Health-related quality of life and scar satisfaction in a cohort of children operated on for sacrococcygeal teratoma
(2020) In Health and Quality of Life Outcomes 18(1).- Abstract
Aim: The aims of this study were to evaluate health-related quality of life (HRQoL) in children with sacrococcygeal teratoma and to explore the effect of the scar on physical, emotional and behavioral aspects. Methods: A cohort of children operated on for sacrococcygeal teratoma between 2000 and 2013 at Lund University Hospital, Sweden, and their parents were interviewed. HRQoL was evaluated with PedsQL, and scar satisfaction was estimated through Patient Observer Scar Assessment Score (POSA). Results: All eligible children (n = 17) were included (100% response rate). Median age was 7.3 years (range 3.5-16.0). Mean total PedsQL score was 92.3 (range 72.0 to 99.0). Patients with comorbidity scored lower (87.5) than those without (95.0)... (More)
Aim: The aims of this study were to evaluate health-related quality of life (HRQoL) in children with sacrococcygeal teratoma and to explore the effect of the scar on physical, emotional and behavioral aspects. Methods: A cohort of children operated on for sacrococcygeal teratoma between 2000 and 2013 at Lund University Hospital, Sweden, and their parents were interviewed. HRQoL was evaluated with PedsQL, and scar satisfaction was estimated through Patient Observer Scar Assessment Score (POSA). Results: All eligible children (n = 17) were included (100% response rate). Median age was 7.3 years (range 3.5-16.0). Mean total PedsQL score was 92.3 (range 72.0 to 99.0). Patients with comorbidity scored lower (87.5) than those without (95.0) (p < 0.05). Pain during sitting down was reported by two (20%) patients, and itching was reported by another two patients (20%) aged > 8 years. No children reported that they avoided situations due to the scar, and most (80% of children and 90% of parents) reported absent or only mild negative emotions when considering the scar. Conclusion: Children with sacrococcygeal teratoma had a good overall HRQoL, but comorbidity reduced the outcome. A few children reported scar-related impact on physical, behavioral and emotional aspects.
(Less)
- author
- Hambraeus, Mette
LU
; Hagander, Lars
LU
; Arnbjörnsson, Einar LU ; Börjesson, Anna LU and Stenström, Pernilla LU
- organization
- publishing date
- 2020
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- Children, Health-related quality of life, Sacrococcygeal teratoma, Scar
- in
- Health and Quality of Life Outcomes
- volume
- 18
- issue
- 1
- article number
- 102
- publisher
- BioMed Central (BMC)
- external identifiers
-
- pmid:32303229
- scopus:85083298169
- ISSN
- 1477-7525
- DOI
- 10.1186/s12955-020-01350-y
- language
- English
- LU publication?
- yes
- id
- 534afd12-88b0-4821-9138-e97852a55271
- date added to LUP
- 2020-04-30 08:18:19
- date last changed
- 2024-06-26 14:57:56
@article{534afd12-88b0-4821-9138-e97852a55271, abstract = {{<p>Aim: The aims of this study were to evaluate health-related quality of life (HRQoL) in children with sacrococcygeal teratoma and to explore the effect of the scar on physical, emotional and behavioral aspects. Methods: A cohort of children operated on for sacrococcygeal teratoma between 2000 and 2013 at Lund University Hospital, Sweden, and their parents were interviewed. HRQoL was evaluated with PedsQL, and scar satisfaction was estimated through Patient Observer Scar Assessment Score (POSA). Results: All eligible children (n = 17) were included (100% response rate). Median age was 7.3 years (range 3.5-16.0). Mean total PedsQL score was 92.3 (range 72.0 to 99.0). Patients with comorbidity scored lower (87.5) than those without (95.0) (p < 0.05). Pain during sitting down was reported by two (20%) patients, and itching was reported by another two patients (20%) aged > 8 years. No children reported that they avoided situations due to the scar, and most (80% of children and 90% of parents) reported absent or only mild negative emotions when considering the scar. Conclusion: Children with sacrococcygeal teratoma had a good overall HRQoL, but comorbidity reduced the outcome. A few children reported scar-related impact on physical, behavioral and emotional aspects.</p>}}, author = {{Hambraeus, Mette and Hagander, Lars and Arnbjörnsson, Einar and Börjesson, Anna and Stenström, Pernilla}}, issn = {{1477-7525}}, keywords = {{Children; Health-related quality of life; Sacrococcygeal teratoma; Scar}}, language = {{eng}}, number = {{1}}, publisher = {{BioMed Central (BMC)}}, series = {{Health and Quality of Life Outcomes}}, title = {{Health-related quality of life and scar satisfaction in a cohort of children operated on for sacrococcygeal teratoma}}, url = {{http://dx.doi.org/10.1186/s12955-020-01350-y}}, doi = {{10.1186/s12955-020-01350-y}}, volume = {{18}}, year = {{2020}}, }