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"You child is just wonderful”: On ethics and access in research with children

Eldén, Sara LU (2013) In Journal of Comparative Social Work
Abstract
This article discuss the consequences of the ambiguous view of children in the ethical guidelines – the ambitions to “give voice” while also “protect” – with a point of departure taken in the Swedish context, and in an actual research process of a project on children and care. It shows how the regulation of informed consent through the parent compromises the ideals of child-centred research; firstly, by limiting the child’s possibility to opt in to research; secondly, by affecting the relationship between researcher, child and parent in the research encounter; and thirdly, by jeopardizing the child’s right to confidentiality. The author argues that we should view not only the child’s but also the adult’s consent as a “continuous... (More)
This article discuss the consequences of the ambiguous view of children in the ethical guidelines – the ambitions to “give voice” while also “protect” – with a point of departure taken in the Swedish context, and in an actual research process of a project on children and care. It shows how the regulation of informed consent through the parent compromises the ideals of child-centred research; firstly, by limiting the child’s possibility to opt in to research; secondly, by affecting the relationship between researcher, child and parent in the research encounter; and thirdly, by jeopardizing the child’s right to confidentiality. The author argues that we should view not only the child’s but also the adult’s consent as a “continuous negotiation” and discusses strategies for strengthening the child’s right to opt in and participate in research on equal terms. (Less)
Please use this url to cite or link to this publication:
author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
children, ethics, research ethics, qualitative methods
in
Journal of Comparative Social Work
issue
2
publisher
Universitetet i Nordland
ISSN
0809-9936
project
Relationer kring omsorg bortom familjen (FAS 2010-0505)
language
English
LU publication?
yes
id
53bf56aa-734e-4feb-91ff-011ce2107d63 (old id 4361868)
alternative location
http://jcsw.no/?page=issueContent&issue=issue12&section=articleContent&article=04
date added to LUP
2016-04-01 13:51:40
date last changed
2018-11-21 20:20:38
@article{53bf56aa-734e-4feb-91ff-011ce2107d63,
  abstract     = {{This article discuss the consequences of the ambiguous view of children in the ethical guidelines – the ambitions to “give voice” while also “protect” – with a point of departure taken in the Swedish context, and in an actual research process of a project on children and care. It shows how the regulation of informed consent through the parent compromises the ideals of child-centred research; firstly, by limiting the child’s possibility to opt in to research; secondly, by affecting the relationship between researcher, child and parent in the research encounter; and thirdly, by jeopardizing the child’s right to confidentiality. The author argues that we should view not only the child’s but also the adult’s consent as a “continuous negotiation” and discusses strategies for strengthening the child’s right to opt in and participate in research on equal terms.}},
  author       = {{Eldén, Sara}},
  issn         = {{0809-9936}},
  keywords     = {{children; ethics; research ethics; qualitative methods}},
  language     = {{eng}},
  number       = {{2}},
  publisher    = {{Universitetet i Nordland}},
  series       = {{Journal of Comparative Social Work}},
  title        = {{"You child is just wonderful”: On ethics and access in research with children}},
  url          = {{http://jcsw.no/?page=issueContent&issue=issue12&section=articleContent&article=04}},
  year         = {{2013}},
}