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Rehabilitation at Home With the Development of a Sustainable Model Placing the Person's Needs and Environment at Heart : Protocol for a Multimethod Project

Elf, Marie ; Norin, Lizette LU ; Meijering, Louise ; Pessah-Rasmussen, Hélène LU ; Suhonen, Riitta ; Zingmark, Magnus LU orcid and Kylén, Maya LU orcid (2024) In JMIR Research Protocols 13.
Abstract

BACKGROUND: Each year, more than 1.5 million people in Europe have a stroke, and many experience disabilities leading to activity and participation restrictions. Home-based rehabilitation is the recommended approach for stroke rehabilitation, in line with the international shift to integrated care. Despite this, rehabilitation often focuses on the person's physical functions, not the whole life situation and opportunities to live an active life. Given that rehabilitation today is often provided in the person's home, there is a need to develop new models that consider the rehabilitation process as situated in the everyday living environment of persons with stroke. This project is grounded in experiences from our ongoing research, where... (More)

BACKGROUND: Each year, more than 1.5 million people in Europe have a stroke, and many experience disabilities leading to activity and participation restrictions. Home-based rehabilitation is the recommended approach for stroke rehabilitation, in line with the international shift to integrated care. Despite this, rehabilitation often focuses on the person's physical functions, not the whole life situation and opportunities to live an active life. Given that rehabilitation today is often provided in the person's home, there is a need to develop new models that consider the rehabilitation process as situated in the everyday living environment of persons with stroke. This project is grounded in experiences from our ongoing research, where we study the importance of the home environment for health and participation among persons with stroke, rehabilitated at home. This research has shown unmet needs, which lead to suboptimal rehabilitation outcomes. There is a need for studies on how to use environmental resources to optimize stroke rehabilitation in the home setting.

OBJECTIVE: The overarching objective of the project is to develop a new practice model for rehabilitation where the needs of the person are the starting point and where the environment is considered.

METHODS: The project will be conducted in partnership with persons with stroke, significant others, health care professionals, and care managers. Results from a literature review will form the base for interviews with the stakeholders, followed by co-designing workshops aiming to create a new practice model. Focus groups will be held to refine the outcome of the workshops to a practice model.

RESULTS: This 4-year project commenced in January 2023 and will continue until December 2026. The results of the literature review are, as of April 2024, currently being analyzed. The ethics application for the interviews and co-design phase was approved in October 2023 and data collection is ongoing during spring 2024. We aim to develop a practice model with stakeholders and refine it together with care managers and decision makers. The outcome is a new practice model and implementation plan, which will be achieved in autumn 2026.

CONCLUSIONS: The project contributes with a prominent missing puzzle to optimize the rehabilitation process by adding a strong focus on user engagement combined with integrating different aspects of the environment. The goal is to improve quality of life and increase reintegration in society for the large group of people living with the aftermath of a stroke. By co-designing with multiple stakeholders, we expect the model to be feasible and sustainable. The knowledge from the project will also contribute to an increased awareness of the importance of the physical environment for sustainable health care. The findings will lay the foundation for future upscaling initiatives.

INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/56996.

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author
; ; ; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Humans, Stroke Rehabilitation/methods, Home Care Services, Female, Male, Focus Groups
in
JMIR Research Protocols
volume
13
article number
e56996
publisher
JMIR Publications Inc.
external identifiers
  • scopus:85200855688
  • pmid:39042448
ISSN
1929-0748
DOI
10.2196/56996
project
Rehabilitation at home – development of a sustainable model, placing person’s needs and environmental resources at heart (InHome)
language
English
LU publication?
yes
additional info
©Marie Elf, Lizette Norin, Louise Meijering, Hélène Pessah-Rasmussen, Riitta Suhonen, Magnus Zingmark, Maya Kylén. Originally published in JMIR Research Protocols (https://www.researchprotocols.org), 23.07.2024.
id
3b3cea5b-0dba-4c84-aea6-7ca75fdab52a
date added to LUP
2024-08-22 13:53:15
date last changed
2024-09-06 05:13:34
@article{3b3cea5b-0dba-4c84-aea6-7ca75fdab52a,
  abstract     = {{<p>BACKGROUND: Each year, more than 1.5 million people in Europe have a stroke, and many experience disabilities leading to activity and participation restrictions. Home-based rehabilitation is the recommended approach for stroke rehabilitation, in line with the international shift to integrated care. Despite this, rehabilitation often focuses on the person's physical functions, not the whole life situation and opportunities to live an active life. Given that rehabilitation today is often provided in the person's home, there is a need to develop new models that consider the rehabilitation process as situated in the everyday living environment of persons with stroke. This project is grounded in experiences from our ongoing research, where we study the importance of the home environment for health and participation among persons with stroke, rehabilitated at home. This research has shown unmet needs, which lead to suboptimal rehabilitation outcomes. There is a need for studies on how to use environmental resources to optimize stroke rehabilitation in the home setting.</p><p>OBJECTIVE: The overarching objective of the project is to develop a new practice model for rehabilitation where the needs of the person are the starting point and where the environment is considered.</p><p>METHODS: The project will be conducted in partnership with persons with stroke, significant others, health care professionals, and care managers. Results from a literature review will form the base for interviews with the stakeholders, followed by co-designing workshops aiming to create a new practice model. Focus groups will be held to refine the outcome of the workshops to a practice model.</p><p>RESULTS: This 4-year project commenced in January 2023 and will continue until December 2026. The results of the literature review are, as of April 2024, currently being analyzed. The ethics application for the interviews and co-design phase was approved in October 2023 and data collection is ongoing during spring 2024. We aim to develop a practice model with stakeholders and refine it together with care managers and decision makers. The outcome is a new practice model and implementation plan, which will be achieved in autumn 2026.</p><p>CONCLUSIONS: The project contributes with a prominent missing puzzle to optimize the rehabilitation process by adding a strong focus on user engagement combined with integrating different aspects of the environment. The goal is to improve quality of life and increase reintegration in society for the large group of people living with the aftermath of a stroke. By co-designing with multiple stakeholders, we expect the model to be feasible and sustainable. The knowledge from the project will also contribute to an increased awareness of the importance of the physical environment for sustainable health care. The findings will lay the foundation for future upscaling initiatives.</p><p>INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/56996.</p>}},
  author       = {{Elf, Marie and Norin, Lizette and Meijering, Louise and Pessah-Rasmussen, Hélène and Suhonen, Riitta and Zingmark, Magnus and Kylén, Maya}},
  issn         = {{1929-0748}},
  keywords     = {{Humans; Stroke Rehabilitation/methods; Home Care Services; Female; Male; Focus Groups}},
  language     = {{eng}},
  month        = {{07}},
  publisher    = {{JMIR Publications Inc.}},
  series       = {{JMIR Research Protocols}},
  title        = {{Rehabilitation at Home With the Development of a Sustainable Model Placing the Person's Needs and Environment at Heart : Protocol for a Multimethod Project}},
  url          = {{http://dx.doi.org/10.2196/56996}},
  doi          = {{10.2196/56996}},
  volume       = {{13}},
  year         = {{2024}},
}