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Living and ageing with stroke : an exploration of conditions influencing participation in social and leisure activities over 15 years

Norlander, Anna LU ; Iwarsson, Susanne LU ; Jönsson, Ann Cathrin LU ; Lindgren, Arne LU and Månsson Lexell, Eva LU (2018) In Brain Injury 32(7). p.858-866
Abstract

Objective: To explore conditions influencing long-term participation in social and leisure activities among people who have had a stroke. Methods: This study had a qualitative design, using a grounded theory methodology. Data collection was based on in-depth interviews performed 15 years after a first-ever stroke with 10 persons recruited from a population-based stroke cohort in Sweden. The study also included four family members. Findings: Over time, the stroke meant a changed but gradually normalised life situation. Participation in social and leisure activities was influenced by several transacting personal and contextual conditions changing with time and ageing. Central conditions that emerged from the analysis included personal... (More)

Objective: To explore conditions influencing long-term participation in social and leisure activities among people who have had a stroke. Methods: This study had a qualitative design, using a grounded theory methodology. Data collection was based on in-depth interviews performed 15 years after a first-ever stroke with 10 persons recruited from a population-based stroke cohort in Sweden. The study also included four family members. Findings: Over time, the stroke meant a changed but gradually normalised life situation. Participation in social and leisure activities was influenced by several transacting personal and contextual conditions changing with time and ageing. Central conditions that emerged from the analysis included personal characteristics, having social and supportive networks, being dependent on others, having access to valued activities and contexts, being motivated to participate, and perceiving sufficient capacity to participate. Conclusions: Long-term participation after stroke is possible despite impairments, but is influenced by a range of personal and environmental conditions. Stroke rehabilitation should be based on an awareness of this influence and address conditions that change with time and ageing during different phases after stroke.

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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Community integration, grounded theory, long-term stroke survivors, qualitative research, social participation
in
Brain Injury
volume
32
issue
7
pages
858 - 866
publisher
Taylor & Francis
external identifiers
  • scopus:85045756319
  • pmid:29672185
ISSN
0269-9052
DOI
10.1080/02699052.2018.1463561
language
English
LU publication?
yes
id
e9e38dfd-d541-4a90-b57b-dc548ef1b0cd
date added to LUP
2018-05-02 14:42:46
date last changed
2020-01-22 07:04:23
@article{e9e38dfd-d541-4a90-b57b-dc548ef1b0cd,
  abstract     = {<p>Objective: To explore conditions influencing long-term participation in social and leisure activities among people who have had a stroke. Methods: This study had a qualitative design, using a grounded theory methodology. Data collection was based on in-depth interviews performed 15 years after a first-ever stroke with 10 persons recruited from a population-based stroke cohort in Sweden. The study also included four family members. Findings: Over time, the stroke meant a changed but gradually normalised life situation. Participation in social and leisure activities was influenced by several transacting personal and contextual conditions changing with time and ageing. Central conditions that emerged from the analysis included personal characteristics, having social and supportive networks, being dependent on others, having access to valued activities and contexts, being motivated to participate, and perceiving sufficient capacity to participate. Conclusions: Long-term participation after stroke is possible despite impairments, but is influenced by a range of personal and environmental conditions. Stroke rehabilitation should be based on an awareness of this influence and address conditions that change with time and ageing during different phases after stroke.</p>},
  author       = {Norlander, Anna and Iwarsson, Susanne and Jönsson, Ann Cathrin and Lindgren, Arne and Månsson Lexell, Eva},
  issn         = {0269-9052},
  language     = {eng},
  month        = {06},
  number       = {7},
  pages        = {858--866},
  publisher    = {Taylor & Francis},
  series       = {Brain Injury},
  title        = {Living and ageing with stroke : an exploration of conditions influencing participation in social and leisure activities over 15 years},
  url          = {http://dx.doi.org/10.1080/02699052.2018.1463561},
  doi          = {10.1080/02699052.2018.1463561},
  volume       = {32},
  year         = {2018},
}