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Participatory Research Through Design for Societal Change–A Case Study of Co-Designing a Prototype for Enhanced Cognitive Accessibility of an eHealth Service

Jonsson, Marika ; Gustavsson, Catharina ; Gulliksen, Jan and Johansson, Stefan LU (2025) In International Journal of Human-Computer Interaction
Abstract

This study describes the development of a three-step method called Participatory Research through Design using a co-design and dialogue approach to enhance cognitive accessibility in eHealth services in public healthcare. The method is a combination of Participatory Design, Participatory Action Research and Research through Design (RtD). Together with participants with lived experiences of cognitive impairments we explored the existing personal eHealth services with Participatory Cognitive Barrier Walkthrough and co-designed a prototype for enhanced cognitive accessibility. We used an explorative study design constructing the prototype that presents the preferred state, where the participants’ contributions are embedded in the design... (More)

This study describes the development of a three-step method called Participatory Research through Design using a co-design and dialogue approach to enhance cognitive accessibility in eHealth services in public healthcare. The method is a combination of Participatory Design, Participatory Action Research and Research through Design (RtD). Together with participants with lived experiences of cognitive impairments we explored the existing personal eHealth services with Participatory Cognitive Barrier Walkthrough and co-designed a prototype for enhanced cognitive accessibility. We used an explorative study design constructing the prototype that presents the preferred state, where the participants’ contributions are embedded in the design (e.g., visualization of high-cost protection for healthcare, notifications, read aloud functionality, and photos of drugs). The ownership of the targeted eHealth services was outside the research project, and the co-designed prototype was used as a dialogue tool with stakeholders from the product owner perspective. We propose that our Participatory RtD approach enhances understanding of end-user perspectives in a given context and promote dialogue around complex eHealth services.

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author
; ; and
organization
publishing date
type
Contribution to journal
publication status
epub
subject
keywords
disabled populations, human-computer interaction theory, Interface design and evaluation methodologies, prototyping, user-centered design
in
International Journal of Human-Computer Interaction
publisher
Taylor & Francis
external identifiers
  • scopus:105025698878
ISSN
1044-7318
DOI
10.1080/10447318.2025.2601277
language
English
LU publication?
yes
id
8376b5c9-df75-485f-a2f1-34b91272bd7b
date added to LUP
2026-02-23 14:04:47
date last changed
2026-02-24 09:56:19
@article{8376b5c9-df75-485f-a2f1-34b91272bd7b,
  abstract     = {{<p>This study describes the development of a three-step method called Participatory Research through Design using a co-design and dialogue approach to enhance cognitive accessibility in eHealth services in public healthcare. The method is a combination of Participatory Design, Participatory Action Research and Research through Design (RtD). Together with participants with lived experiences of cognitive impairments we explored the existing personal eHealth services with Participatory Cognitive Barrier Walkthrough and co-designed a prototype for enhanced cognitive accessibility. We used an explorative study design constructing the prototype that presents the preferred state, where the participants’ contributions are embedded in the design (e.g., visualization of high-cost protection for healthcare, notifications, read aloud functionality, and photos of drugs). The ownership of the targeted eHealth services was outside the research project, and the co-designed prototype was used as a dialogue tool with stakeholders from the product owner perspective. We propose that our Participatory RtD approach enhances understanding of end-user perspectives in a given context and promote dialogue around complex eHealth services.</p>}},
  author       = {{Jonsson, Marika and Gustavsson, Catharina and Gulliksen, Jan and Johansson, Stefan}},
  issn         = {{1044-7318}},
  keywords     = {{disabled populations; human-computer interaction theory; Interface design and evaluation methodologies; prototyping; user-centered design}},
  language     = {{eng}},
  publisher    = {{Taylor & Francis}},
  series       = {{International Journal of Human-Computer Interaction}},
  title        = {{Participatory Research Through Design for Societal Change–A Case Study of Co-Designing a Prototype for Enhanced Cognitive Accessibility of an eHealth Service}},
  url          = {{http://dx.doi.org/10.1080/10447318.2025.2601277}},
  doi          = {{10.1080/10447318.2025.2601277}},
  year         = {{2025}},
}