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Life satisfaction and adaptation in persons with Parkinson’s disease — A qualitative study

Rosengren, Lina LU ; Forsberg, Anna LU ; Brogårdh, Christina LU and Lexell, Jan LU (2021) In International Journal of Environmental Research and Public Health 18(6).
Abstract

Persons with Parkinson’s disease (PD) need to adapt to their progressive disability to achieve and maintain a high degree of life satisfaction (LS), but little is known about the meaning of LS and adaptation. This study aimed to gain an in-depth understanding of the meaning of LS and adaptation in persons with PD. Open-ended in-depth interviews were performed with 13 persons diagnosed with PD, 9 women, 3 men, and one non-binary person (mean age 54 years, mean time since diagnosis 3.4 years). The interviews were analyzed using a phenomenological–hermeneutic approach. The participants were in the process of adapting to their new health situation. There were two quite distinct groups: one that adapted through acceptance and one that... (More)

Persons with Parkinson’s disease (PD) need to adapt to their progressive disability to achieve and maintain a high degree of life satisfaction (LS), but little is known about the meaning of LS and adaptation. This study aimed to gain an in-depth understanding of the meaning of LS and adaptation in persons with PD. Open-ended in-depth interviews were performed with 13 persons diagnosed with PD, 9 women, 3 men, and one non-binary person (mean age 54 years, mean time since diagnosis 3.4 years). The interviews were analyzed using a phenomenological–hermeneutic approach. The participants were in the process of adapting to their new health situation. There were two quite distinct groups: one that adapted through acceptance and one that struggled to resist the disease and the profound impact it had on their lives. The thematic structural analysis covers eight themes illustrating the meaning of LS and adaptation, through either acceptance or resistance. Adaptation to PD involves a transitional process characterized by either acceptance or resistance, which influences a person’s LS. Acceptance makes LS possible, whereas resistance constitutes a behavioral barrier to adaptation and LS. Rehabilitation professionals need to understand this individual process to be able to support a person with PD to reach and maintain a high level of LS. Understanding the link between LS and adaptation can support rehabilitation professionals to provide targeted interventions for people with PD.

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Please use this url to cite or link to this publication:
author
; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Adaptation, Parkinson’s disease, Psychological, Qualitative research, Quality of life, Self-management, Sense of coherence
in
International Journal of Environmental Research and Public Health
volume
18
issue
6
article number
3308
publisher
MDPI AG
external identifiers
  • pmid:33806884
  • scopus:85102791160
ISSN
1661-7827
DOI
10.3390/ijerph18063308
language
English
LU publication?
yes
id
e50a74e9-b3d2-449f-a024-d7241c29a289
date added to LUP
2021-03-31 09:58:19
date last changed
2024-06-15 08:59:29
@article{e50a74e9-b3d2-449f-a024-d7241c29a289,
  abstract     = {{<p>Persons with Parkinson’s disease (PD) need to adapt to their progressive disability to achieve and maintain a high degree of life satisfaction (LS), but little is known about the meaning of LS and adaptation. This study aimed to gain an in-depth understanding of the meaning of LS and adaptation in persons with PD. Open-ended in-depth interviews were performed with 13 persons diagnosed with PD, 9 women, 3 men, and one non-binary person (mean age 54 years, mean time since diagnosis 3.4 years). The interviews were analyzed using a phenomenological–hermeneutic approach. The participants were in the process of adapting to their new health situation. There were two quite distinct groups: one that adapted through acceptance and one that struggled to resist the disease and the profound impact it had on their lives. The thematic structural analysis covers eight themes illustrating the meaning of LS and adaptation, through either acceptance or resistance. Adaptation to PD involves a transitional process characterized by either acceptance or resistance, which influences a person’s LS. Acceptance makes LS possible, whereas resistance constitutes a behavioral barrier to adaptation and LS. Rehabilitation professionals need to understand this individual process to be able to support a person with PD to reach and maintain a high level of LS. Understanding the link between LS and adaptation can support rehabilitation professionals to provide targeted interventions for people with PD.</p>}},
  author       = {{Rosengren, Lina and Forsberg, Anna and Brogårdh, Christina and Lexell, Jan}},
  issn         = {{1661-7827}},
  keywords     = {{Adaptation; Parkinson’s disease; Psychological; Qualitative research; Quality of life; Self-management; Sense of coherence}},
  language     = {{eng}},
  number       = {{6}},
  publisher    = {{MDPI AG}},
  series       = {{International Journal of Environmental Research and Public Health}},
  title        = {{Life satisfaction and adaptation in persons with Parkinson’s disease — A qualitative study}},
  url          = {{http://dx.doi.org/10.3390/ijerph18063308}},
  doi          = {{10.3390/ijerph18063308}},
  volume       = {{18}},
  year         = {{2021}},
}