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- 2020
-
Willingness to donate genomic and other medical data : results from Germany
Voigt, Torsten H ; Holtz, Verena ; Niemiec, Emilia LU
; Howard, Heidi C
LU
; Middleton, Anna
and Prainsack, Barbara
(2020)
In European Journal of Human Genetics
28(8).
p.1000-1009
Mark
-
Transparency, consent and trust in the use of customers' data by an online genetic testing company : an Exploratory survey among 23andMe users
Raz, Aviad E. ; Niemiec, Emilia LU
; Howard, Heidi C.
LU
; Sterckx, Sigrid
; Cockbain, Julian
and Prainsack, Barbara
(2020)
In New Genetics and Society
p.1-24
Mark
-
Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data
Middleton, Anna ; Milne, Richard ; Howard, Heidi LU ; Niemiec, Emilia LU
; Robarts, Lauren
; Critchley, Christine
; Nicol, Dianne
; Prainsack, Barbara
; Atutornu, Jerome
and Vears, Danya F.
, et al.
(2020)
In European Journal of Human Genetics
28(4).
p.424-434
Mark
- Improving pandemic preparedness and management : Lessons learned and ways forward : independent expert report
- Global Public Perceptions of Genomic Data Sharing : What Shapes the Willingness to Donate DNA and Health Data?
- 2019
-
Attitudes of publics who are unwilling to donate DNA data for research
Middleton, Anna ; Milne, Richard ; Thorogood, Adrian ; Kleiderman, Erika ; Niemiec, Emilia LU
; Prainsack, Barbara
; Farley, Lauren
; Bevan, Paul
; Steed, Claire
and Smith, James
, et al.
(2019)
In European Journal of Medical Genetics
62(5).
p.316-323
Mark
-
Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia
Milne, Richard ; Morley, Katherine I. ; Howard, Heidi LU ; Niemiec, Emilia LU
; Nicol, Dianne
; Critchley, Christine
; Prainsack, Barbara
; Vears, Danya
; Smith, James
and Steed, Claire
, et al.
(2019)
In Human Genetics
138(11-12).
p.1237-1246
Mark
- 2018
-
'Your DNA, Your Say' : global survey gathering attitudes toward genomics: design, delivery and methods
Middleton, Anna ; Niemiec, Emilia LU
; Prainsack, Barbara
; Bobe, Jason
; Farley, Lauren
; Steed, Claire
; Smith, James
; Bevan, Paul
; Bonhomme, Natasha
and Kleiderman, Erika
, et al.
(2018)
In Personalized Medicine
15(4).
p.311-318
Mark