Principles of Care for Acquired Hemophilia
(2021) In European Journal of Haematology 106(6). p.762-773- Abstract
OBJECTIVE: To establish clear priorities for the care of patients with acquired hemophilia A (AHA) by proposing 10 key principles of practical, holistic AHA management.
METHOD: These principles were developed by the Zürich Haemophilia Forum, an expert panel of European hemophilia specialists comprising physicians and nursing and laboratory specialists.
RESULTS: The 10 proposed principles for AHA care are as follows: 1) Improving initial diagnosis of AHA; 2) Differential diagnosis of AHA: laboratory assessment of patients with unusual bleeding; 3) Effective communication between laboratories, physicians, and specialists; 4) Improving clinical care: networking between healthcare professionals in the treating hospital and... (More)
OBJECTIVE: To establish clear priorities for the care of patients with acquired hemophilia A (AHA) by proposing 10 key principles of practical, holistic AHA management.
METHOD: These principles were developed by the Zürich Haemophilia Forum, an expert panel of European hemophilia specialists comprising physicians and nursing and laboratory specialists.
RESULTS: The 10 proposed principles for AHA care are as follows: 1) Improving initial diagnosis of AHA; 2) Differential diagnosis of AHA: laboratory assessment of patients with unusual bleeding; 3) Effective communication between laboratories, physicians, and specialists; 4) Improving clinical care: networking between healthcare professionals in the treating hospital and specialist hemophilia centers; 5) Comprehensive assessment of bleeding; 6) Appropriate use of bypassing agents; 7) Long-term follow-up and monitoring for efficacy and safety of immunosuppressive treatment; 8) Inpatient/outpatient settings; 9) Access to innovative and disruptive treatments; 10) Promotion of international collaborative research.
CONCLUSION: The proposed principles for holistic AHA care aim to ensure swift diagnosis and optimal patient management. Key to achieving this goal is training for healthcare personnel in non-specialist hospitals and collaboration between different specialists. We hope these principles will increase awareness of AHA in the wider medical community and catalyze efforts towards improving its practical, multidisciplinary management.
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- author
- Dolan, Gerry ; Benson, Gary ; Bowyer, Annette ; Eichler, Hermann ; Hermans, Cedric ; Jiménez-Yuste, Victor ; Ljung, Rolf LU ; Pollard, Debra ; Santagostino, Elena and Zupančić Šalek, Silva
- organization
- publishing date
- 2021-06-01
- type
- Contribution to journal
- publication status
- published
- subject
- in
- European Journal of Haematology
- volume
- 106
- issue
- 6
- pages
- 12 pages
- publisher
- Wiley-Blackwell
- external identifiers
-
- pmid:33527471
- scopus:85102631401
- ISSN
- 1600-0609
- DOI
- 10.1111/ejh.13592
- language
- English
- LU publication?
- yes
- id
- 5db0b2f3-9f17-461e-8edf-b65480177163
- date added to LUP
- 2021-02-07 15:39:26
- date last changed
- 2024-08-08 11:44:32
@article{5db0b2f3-9f17-461e-8edf-b65480177163, abstract = {{<p>OBJECTIVE: To establish clear priorities for the care of patients with acquired hemophilia A (AHA) by proposing 10 key principles of practical, holistic AHA management.</p><p>METHOD: These principles were developed by the Zürich Haemophilia Forum, an expert panel of European hemophilia specialists comprising physicians and nursing and laboratory specialists.</p><p>RESULTS: The 10 proposed principles for AHA care are as follows: 1) Improving initial diagnosis of AHA; 2) Differential diagnosis of AHA: laboratory assessment of patients with unusual bleeding; 3) Effective communication between laboratories, physicians, and specialists; 4) Improving clinical care: networking between healthcare professionals in the treating hospital and specialist hemophilia centers; 5) Comprehensive assessment of bleeding; 6) Appropriate use of bypassing agents; 7) Long-term follow-up and monitoring for efficacy and safety of immunosuppressive treatment; 8) Inpatient/outpatient settings; 9) Access to innovative and disruptive treatments; 10) Promotion of international collaborative research.</p><p>CONCLUSION: The proposed principles for holistic AHA care aim to ensure swift diagnosis and optimal patient management. Key to achieving this goal is training for healthcare personnel in non-specialist hospitals and collaboration between different specialists. We hope these principles will increase awareness of AHA in the wider medical community and catalyze efforts towards improving its practical, multidisciplinary management.</p>}}, author = {{Dolan, Gerry and Benson, Gary and Bowyer, Annette and Eichler, Hermann and Hermans, Cedric and Jiménez-Yuste, Victor and Ljung, Rolf and Pollard, Debra and Santagostino, Elena and Zupančić Šalek, Silva}}, issn = {{1600-0609}}, language = {{eng}}, month = {{06}}, number = {{6}}, pages = {{762--773}}, publisher = {{Wiley-Blackwell}}, series = {{European Journal of Haematology}}, title = {{Principles of Care for Acquired Hemophilia}}, url = {{http://dx.doi.org/10.1111/ejh.13592}}, doi = {{10.1111/ejh.13592}}, volume = {{106}}, year = {{2021}}, }