Advanced

Participation in social and leisure activities while re-constructing the self : understanding strategies used by stroke survivors from a long-term perspective

Norlander, Anna LU ; Iwarsson, Susanne LU ; Jönsson, Ann Cathrin LU ; Lindgren, Arne LU and Månsson Lexell, Eva LU (2021) In Disability and Rehabilitation
Abstract

Purpose: To further understand social and leisure (SL) participation after stroke and how it can be supported in a long-term perspective, this study aims to deepen the understanding of strategies used by long-term stroke survivors in relation to SL activities. Materials and methods: The study has a qualitative design, using a grounded theory approach, and is based on in-depth interviews with 10 persons who had a stroke 15 years ago and four of their family members. Results: The findings comprise nine different strategies used by the participants. These had two overarching purposes; to protect and re-construct the post-stroke self and to enable participation in valued SL activities despite challenges. The findings are summarized in one... (More)

Purpose: To further understand social and leisure (SL) participation after stroke and how it can be supported in a long-term perspective, this study aims to deepen the understanding of strategies used by long-term stroke survivors in relation to SL activities. Materials and methods: The study has a qualitative design, using a grounded theory approach, and is based on in-depth interviews with 10 persons who had a stroke 15 years ago and four of their family members. Results: The findings comprise nine different strategies used by the participants. These had two overarching purposes; to protect and re-construct the post-stroke self and to enable participation in valued SL activities despite challenges. The findings are summarized in one overarching theme: “Employing different strategies to balance costs and rewards of engagement in social and leisure activities”. Conclusions: Strategies for SL participation involves balancing different priorities in life and can change over time as they are continuously influenced by various personal and environmental conditions. These findings contribute to an improved understanding of why and how people hold on to activities, give up activities and find new activities after a stroke. It also highlights the need for a long-term perspective on stroke rehabilitation and support.IMPLICATIONS FOR REHABILITATION Re-engagement in social and leisure activities after stroke is a long-term process and various types of support may be needed during different stages of recovery and adaptation. Successful rehabilitation interventions build on an understanding of each individual’s priorities, goals and strategies and how these may change or manifest over time. Special attention should be given to the individual’s perception of costs and benefits in relation to engagement in activities, and the role that it has for the person’s identity. By providing knowledge and supporting the use of adequate coping strategies, rehabilitation professionals can help patients find a new and accepted post-stroke identity.

(Less)
Please use this url to cite or link to this publication:
author
; ; ; and
organization
publishing date
type
Contribution to journal
publication status
epub
subject
keywords
Behavior, community integration, coping, qualitative research, social reintegration
in
Disability and Rehabilitation
publisher
Taylor & Francis
external identifiers
  • scopus:85103269066
  • pmid:33779458
ISSN
0963-8288
DOI
10.1080/09638288.2021.1900418
language
English
LU publication?
yes
id
f00b0bc6-ad2b-4b0b-ae43-70ced5c06ddc
date added to LUP
2021-04-08 10:57:35
date last changed
2021-06-08 05:01:12
@article{f00b0bc6-ad2b-4b0b-ae43-70ced5c06ddc,
  abstract     = {<p>Purpose: To further understand social and leisure (SL) participation after stroke and how it can be supported in a long-term perspective, this study aims to deepen the understanding of strategies used by long-term stroke survivors in relation to SL activities. Materials and methods: The study has a qualitative design, using a grounded theory approach, and is based on in-depth interviews with 10 persons who had a stroke 15 years ago and four of their family members. Results: The findings comprise nine different strategies used by the participants. These had two overarching purposes; to protect and re-construct the post-stroke self and to enable participation in valued SL activities despite challenges. The findings are summarized in one overarching theme: “Employing different strategies to balance costs and rewards of engagement in social and leisure activities”. Conclusions: Strategies for SL participation involves balancing different priorities in life and can change over time as they are continuously influenced by various personal and environmental conditions. These findings contribute to an improved understanding of why and how people hold on to activities, give up activities and find new activities after a stroke. It also highlights the need for a long-term perspective on stroke rehabilitation and support.IMPLICATIONS FOR REHABILITATION Re-engagement in social and leisure activities after stroke is a long-term process and various types of support may be needed during different stages of recovery and adaptation. Successful rehabilitation interventions build on an understanding of each individual’s priorities, goals and strategies and how these may change or manifest over time. Special attention should be given to the individual’s perception of costs and benefits in relation to engagement in activities, and the role that it has for the person’s identity. By providing knowledge and supporting the use of adequate coping strategies, rehabilitation professionals can help patients find a new and accepted post-stroke identity.</p>},
  author       = {Norlander, Anna and Iwarsson, Susanne and Jönsson, Ann Cathrin and Lindgren, Arne and Månsson Lexell, Eva},
  issn         = {0963-8288},
  language     = {eng},
  publisher    = {Taylor & Francis},
  series       = {Disability and Rehabilitation},
  title        = {Participation in social and leisure activities while re-constructing the self : understanding strategies used by stroke survivors from a long-term perspective},
  url          = {http://dx.doi.org/10.1080/09638288.2021.1900418},
  doi          = {10.1080/09638288.2021.1900418},
  year         = {2021},
}