Skip to main content

Lund University Publications

LUND UNIVERSITY LIBRARIES

Stakeholder perspectives on needs and priorities in home-based stroke rehabilitation : A concept mapping study

Elf, Marie ; de Vries, Laila LU ; Smith, Frida ; Pessah-Rasmussen, Hélène LU ; Ytterberg, Charlotte and Kylén, Maya LU orcid (2025) In Wellbeing, Space and Society 10.
Abstract

Despite growing emphasis on home-based rehabilitation following stroke, there remains limited understanding of how to effectively tailor services to individual needs. This study employed concept mapping to explore diverse stakeholder perspectives on adapting home-based rehabilitation to better support the recovery process after stroke. Through this mixed-methods participatory approach, we engaged 89 stakeholders, including stroke survivors, significant others, healthcare professionals, managers, and architects. Participants generated, sorted, and rated statements about what matters most in home-based stroke rehabilitation. A hierarchical cluster analysis was conducted to organize the data into concepts. Five clusters were identified: 1)... (More)

Despite growing emphasis on home-based rehabilitation following stroke, there remains limited understanding of how to effectively tailor services to individual needs. This study employed concept mapping to explore diverse stakeholder perspectives on adapting home-based rehabilitation to better support the recovery process after stroke. Through this mixed-methods participatory approach, we engaged 89 stakeholders, including stroke survivors, significant others, healthcare professionals, managers, and architects. Participants generated, sorted, and rated statements about what matters most in home-based stroke rehabilitation. A hierarchical cluster analysis was conducted to organize the data into concepts. Five clusters were identified: 1) social support at home and beyond; 2) professional competence; 3) supportive home environment; 4) teamwork and resources; and 5) patient involvement. Patient involvement was rated highest for importance and feasibility, followed by professional competence. Specifically, stakeholders emphasized that rehabilitation should feel meaningful and be tailored to the patient's needs. No generated ideas from the cluster “supportive home environment” were found in the go-zone, and adapting rehabilitation to diverse home environments was recognized as crucial but hard to implement. The findings underscore the need for individualized, context-sensitive approaches and suggest that strengthening professional competence, particularly in navigating diverse environments and engaging support networks, will be essential to translating person-centered principles into everyday rehabilitation practice.

(Less)
Please use this url to cite or link to this publication:
author
; ; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Environmental resources, Participatory method, Patient involvement, Person-centered care, Rehabilitation, Specialized care
in
Wellbeing, Space and Society
volume
10
article number
100335
publisher
Elsevier
external identifiers
  • scopus:105024917681
ISSN
2666-5581
DOI
10.1016/j.wss.2025.100335
language
English
LU publication?
yes
additional info
Publisher Copyright: © 2025 The Authors.
id
e2e06bdf-13c2-4401-9816-b5b76190c6ce
date added to LUP
2026-03-10 13:56:16
date last changed
2026-03-10 14:34:02
@article{e2e06bdf-13c2-4401-9816-b5b76190c6ce,
  abstract     = {{<p>Despite growing emphasis on home-based rehabilitation following stroke, there remains limited understanding of how to effectively tailor services to individual needs. This study employed concept mapping to explore diverse stakeholder perspectives on adapting home-based rehabilitation to better support the recovery process after stroke. Through this mixed-methods participatory approach, we engaged 89 stakeholders, including stroke survivors, significant others, healthcare professionals, managers, and architects. Participants generated, sorted, and rated statements about what matters most in home-based stroke rehabilitation. A hierarchical cluster analysis was conducted to organize the data into concepts. Five clusters were identified: 1) social support at home and beyond; 2) professional competence; 3) supportive home environment; 4) teamwork and resources; and 5) patient involvement. Patient involvement was rated highest for importance and feasibility, followed by professional competence. Specifically, stakeholders emphasized that rehabilitation should feel meaningful and be tailored to the patient's needs. No generated ideas from the cluster “supportive home environment” were found in the go-zone, and adapting rehabilitation to diverse home environments was recognized as crucial but hard to implement. The findings underscore the need for individualized, context-sensitive approaches and suggest that strengthening professional competence, particularly in navigating diverse environments and engaging support networks, will be essential to translating person-centered principles into everyday rehabilitation practice.</p>}},
  author       = {{Elf, Marie and de Vries, Laila and Smith, Frida and Pessah-Rasmussen, Hélène and Ytterberg, Charlotte and Kylén, Maya}},
  issn         = {{2666-5581}},
  keywords     = {{Environmental resources; Participatory method; Patient involvement; Person-centered care; Rehabilitation; Specialized care}},
  language     = {{eng}},
  month        = {{12}},
  publisher    = {{Elsevier}},
  series       = {{Wellbeing, Space and Society}},
  title        = {{Stakeholder perspectives on needs and priorities in home-based stroke rehabilitation : A concept mapping study}},
  url          = {{http://dx.doi.org/10.1016/j.wss.2025.100335}},
  doi          = {{10.1016/j.wss.2025.100335}},
  volume       = {{10}},
  year         = {{2025}},
}