The Swedish Neonatal Quality Register – contents, completeness and validity
(2019) In Acta Paediatrica, International Journal of Paediatrics 108(8). p.1411-1418- Abstract
Aim: To describe the Swedish Neonatal Quality Register (SNQ) and to determine its completeness and agreement with other registers. Methods: SNQ collects data for infants admitted to neonatal units during the first four postnatal weeks. Completeness and registers’ agreement were determined cross-linking SNQ data with Swedish population registers (the Inpatient, Medical Birth and Cause of Death Registers) for a study period of five years. Results: In total, 84 712 infants were hospitalised. A total of 52 806 infants occurred in both SNQ and the population registers; 28 692 were only found in the population registers, and 3214 infants were only found in SNQ. Between gestational weeks 24–34, completeness of SNQ was 98–99%. Below and above... (More)
Aim: To describe the Swedish Neonatal Quality Register (SNQ) and to determine its completeness and agreement with other registers. Methods: SNQ collects data for infants admitted to neonatal units during the first four postnatal weeks. Completeness and registers’ agreement were determined cross-linking SNQ data with Swedish population registers (the Inpatient, Medical Birth and Cause of Death Registers) for a study period of five years. Results: In total, 84 712 infants were hospitalised. A total of 52 806 infants occurred in both SNQ and the population registers; 28 692 were only found in the population registers, and 3214 infants were only found in SNQ. Between gestational weeks 24–34, completeness of SNQ was 98–99%. Below and above these gestational ages, completeness was lower. Infants missing in SNQ were term or near-term in 99% of the cases, and their diagnoses indicated conditions managed in maternity units, or re-admissions for acute infections, managed in paediatric units. For most diagnoses, the agreement between SNQ and population registers was high, but some (bronchopulmonary dysplasia and grade of hypoxic-ischaemic encephalopathy) were often missing in the population registers. Conclusion: SNQ completeness and agreement against other registers, especially for preterm infants, is excellent. SNQ is a valid tool for benchmarking, quality improvement and research.
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- author
- Norman, Mikael ; Källén, Karin LU ; Wahlström, Erik and Håkansson, Stellan
- author collaboration
- organization
- publishing date
- 2019-04-24
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- Completeness, Newborn infant, Quality of neonatal care, Register, Validation
- in
- Acta Paediatrica, International Journal of Paediatrics
- volume
- 108
- issue
- 8
- pages
- 1411 - 1418
- publisher
- Wiley-Blackwell
- external identifiers
-
- pmid:31006126
- scopus:85066040317
- ISSN
- 0803-5253
- DOI
- 10.1111/apa.14823
- language
- English
- LU publication?
- yes
- id
- 32b088eb-6150-4208-a88e-36343072f5a5
- date added to LUP
- 2019-06-17 14:56:50
- date last changed
- 2024-09-18 00:50:32
@article{32b088eb-6150-4208-a88e-36343072f5a5,
abstract = {{<p>Aim: To describe the Swedish Neonatal Quality Register (SNQ) and to determine its completeness and agreement with other registers. Methods: SNQ collects data for infants admitted to neonatal units during the first four postnatal weeks. Completeness and registers’ agreement were determined cross-linking SNQ data with Swedish population registers (the Inpatient, Medical Birth and Cause of Death Registers) for a study period of five years. Results: In total, 84 712 infants were hospitalised. A total of 52 806 infants occurred in both SNQ and the population registers; 28 692 were only found in the population registers, and 3214 infants were only found in SNQ. Between gestational weeks 24–34, completeness of SNQ was 98–99%. Below and above these gestational ages, completeness was lower. Infants missing in SNQ were term or near-term in 99% of the cases, and their diagnoses indicated conditions managed in maternity units, or re-admissions for acute infections, managed in paediatric units. For most diagnoses, the agreement between SNQ and population registers was high, but some (bronchopulmonary dysplasia and grade of hypoxic-ischaemic encephalopathy) were often missing in the population registers. Conclusion: SNQ completeness and agreement against other registers, especially for preterm infants, is excellent. SNQ is a valid tool for benchmarking, quality improvement and research.</p>}},
author = {{Norman, Mikael and Källén, Karin and Wahlström, Erik and Håkansson, Stellan}},
issn = {{0803-5253}},
keywords = {{Completeness; Newborn infant; Quality of neonatal care; Register; Validation}},
language = {{eng}},
month = {{04}},
number = {{8}},
pages = {{1411--1418}},
publisher = {{Wiley-Blackwell}},
series = {{Acta Paediatrica, International Journal of Paediatrics}},
title = {{The Swedish Neonatal Quality Register – contents, completeness and validity}},
url = {{http://dx.doi.org/10.1111/apa.14823}},
doi = {{10.1111/apa.14823}},
volume = {{108}},
year = {{2019}},
}