Everyday life when growing up with a mother with an intellectual or developmental disability : Four retrospective life-stories
Weiber, Ingrid LU ; Tengland, Per Anders LU ; Berglund, Johan Sanmartin LU and Eklund, Mona LU
(2020)
In Scandinavian Journal of Occupational Therapy
27(6).
p.418-430
- Abstract
Background: The voices of those who have grown up in a family with maternal intellectual or developmental disability (IDD) are valuable for gaining an understanding of their situation, which is essential in order to be able to support these families and avoid potentially detrimental situations. Aim: The study aim was to describe the experience of having grown up in a family where the mother has an IDD, with a focus on everyday life and perceived health consequences in adult life. Method: A qualitative method with retrospective narrative interviews and narrative content analysis was chosen. In-depth interviews were performed with four women who had experiences of a childhood with maternal IDD. Findings: Four themes emerged: Living under... (More)
Background: The voices of those who have grown up in a family with maternal intellectual or developmental disability (IDD) are valuable for gaining an understanding of their situation, which is essential in order to be able to support these families and avoid potentially detrimental situations. Aim: The study aim was to describe the experience of having grown up in a family where the mother has an IDD, with a focus on everyday life and perceived health consequences in adult life. Method: A qualitative method with retrospective narrative interviews and narrative content analysis was chosen. In-depth interviews were performed with four women who had experiences of a childhood with maternal IDD. Findings: Four themes emerged: Living under adverse circumstances; Dealing with one’s everyday life situation; Receiving insufficient support and wishing for more; and The echo from childhood into adult life. The findings revealed a distressing childhood, characterized by neglect, abuse, anxiety, and overburdening responsibilities, and also endeavors to keep the family situation a secret, while at the same time wanting the adult world to react. Discussion: The findings can hopefully stimulate occupational therapists and other professionals to more effectively identify the situation of these children and provide support to prevent adverse future health conditions and poor well-being.
(Less)
- author
- Weiber, Ingrid
LU
; Tengland, Per Anders
LU
; Berglund, Johan Sanmartin
LU
and Eklund, Mona
LU
- organization
- publishing date
- 2020
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- activity, Childhood experiences, developmental disability, intellectual disability, maternal, qualitative interviews, support
- in
- Scandinavian Journal of Occupational Therapy
- volume
- 27
- issue
- 6
- pages
- 418 - 430
- publisher
- Taylor & Francis
- external identifiers
-
- pmid:30661438
- scopus:85060351074
- ISSN
- 1103-8128
- DOI
- 10.1080/11038128.2018.1554087
- language
- English
- LU publication?
- yes
- id
- d28f73bf-5210-4ef3-ace2-346329a58dd6
- date added to LUP
- 2019-02-04 12:45:29
- date last changed
- 2024-04-30 00:02:02
@article{d28f73bf-5210-4ef3-ace2-346329a58dd6,
abstract = {{<p>Background: The voices of those who have grown up in a family with maternal intellectual or developmental disability (IDD) are valuable for gaining an understanding of their situation, which is essential in order to be able to support these families and avoid potentially detrimental situations. Aim: The study aim was to describe the experience of having grown up in a family where the mother has an IDD, with a focus on everyday life and perceived health consequences in adult life. Method: A qualitative method with retrospective narrative interviews and narrative content analysis was chosen. In-depth interviews were performed with four women who had experiences of a childhood with maternal IDD. Findings: Four themes emerged: Living under adverse circumstances; Dealing with one’s everyday life situation; Receiving insufficient support and wishing for more; and The echo from childhood into adult life. The findings revealed a distressing childhood, characterized by neglect, abuse, anxiety, and overburdening responsibilities, and also endeavors to keep the family situation a secret, while at the same time wanting the adult world to react. Discussion: The findings can hopefully stimulate occupational therapists and other professionals to more effectively identify the situation of these children and provide support to prevent adverse future health conditions and poor well-being.</p>}},
author = {{Weiber, Ingrid and Tengland, Per Anders and Berglund, Johan Sanmartin and Eklund, Mona}},
issn = {{1103-8128}},
keywords = {{activity; Childhood experiences; developmental disability; intellectual disability; maternal; qualitative interviews; support}},
language = {{eng}},
number = {{6}},
pages = {{418--430}},
publisher = {{Taylor & Francis}},
series = {{Scandinavian Journal of Occupational Therapy}},
title = {{Everyday life when growing up with a mother with an intellectual or developmental disability : Four retrospective life-stories}},
url = {{http://dx.doi.org/10.1080/11038128.2018.1554087}},
doi = {{10.1080/11038128.2018.1554087}},
volume = {{27}},
year = {{2020}},
}