Stroke survivors’ preferences regarding study participation in rehabilitation research
Carlstedt, Emma LU ; Månsson Lexell, Eva LU
; Ståhl, Agneta
LU
; Lindgren, Arne
LU
and Iwarsson, Susanne
LU
(2022)
In BMC Medical Research Methodology
22(1).
- Abstract
Background: To pursue high quality research, successful participant recruitment is essential, but recruitment rates are often low. This is specifically true in target populations with impairments, for instance, among stroke survivors. Previous studies focusing on recruitment have mainly relied on information from professionals, and there is therefore a need to contribute with new methodological insights to how potential rehabilitation research participants describe their interest and preferences to participate in research. The purpose of this study was to generate knowledge about stroke survivors’ interest in participating in rehabilitation research, reasons for being interested or not, and preferred forms and foci of rehabilitation... (More)
Background: To pursue high quality research, successful participant recruitment is essential, but recruitment rates are often low. This is specifically true in target populations with impairments, for instance, among stroke survivors. Previous studies focusing on recruitment have mainly relied on information from professionals, and there is therefore a need to contribute with new methodological insights to how potential rehabilitation research participants describe their interest and preferences to participate in research. The purpose of this study was to generate knowledge about stroke survivors’ interest in participating in rehabilitation research, reasons for being interested or not, and preferred forms and foci of rehabilitation interventions. An additional aim was to describe preferences regarding survey administration modes and processes for recruitment to studies. Method: This cross-sectional study recruited Swedish residents who had sustained a stroke, initially by using advertisement on the National Stroke Association’s website, flyers posted at local occupational and physical therapy offices and at local stroke/senior organization meetings. Secondly, participants were recruited through a local stroke register. The survey, administered either in a paper form returned by postal mail; online or as a phone interview with 128 stroke survivors. Results: Most of the participants were interested in participating in rehabilitation research, particularly younger persons (p = 0.001) and those closer to stroke onset (p = 0.047). Contribution to research, possibility to try new rehabilitation interventions and meeting others in the same situation were reasons that attracted an interest to participate. Other important aspects were related to motivation, individual needs, as well as how skilled the people who provided the intervention were. Participants preferred group-based programs, and programs focusing on regaining lost functions were highly requested. A majority wanted to be contacted through postal mail (70%) and most of them (90%) used the paper form to respond to the survey. Conclusions: A range of personal and external aspects, including challenges related to digitized administration modes, should be considered to achieve high participation rates in rehabilitation research targeting stroke survivors. The importance of addressing individual needs and prerequisites in an individualized manner should not be underestimated and might be a useful strategy to recruitment success.
(Less)
- author
- Carlstedt, Emma
LU
; Månsson Lexell, Eva
LU
; Ståhl, Agneta
LU
; Lindgren, Arne
LU
and Iwarsson, Susanne
LU
- organization
- publishing date
- 2022
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- Participants’ recruitment, Recruitment facilitators, Rehabilitation, Survey administration modes; users’ perspective
- in
- BMC Medical Research Methodology
- volume
- 22
- issue
- 1
- article number
- 36
- publisher
- BioMed Central (BMC)
- external identifiers
-
- scopus:85123905548
- pmid:35094690
- ISSN
- 1471-2288
- DOI
- 10.1186/s12874-022-01521-z
- project
- Activity and Participation Ten Years after Stroke
- language
- English
- LU publication?
- yes
- id
- d53d0319-be79-4c26-89d2-59bdc2c58f4e
- date added to LUP
- 2022-04-06 14:56:23
- date last changed
- 2024-06-20 00:03:31
@article{d53d0319-be79-4c26-89d2-59bdc2c58f4e,
abstract = {{<p>Background: To pursue high quality research, successful participant recruitment is essential, but recruitment rates are often low. This is specifically true in target populations with impairments, for instance, among stroke survivors. Previous studies focusing on recruitment have mainly relied on information from professionals, and there is therefore a need to contribute with new methodological insights to how potential rehabilitation research participants describe their interest and preferences to participate in research. The purpose of this study was to generate knowledge about stroke survivors’ interest in participating in rehabilitation research, reasons for being interested or not, and preferred forms and foci of rehabilitation interventions. An additional aim was to describe preferences regarding survey administration modes and processes for recruitment to studies. Method: This cross-sectional study recruited Swedish residents who had sustained a stroke, initially by using advertisement on the National Stroke Association’s website, flyers posted at local occupational and physical therapy offices and at local stroke/senior organization meetings. Secondly, participants were recruited through a local stroke register. The survey, administered either in a paper form returned by postal mail; online or as a phone interview with 128 stroke survivors. Results: Most of the participants were interested in participating in rehabilitation research, particularly younger persons (p = 0.001) and those closer to stroke onset (p = 0.047). Contribution to research, possibility to try new rehabilitation interventions and meeting others in the same situation were reasons that attracted an interest to participate. Other important aspects were related to motivation, individual needs, as well as how skilled the people who provided the intervention were. Participants preferred group-based programs, and programs focusing on regaining lost functions were highly requested. A majority wanted to be contacted through postal mail (70%) and most of them (90%) used the paper form to respond to the survey. Conclusions: A range of personal and external aspects, including challenges related to digitized administration modes, should be considered to achieve high participation rates in rehabilitation research targeting stroke survivors. The importance of addressing individual needs and prerequisites in an individualized manner should not be underestimated and might be a useful strategy to recruitment success.</p>}},
author = {{Carlstedt, Emma and Månsson Lexell, Eva and Ståhl, Agneta and Lindgren, Arne and Iwarsson, Susanne}},
issn = {{1471-2288}},
keywords = {{Participants’ recruitment; Recruitment facilitators; Rehabilitation; Survey administration modes; users’ perspective}},
language = {{eng}},
number = {{1}},
publisher = {{BioMed Central (BMC)}},
series = {{BMC Medical Research Methodology}},
title = {{Stroke survivors’ preferences regarding study participation in rehabilitation research}},
url = {{http://dx.doi.org/10.1186/s12874-022-01521-z}},
doi = {{10.1186/s12874-022-01521-z}},
volume = {{22}},
year = {{2022}},
}