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Parents' experience of having a child with autism and learning disabilities living in a group home: A case study.

Benderix, Ylva LU ; Nordström, Berit LU and Sivberg, Bengt LU (2006) In Autism 10(6). p.629-641
Abstract
Some children with autism and learning disabilities also

have aberrant behaviours that are difficult to regulate and stressful for

both the child and family members. This case study concerns experiences

of 10 parents from five families before and 2 years after entrusting

their 10- to 11-year-old child with autism to a group home.

Hermeneutic phenomenological analysis of narrative interviews with

the parents before the child’s moving showed them experiencing grief

and sorrow, total exhaustion because of inability to regulate their

child’s behaviours, social isolation, and negative effects on the child’s

siblings, but experiencing themselves as more sympathetic... (More)
Some children with autism and learning disabilities also

have aberrant behaviours that are difficult to regulate and stressful for

both the child and family members. This case study concerns experiences

of 10 parents from five families before and 2 years after entrusting

their 10- to 11-year-old child with autism to a group home.

Hermeneutic phenomenological analysis of narrative interviews with

the parents before the child’s moving showed them experiencing grief

and sorrow, total exhaustion because of inability to regulate their

child’s behaviours, social isolation, and negative effects on the child’s

siblings, but experiencing themselves as more sympathetic than previously

towards other people with problems. Two years later they experienced

relief for the family due to the group home arrangement and

the child’s improvement, but with an ethical dilemma which made

them feel guilty, despite increased hope for the future. Some also felt

unhappy with the staff situation at the group home. (Less)
Please use this url to cite or link to this publication:
author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
respite, parents, group home, exhaustion, autism, Sweden
in
Autism
volume
10
issue
6
pages
629 - 641
publisher
SAGE Publications Inc.
external identifiers
  • wos:000242341500009
  • scopus:33750215796
ISSN
1362-3613
DOI
10.1177/1362361307070902
language
English
LU publication?
yes
id
df0bc089-47a5-482c-a7a5-8b0daa535c80 (old id 163390)
date added to LUP
2007-07-23 13:17:56
date last changed
2019-05-14 03:04:41
@article{df0bc089-47a5-482c-a7a5-8b0daa535c80,
  abstract     = {Some children with autism and learning disabilities also<br/><br>
have aberrant behaviours that are difficult to regulate and stressful for<br/><br>
both the child and family members. This case study concerns experiences<br/><br>
of 10 parents from five families before and 2 years after entrusting<br/><br>
their 10- to 11-year-old child with autism to a group home.<br/><br>
Hermeneutic phenomenological analysis of narrative interviews with<br/><br>
the parents before the child’s moving showed them experiencing grief<br/><br>
and sorrow, total exhaustion because of inability to regulate their<br/><br>
child’s behaviours, social isolation, and negative effects on the child’s<br/><br>
siblings, but experiencing themselves as more sympathetic than previously<br/><br>
towards other people with problems. Two years later they experienced<br/><br>
relief for the family due to the group home arrangement and<br/><br>
the child’s improvement, but with an ethical dilemma which made<br/><br>
them feel guilty, despite increased hope for the future. Some also felt<br/><br>
unhappy with the staff situation at the group home.},
  author       = {Benderix, Ylva and Nordström, Berit and Sivberg, Bengt},
  issn         = {1362-3613},
  keyword      = {respite,parents,group home,exhaustion,autism,Sweden},
  language     = {eng},
  number       = {6},
  pages        = {629--641},
  publisher    = {SAGE Publications Inc.},
  series       = {Autism},
  title        = {Parents' experience of having a child with autism and learning disabilities living in a group home: A case study.},
  url          = {http://dx.doi.org/10.1177/1362361307070902},
  volume       = {10},
  year         = {2006},
}