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Care as repair, but whose responsibility? : Front-line health workers’ resourcefulness in implementing a PMTCT tracing policy in Kenya

De Angeles, Katrine Judith Chamorro ; Storey, Simone ; Nordberg, Björn LU orcid ; Kaguiri, Eunice ; Dusabe-Richards, John ; Ekström, Anna Mia ; Were, Edwin ; Skovdal, Morten and Kågesten, Anna (2025) In SSM - Health Systems 2025(4).
Abstract
Defaulter tracing policies for Prevention of Mother-to-Child Transmission (PMTCT) services are vital for achieving the global goal of zero new HIV infections. However, little is known about their implementation. This qualitative study explores the role of tracers—community volunteers, retention workers, and mentor mothers—in implementing such policy across six facilities in Western Kenya. It uses the conceptual lens of 'repair work' to unveil their ‘everyday work in keeping systems going’ ensuring care delivery to women and their infants. Data were collected through 31 semi-structured interviews with tracers and PMTCT managers, observations, document reviews, and analyzed using thematic network analysis. Our findings reveal significant... (More)
Defaulter tracing policies for Prevention of Mother-to-Child Transmission (PMTCT) services are vital for achieving the global goal of zero new HIV infections. However, little is known about their implementation. This qualitative study explores the role of tracers—community volunteers, retention workers, and mentor mothers—in implementing such policy across six facilities in Western Kenya. It uses the conceptual lens of 'repair work' to unveil their ‘everyday work in keeping systems going’ ensuring care delivery to women and their infants. Data were collected through 31 semi-structured interviews with tracers and PMTCT managers, observations, document reviews, and analyzed using thematic network analysis. Our findings reveal significant variability in policy implementation, influenced by integration of PMTCT services to maternal and child health clinics and facility resources. Tracing and retaining women in PMTCT care heavily relied on tracers’ adaptive strategies and ingenuity to compensate – through repair work – for systemic shortcomings, resulting in the delivery of differentiated, person-centered care using social networks, personal funds and improvisations. Key challenges included inadequate remuneration, lack of institutional resources and support, and insufficient information and evaluation systems. Our results highlight the social nature of health systems and demonstrate the relevance of 'repair work' for health systems research, used in our paper to unveil the often-unrecognized efforts of tracers in maintaining PMTCT care continuity. To ensure sustainable and effective translation of policy into practice, policymakers, donors and program managers must allocate sufficient resources, and provide formal employment to tracers rather than relying on repair work to keep systems going. (Less)
Abstract (Swedish)
Defaulter tracing policies for Prevention of Mother-to-Child Transmission (PMTCT) services are vital for achieving the global goal of zero new HIV infections. However, little is known about their implementation. This qualitative study explores the role of tracers—community volunteers, retention workers, and mentor mothers—in implementing such policy across six facilities in Western Kenya. It uses the conceptual lens of ’repair work’ to unveil their ‘everyday work in keeping systems going’ ensuring care delivery to women and their infants. Data were collected through 31 semi-structured interviews with tracers and PMTCT managers, observations, document reviews, and analyzed using thematic network analysis. Our findings reveal significant... (More)
Defaulter tracing policies for Prevention of Mother-to-Child Transmission (PMTCT) services are vital for achieving the global goal of zero new HIV infections. However, little is known about their implementation. This qualitative study explores the role of tracers—community volunteers, retention workers, and mentor mothers—in implementing such policy across six facilities in Western Kenya. It uses the conceptual lens of ’repair work’ to unveil their ‘everyday work in keeping systems going’ ensuring care delivery to women and their infants. Data were collected through 31 semi-structured interviews with tracers and PMTCT managers, observations, document reviews, and analyzed using thematic network analysis. Our findings reveal significant variability in policy implementation, influenced by integration of PMTCT services to maternal and child health clinics and facility resources. Tracing and retaining women in PMTCT care heavily relied on tracers’ adaptive strategies and in genuity to compensate – through repair work – for systemic shortcomings, resulting in the delivery of differentiated, person-centered care using social networks, personal funds and improvisations. Key challenges included inadequate remuneration, lack of institutional resources and support, and insufficient information and evaluation systems. Our results highlight the social nature of health systems and demonstrate the relevance of ’repair work’ for health systems research, used in our paper to unveil the often-unrecognized efforts of tracers in maintaining PMTCT care continuity. To ensure sustainable and effective translation of policy into practice, policymakers, donors and program managers must allocate sufficient resources, and provide formal employment to tracers rather than relying on repair work to keep systems going. (Less)
Please use this url to cite or link to this publication:
author
; ; ; ; ; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
PMTCT, Defaulter tracing, Repair work, Care engagement, HIV, policy implementation, PMTCT, Defaulter tracing, Repair work, Care engagement, HIV, Policy implementation
in
SSM - Health Systems
volume
2025
issue
4
article number
100075
pages
12 pages
publisher
Elsevier
ISSN
2949-8562
DOI
10.1016/j.ssmhs.2025.100075
language
English
LU publication?
yes
id
60a98080-7ee8-4230-bea9-acba49a9f509
date added to LUP
2025-04-29 11:59:15
date last changed
2025-04-29 13:32:18
@article{60a98080-7ee8-4230-bea9-acba49a9f509,
  abstract     = {{Defaulter tracing policies for Prevention of Mother-to-Child Transmission (PMTCT) services are vital for achieving the global goal of zero new HIV infections. However, little is known about their implementation. This qualitative study explores the role of tracers—community volunteers, retention workers, and mentor mothers—in implementing such policy across six facilities in Western Kenya. It uses the conceptual lens of 'repair work' to unveil their ‘everyday work in keeping systems going’ ensuring care delivery to women and their infants. Data were collected through 31 semi-structured interviews with tracers and PMTCT managers, observations, document reviews, and analyzed using thematic network analysis. Our findings reveal significant variability in policy implementation, influenced by integration of PMTCT services to maternal and child health clinics and facility resources. Tracing and retaining women in PMTCT care heavily relied on tracers’ adaptive strategies and ingenuity to compensate – through repair work – for systemic shortcomings, resulting in the delivery of differentiated, person-centered care using social networks, personal funds and improvisations. Key challenges included inadequate remuneration, lack of institutional resources and support, and insufficient information and evaluation systems. Our results highlight the social nature of health systems and demonstrate the relevance of 'repair work' for health systems research, used in our paper to unveil the often-unrecognized efforts of tracers in maintaining PMTCT care continuity. To ensure sustainable and effective translation of policy into practice, policymakers, donors and program managers must allocate sufficient resources, and provide formal employment to tracers rather than relying on repair work to keep systems going.}},
  author       = {{De Angeles, Katrine Judith Chamorro and Storey, Simone and Nordberg, Björn and Kaguiri, Eunice and Dusabe-Richards, John and Ekström, Anna Mia and Were, Edwin and Skovdal, Morten and Kågesten, Anna}},
  issn         = {{2949-8562}},
  keywords     = {{PMTCT; Defaulter tracing; Repair work; Care engagement; HIV; policy implementation; PMTCT; Defaulter tracing; Repair work; Care engagement; HIV; Policy implementation}},
  language     = {{eng}},
  month        = {{04}},
  number       = {{4}},
  publisher    = {{Elsevier}},
  series       = {{SSM - Health Systems}},
  title        = {{Care as repair, but whose responsibility? : Front-line health workers’ resourcefulness in implementing a PMTCT tracing policy in Kenya}},
  url          = {{http://dx.doi.org/10.1016/j.ssmhs.2025.100075}},
  doi          = {{10.1016/j.ssmhs.2025.100075}},
  volume       = {{2025}},
  year         = {{2025}},
}