical activity but were positive with their cognitive and emotional state. The HCPs corroborated these needs and emphasised the importance of teamwork and expert support.</p>}},
  author       = {{Mesa-Gresa, Patricia and Avesani, Carla Maria and Clyne, Naomi and García-Testal, Alicia and Kouidi, Evangelia and Van Craenenbroeck, Amaryllis H. and Lindholm, Bengt and Lozano-Quilis, Jose Antonio and Marin, Alexandra Elena and García-Maset, Rafael and Yang, Kevin and Segura-Ortí, Eva}},
  issn         = {{0962-1067}},
  keywords     = {{cognition; haemodialysis; nutrition; physical activity; psychological well-being}},
  language     = {{eng}},
  pages        = {{1--14}},
  publisher    = {{Wiley-Blackwell}},
  series       = {{Journal of Clinical Nursing}},
  title        = {{Needs, barriers and facilitators for a healthier lifestyle in haemodialysis patients : The GoodRENal project}},
  url          = {{http://dx.doi.org/10.1111/jocn.16910}},
  doi          = {{10.1111/jocn.16910}},
  year         = {{2023}},
}