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Parents experience a sense of guilt when their newborn is diagnosed small for gestational age, SGA. A grounded theory study in Sweden

Dykes, Charlotta LU ; Hellman, Carola ; Funkquist, Eva Lotta and Bramhagen, Ann Cathrine LU (2022) In Journal of Pediatric Nursing 62. p.8-15
Abstract

Background: To become a parent of a child who is born small for gestational age can lead to challenges in addition to the newly acquired parenting role. There is currently a lack of knowledge regarding parents' experiences of having a child born small for gestational age. Purpose: The purpose of this study was to describe the experience of becoming a parent of a child small for gestational age Design and method: A qualitative inductive approach was chosen with grounded theory as a method, a strategic selection was used and individual interviews with open questions were performed. Results: The results showed that the parents expressed guilt over the child's size and focused on the ability to nourish their child to keep their unexpectedly... (More)

Background: To become a parent of a child who is born small for gestational age can lead to challenges in addition to the newly acquired parenting role. There is currently a lack of knowledge regarding parents' experiences of having a child born small for gestational age. Purpose: The purpose of this study was to describe the experience of becoming a parent of a child small for gestational age Design and method: A qualitative inductive approach was chosen with grounded theory as a method, a strategic selection was used and individual interviews with open questions were performed. Results: The results showed that the parents expressed guilt over the child's size and focused on the ability to nourish their child to keep their unexpectedly small child alive. An experienced concern about the child's food intake could be seen throughout the entire interview material and the need for information was great. A common experience of the parents was that constant feeding of the child dominates their lives. Conclusion: The conclusion is that the unexpectedly small size of the child awakens the parent's instinct to provide life-sustaining care and the parents need increased support and more information around the child's condition. This requires well-trained professionals, because parents to children born SGA often harbour feelings of unpreparedness and guilt. Practice implications: Increased understanding and knowledge about the parents' experience of having a child born SGA, healthcare services can optimize the potential for better attachment between parent and child as well as offer appropriate support.

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author
; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Experience, Grounded theory, Infant, Parent, Small for gestational age (SGA)
in
Journal of Pediatric Nursing
volume
62
pages
8 - 15
publisher
Elsevier
external identifiers
  • scopus:85110449916
  • pmid:34253385
ISSN
0882-5963
DOI
10.1016/j.pedn.2021.06.017
language
English
LU publication?
yes
id
dcf497be-0376-4486-b4aa-bdafa3542bdb
date added to LUP
2021-09-07 10:43:23
date last changed
2024-06-16 18:30:06
@article{dcf497be-0376-4486-b4aa-bdafa3542bdb,
  abstract     = {{<p>Background: To become a parent of a child who is born small for gestational age can lead to challenges in addition to the newly acquired parenting role. There is currently a lack of knowledge regarding parents' experiences of having a child born small for gestational age. Purpose: The purpose of this study was to describe the experience of becoming a parent of a child small for gestational age Design and method: A qualitative inductive approach was chosen with grounded theory as a method, a strategic selection was used and individual interviews with open questions were performed. Results: The results showed that the parents expressed guilt over the child's size and focused on the ability to nourish their child to keep their unexpectedly small child alive. An experienced concern about the child's food intake could be seen throughout the entire interview material and the need for information was great. A common experience of the parents was that constant feeding of the child dominates their lives. Conclusion: The conclusion is that the unexpectedly small size of the child awakens the parent's instinct to provide life-sustaining care and the parents need increased support and more information around the child's condition. This requires well-trained professionals, because parents to children born SGA often harbour feelings of unpreparedness and guilt. Practice implications: Increased understanding and knowledge about the parents' experience of having a child born SGA, healthcare services can optimize the potential for better attachment between parent and child as well as offer appropriate support.</p>}},
  author       = {{Dykes, Charlotta and Hellman, Carola and Funkquist, Eva Lotta and Bramhagen, Ann Cathrine}},
  issn         = {{0882-5963}},
  keywords     = {{Experience; Grounded theory; Infant; Parent; Small for gestational age (SGA)}},
  language     = {{eng}},
  pages        = {{8--15}},
  publisher    = {{Elsevier}},
  series       = {{Journal of Pediatric Nursing}},
  title        = {{Parents experience a sense of guilt when their newborn is diagnosed small for gestational age, SGA. A grounded theory study in Sweden}},
  url          = {{http://dx.doi.org/10.1016/j.pedn.2021.06.017}},
  doi          = {{10.1016/j.pedn.2021.06.017}},
  volume       = {{62}},
  year         = {{2022}},
}